This statistic shows the age distribution of Alzheimer and other dementia caregivers in the United States in 2023. As of that time, around 41 percent of Alzheimer's and other dementia caregivers were aged 50 to 64 years.

BackgroundPatients with heart failure may experience poor quality of life due to a variety of physical and psychological symptoms. Quality of life can improve if patients adhere to consistent self-care behaviors. Patient outcomes (i.e., quality of life) are thought to improve as a result of caregiver contribution to self-care. However, uncertainty exists on whether these outcomes improve as a direct result of caregiver contribution to self-care or whether this improvement occurs indirectly through the improvement of patient heart failure self-care behaviors.AimsTo investigate the influence of caregiver contribution to self-care on quality of life of heart failure people and explore whether patient self-care behaviors mediate such a relationship.MethodsThis is a secondary analysis of the MOTIVATE-HF randomized controlled trial (Clinicaltrials.gov registration number: NCT02894502). Data were collected at baseline and 3 months. An autoregressive longitudinal path analysis model was conducted to test our hypotheses.ResultsWe enrolled a sample of 510 caregivers [mean age = 54 (±15.44), 24% males)] and 510 patients [mean age = 72.4 (±12.28), 58% males)]. Patient self-care had a significant and direct effect on quality of life at three months (β = 0.20, p < .01). Caregiver contribution to self-care showed a significant direct effect on patient self-care (β = 0.32, p < .01), and an indirect effect on patient quality of life through the mediation of patient self-care (β = 0.07, p < .001).ConclusionPatient quality of life is influenced by self-care both directly and indirectly, through the mediation of caregiver contribution to self-care. These findings improve our understanding on how caregiver contribution to self-care improves patient outcomes.

ABSTRACT Objective: to investigate the care provided by family female caregivers of elderly dependents who have been monitored by public home care and its social repercussions, discussing the facets between State, society and families. Method: descriptive cross-sectional study, with 45 caregivers of elderly patients accompanied by Home Care Services. Data were collected by means of a structured script. The discussion was elaborated in light of the works "Cuidado e cuidadoras: as várias faces do trabalho do 'care'" (Care and female caregivers: the several faces of the care work) and "Gênero e trabalho na França e no Brasil" (Gender and work in France and Brazil). Results: Most caregivers were women (95%) who performed home care at several places and incorporated hospital equipment into everyday life. They have been caregivers for four and a half years, working 18 hours a day on average; they presented average age of 55 years; 82% were ill, and 43% had no income. Conclusion: the study demonstrated the relevance of the care of female caregivers to society as well as their invisibility to public health and social policies.

We investigated the impact of a short-term and home-based logopaedic intervention program for people with dementia and their caregivers in a single-group repeated measures mixed-methods study. Our primary outcome measure was the newly designed and validated questionnaire ‘Experienced Communication in Dementia’ (ECD). Secondary outcome measures were obtained from ‘The Older Persons and Informal Caregivers Survey Minimum DataSet’(TOPICS-MDS): patient quality of life, patient health-related quality of life, patient psychological well-being, caregiver disease related burden, caregiver quality of life en caregiver happiness. Basic characteristics were also collected with the TOPICS-MDS.More information about the TOPICS-MDS can be found on: https://topics-mds.eu/We included 40 patients with various types and severity of dementia (26 men (mean age 74 years; SD 7,1 years) and 14 women (mean age 75 years; SD 6,3 years)) and 44 of their informal caregivers (10 men and 34 women). 32 patients and 35 caregivers completed the intervention.All measurements were done on five moments in time: before the intervention, after the intervention, and 3 – 6 – 9 months after completing the intervention. The drop-out rate was about 20% for each measurement. 16 patients and accompanying caregivers completed the whole study.This dataset is a cleaned version. Sum-scores are calculated where necessary. All variables are labelled and values are described in Dutch in the SPSS-file. The ECD questionnaire is also available (in Dutch). On the second measurement (done after completing the intervention) semi-structured interviews were conducted. Dutch transcripts were used for qualitative analysis, and are available on request.

IntroductionNeurofibromatosis type 1 (NF1) is a rare genetic disorder, with lack of evidence of disease burden in China. We aimed to describe the economic burden, health-related quality of life (HRQL), and caregiver burden of NF1 patients in China.MethodsWe conducted an online cross-sectional survey employing the China Cloud Platform for Rare Diseases, with 223 caregivers of NF1 pediatric patients (patients under 18), and 226 adult patients. Economic burden was estimated using direct and indirect costs related to NF1 in 2021, and the Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI-GH). HRQL measures included EQ-5D-Y proxy version and PedsQL™ 4.0 Generic Core Scales (PedsQL GCS) proxy version for pediatric patients, and EQ-5D-5L and PedsQL™ 3.0 Neurofibromatosis Module (PedsQL NFM) for adult patients. Caregiver burden was estimated by Zarit Burden Interview (ZBI).ResultsFor pediatric patients, the average direct cost in 2021 was CNY 33,614 (USD 4,879), and employed caregivers’ annual productivity loss was 81 days. EQ-5D-Y utility was 0.880 ± 0.13 and VAS score was 75.38 ± 20.67, with 52.6% patients reporting having problems in “pain/discomfort” and 42.9% in “anxiety/depression.” PedsQL GCS total score was 68.47 ± 19.42. ZBI score demonstrated that 39.5% of caregivers had moderate-to-severe or severe burden. For adult patients, average direct cost in 2021 was CNY 24,531 (USD 3,560). Patients in employment reported an absenteeism of 8.5% and presenteeism of 21.6% according to the results of WPAI-GH. EQ-5D-5L utility was 0.843 ± 0.17 and VAS score was 72.32 ± 23.49, with more than half of patients reporting having problems in “pain/discomfort” and “anxiety/depression” dimensions. PedsQL NFM total score was 68.40 ± 15.57.ConclusionBoth pediatric and adult NF1 patients in China had a wide-ranging economic burden and low HRQL, especially in the psychological dimension. Caregivers for NF1 pediatric patients experienced considerable caregiver burden. More attention and support from policymakers and stakeholders are required to relieve NF1 patients’ and caregivers’ distress.

IH466 - Average weekly hours of care provided by caregivers aged 18 years and older. Published by Central Statistics Office. Available under the license Creative Commons Attribution 4.0 (CC-BY-4.0).Average weekly hours of care provided by caregivers aged 18 years and older...

IH468 - Average weekly hours of care provided by caregivers aged 18 years and older. Published by Central Statistics Office. Available under the license Creative Commons Attribution 4.0 (CC-BY-4.0).Average weekly hours of care provided by caregivers aged 18 years and older...

An increasing number of families in Italy resort to home caregivers to assist their elderly members. According to a survey carried out among a sample of these households, the main reason seemed to be the impossibility to personally assist their dear ones who were living in a different house. Another 30 percent of the respondents declared to live alone and not being able to take care of their house and themselves. These percentages, however, changed considerably and predictably according to the age of the respondents. For people older than 75 years, the share of non-self sufficient individuals jumped to 74 percent. On the other hand, respondents younger than 60 years mentioned more often the impossibility to assist relatives living with them or in other locations. This situation, however, represented quite a financial burden for Italian households, who were spending 1.2 thousand euros per month on average on caregivers.

This report estimates the economic value of family caregiving at $450 billion in 2009 based on 42.1 million caregivers age 18 or older providing an average of 18.4 hours of care per week to care recipients age 18 or older, at an average value of $11.16 per hour. This data is not collected by a government agency. The findings and conclusions in this report are those of the author and do not necessarily represent the views of the Department of Health & Human Services.

IH467 - Average weekly hours of care provided by caregivers aged 18 years and older. Published by Central Statistics Office. Available under the license Creative Commons Attribution 4.0 (CC-BY-4.0).Average weekly hours of care provided by caregivers aged 18 years and older...

Number of individuals who received a tax credit for caregivers and the average amount paid, specifically for the component where the person being helped is of age and has an impairment (with or without cohabitation). The breakdown is available by age, gender and administrative region, for tax years 2020 to 2023, as of September 30, 2024.

Number of individuals who received a tax credit for a caregiver and the average amount paid, specifically for the component where there is cohabitation with the person being cared for (other than the spouse) and the person being cared for is 70 years of age or older without being disabled. The breakdown is available by age, gender and administrative region, for tax years 2020 to 2023, as of September 30, 2024.

Caregiver time preferences by BMI categories, household characteristics, physical activity and screen time.

Number of individuals who received a tax credit for natural caregivers and average amount paid, by age, gender and administrative region, for the 2014 to 2019 tax years, as of September 30, 2023.

Emerging research on family caregiving and institutionalization has emphasized that families do not disengage from care responsibilities following a relative's admission to residential long-term care settings. The Residential Care Transition Module (RCTM) provided 6 formal sessions of consultation (one-to-one and family sessions) over a 4-month period to those family caregivers who had admitted a cognitively impaired relative to a residential long-term care (RLTC) setting (nursing home, assisted living memory care unit). The mixed method, randomized controlled trial of RCTM aimed to decrease family caregivers' emotional and psychological distress, placement-related strain, and increase relative's transitions back to the community. The RCTM is a psychosocial intervention designed for families following RLTC placement to help families better navigate the residential care transitions of relatives with Alzheimer's disease or a related dementia.This longitudinal dataset was self-reported by caregivers about themselves and their care recipients over a 12-month period. The data include 133 variables and 240 cases.Demographic variables in this data file include participant treatment/control group assignment, age, gender, race, marital status, education, income, employment status, and relationship to the care recipient. Additionally, it includes care recipient age, gender, race, marital status, education, income, Medicaid status, type of residence, dichotomous dementia diagnosis, and time since placement in long-term care. Besides the summary scores of the scales described later, the data also include information on caregiver general health, sleep, emotional difficulties, and bereavement status. It also provides information on caregiver and care recipient adjustment to residential long-term care and the amount and length of typical visits by the caregiver to the care recipient. The number and average length of intervention and ad hoc sessions are included as well.

According to Cognitive Market Research, the global Retirement Home Services market is growing at a compound annual growth rate (CAGR) of 3.90% from 2023 to 2030. Rising Global Life Expectancy Is Driving The Growth of the Market

People are living longer lives than they were a few decades ago. This is due to low rates of cardiovascular and infectious disease mortality. The majority of deaths in the world were caused by three primary health conditions: ischemic heart disease, chronic obstructive pulmonary disease (COPD), and stroke.

Since the 1990s, the average number of fatalities has grown. The number of people dying from illnesses such as heart disease has increased as the world population has grown.

The decrease in age-specific mortality rates for various illnesses is evidence of the healthcare industry's success.Life expectancy increases as a result of breakthroughs in public healthcare facilities and significant developments in the healthcare business, as well as higher living standards, increased nutrition, better education, and lifestyle changes. An individual's global average age is mostly determined by living conditions and place of residence. These factors will boost market growth during the forecast period.

Technological Developments Will Boost Market Expansion

During the forecast period, technological advancements in long-term healthcare are anticipated to propel market expansion. This is brought on by the increase in Internet usage, which has sparked the development of online marketplaces, mobile apps, and mHealth. There is a rising need for support services including smartphone apps, trackers, wearables, communication tools, and smart alarms. These tools allow nurses and caregivers to monitor, document, and observe patients as well as connect with medical specialists.The use of computer and mobile phone-based patient data management among these technologies is spreading throughout long-term care.

Apps that create electronic health records (EHRs) and mobile health records (MHRs) are now available, making it simpler for consumers and healthcare professionals to access and exchange health information.

(Source:health-e.in/blog/phr-apps-india/)

The main technological advancements are mHealth and mobile-based healthcare applications that produce electronic health records (EHRs) and mobile health records (MHRs). When there are medical emergencies, other technologies, like alarm integration methods, are employed to notify service providers and caregivers. As they lessen the dependency on carers, smart houses are becoming more popular in industrialized nations. Thus, the market's expansion over the course of the forecast period will be fueled by the rising acceptance of such cutting-edge technical solutions.

The Aspects of the Retirement Home Services Market are Limitingits Growth

Negative Reputation Of Retirement Homes Is A Significant Barrier To Market Growth

Though living in the comfort of one's own home is always preferable, living in an old age home has its advantages. However, just a few old age facilities provide the bare minimum of quality for a comfortable stay. The cost of services supplied by old age homes is heavily influenced by the quality of those services. Many individuals enroll in retirement homes that lack basic infrastructure and services because they cannot afford the hefty service fees. Residents at nursing facilities are rarely given privacy. The environment in certain nursing facilities frequently results in despair, boredom, neglect, and, in some cases, abuse.

Impact of COVID-19 on The Retirement Home Services Market

Due to the risk of getting the virus in communal living arrangements, the pandemic has reduced demand for retirement homes. However, the epidemic has increased demand for retirement homes that provide specialized nursing care services. Retirement homes that provide specialized services for nursing care are growing more popular as individuals seek a safe and comfortable place to live. Introduction of Retirement Home Services

A retirement home is a multi-residence living complex designed for the elderly, sometimes known as an old people's home or old age home. Everyone or a couple resides in a room or suite of rooms that is akin to an apartment. There are more facilities in the building. This will include places for gathering, eating, playing, and receiving some kind of healt...

BackgroundSevere mental illness has negative consequences not only for the person suffering from it but also for their caregiver’s quality of life and the community in which they reside. These impacts could be particularly visible in low- and middle-income countries, where the treatment gap for mental illnesses is particularly high. There is a dearth of evidence in Ethiopia.ObjectiveThis study aims to assess the quality of life and its associated factors among caregivers of patients with severe mental illness at Felege Hiwot and Tibebe Ghion Compressive Specialized Hospital, Bahir Dar, Northwest Ethiopia, in 2022.MethodsAn institution-based cross-sectional study design was conducted at Felege Hiwot and Tibebe Ghion Compressive Specialized Hospitals from 13 June to 13 July 2022. A systematic random sample technique was utilized to select 469 study participants. The World Health Organization quality of life-BREF questionnaire was utilized to assess quality of life, and perceived stigma was measured through a family interview schedule questionnaire. The data were gathered using the epicollect5 software with a face-to-face interview method and then exported to SPSS-25. Simple and multiple linear regression analyses were conducted to identify associated factors of quality of life for variables that are statistically significant (p-value< 0.05) with B-coefficients and a 95% CI. Descriptive statistics were used to describe the outcome and predictor variables.ResultsA total of 456 respondents participated, with a response rate of 97.2%. The result showed that the mean quality-of-life score of caregivers of patients with severe mental illness for each domain (mean ± standard deviations) was between 46.5 ± 18.7 and 51.2 ± 19.9, with the worst score of zero in the environmental domain and 94 in the social domain. In multiple regression, living in a rural area (B = −5.2; 95% CI, −8.9, −1.8), being illiterate (B = −7.2; 95% CI, −10.6, −3.7), having chronic medical illness (B = −5.2; 95% CI, −8.6, −1.7), having probable cases of anxiety (B = −6.9, 95% CI, −10.5, −13.3), having probable cases of depression (B = −4.9; 95% CI, −8.2, −1.7), and the presence of perceived stigma (B = −7.9; 95% CI, −11.2, −4.77) were significantly associated with the overall quality of life. This analysis suggests that the identified factors can predict over 40% of the variability in overall quality of life scores for caregivers.ConclusionThe quality of life of caregivers of patients with severe mental illness was found to be low. Living in a rural area, being illiterate, having chronic medical illnesses, having probable cases of anxiety and depression, and being stigmatized were negatively associated with the overall quality of life. The findings indicate the necessity for health professionals, the government, and other concerned bodies to pay more attention to caregivers’ quality of life.

Empathy develops in the context of close relationships. Children observe their parents’ emotional responses to others and listen to their parents explain emotions and associated behaviours. It follows that the experience of maltreatment interferes with typical empathy development because sensitive caregiving is compromised. This study aims to explore the influence of maltreatment and subsequent adoption on empathy development in a cross-sectional design comparing adopted with non-adopted primary-school-aged children. It is hypothesised that there will be a group difference, with adopted children scoring lower on parent-report and behavioural measures of empathy than the non-adopted group. Because empathy develops within caregiver-child relationships, it is expected that caregivers’ empathy is associated with child empathy, and, further, that this relationship is moderated by maltreatment (group) status. The sample comprised 27 adopted and 72 non-adopted comparison children (Mean age = 8.77 years, SD = 1.61) and their caregivers living in the UK recruited through schools and adoptive agencies.A combination of questionnaire measures to assess trait empathy and behavioural assessments to assess state empathy is used. Adopted children scored significantly lower on both state and trait measures of empathy. Intriguingly caregivers also differed significantly on state and trait measures of empathy with adoptive parents scoring higher. Significant associations appear between caregiver and child trait empathy measures, but these relationships were not significantly moderated by maltreatment status. Findings are discussed in terms of their relevance for professionals, including in educational contexts, supporting maltreated children, and for biological and alternative caregivers.

Experiencing maltreatment in childhood can have detrimental and long-term effects on a child’s development. Maltreatment is the main reason for children to be removed from their family settings and to be looked after by alternative caregivers. Research has demonstrated that even after removal from the maltreating context, many children continue to experience persistent socioemotional difficulties. Less is known about the impact of maltreatment on children’s development of empathy and emotion regulation (ER) specifically and the ways that alternative caregiving protects against negative effects of maltreatment. Empathy and ER are key competencies that underpin a wide variety of other socioemotional skills. This thesis presents two related studies. Firstly, a systematic literature review was conducted to consider the literature exploring the impact of alternative caregiving on ER development. Eight studies were included that compared ER between children with and without experiences of maltreatment and subsequent transition to alternative care arrangements. Half of the studies concluded that maltreatment is associated with significantly less ER and an additional two studies found similar, but non-significant results. There are very few studies that have this focus, highlighting a need for further research. Secondly, empathy was assessed in 27 school-age adopted children with a history of maltreatment and compared with empathy measured with 72 non-adopted, non-maltreated children who live with their biological parents. It was hypothesised that maltreatment would have a negative impact on empathy development resulting in the adopted children scoring lower on empathy measures. It was also hypothesised that caregiver and child empathy would be associated and that this relationship would be moderated by maltreatment (group) status. The findings were that adopted children scored lower on parent-report questionnaire and behavioural measures of empathy. There were significant associations between parent and child measures of empathy, but maltreatment status did not significantly moderate this association. Taken together, both studies identify difficulties maltreated children have even within a context of adoption and fostering with empathy and emotion regulation development. The implications of this are discussed broadly and more specifically related to an educational psychology context.

This table provides monthly data since January 2017 on average monthly affiliations of non-professional caregivers by sex and age groups. The information is disaggregated territorially at the level of the provinces of the Canary Islands.

Background: Decompressive hemicraniectomy (DHC) after space-occupying strokes among patients older than 60 years has been shown to reduce mortality rates but at the cost of severe disability. There is an ongoing debate about what could be considered an acceptable outcome for these patients. Data about retrospective consent to the procedure after lengthy time periods are lacking. Methods: This study included 79 consecutive patients who underwent DHC during a 7.75-year period. Surviving patients were assessed for functional and psychological outcome, quality of life (QoL) and retrospective consent for the procedure. Patients younger than 60 years were compared with older patients. Results: Of our 79 patients, 44 were younger than 60 years (median 50 years, interquartile range (IQR) 19-59 years) and 35 were older (median 68 years, interquartile range 60-87 years). The 30-day mortality rate was higher for the older group, but the difference was not statistically significant. Functional outcome was significantly better in the younger group: 31% of the patients in this group vs. 10% in the older group had a modified Rankin Scale score of 0-3 (p = 0.046). The mean National Institutes of Health Stroke Scale score was 17 ± 14 for the younger group and 29 ± 15 for the older group (p = 0.002). On the 36-Item Short Form Health Survey, with the exception of the item ‘General health', the older group reported higher values for all items, with statistically significant differences between the 2 groups on the items ‘Role limitation emotional' (p = 0.0007) and ‘Vitality' (p = 0.02). In the younger group, 29% of patients retrospectively declined consent for DHC opposed to 0% of patients in the older group (p = 0.07). Conclusions: Despite impaired functional outcome after DHC, indicators of QoL and retrospective consent are higher for patients older than 60 years over the long term. This finding should be taken into account by those who counsel patients and caregivers with regard to this serious procedure.