Provisional counts of the number of deaths registered in England and Wales, by age, sex, region and Index of Multiple Deprivation (IMD), in the latest weeks for which data are available.

NHS UK - COVID-19 Daily Deaths

This section contains information on deaths of patients who have died in hospitals in England and had tested positive for COVID-19 at time of death. All deaths are recorded against the date of death rather than the date the deaths were announced. Interpretation of the figures should take into account the fact that totals by date of death, particularly for most recent days, are likely to be updated in future releases. For example as deaths are confirmed as testing positive for COVID-19, as more post-mortem tests are processed and data from them are validated. Any changes are made clear in the daily files.

These figures do not include deaths outside hospital, such as those in care homes. This approach makes it possible to compile deaths data on a daily basis using up to date figures.

Dataset Content

These figures will be updated at 2pm each day and include confirmed cases reported at 5pm the previous day. Confirmation of COVID-19 diagnosis, death notification and reporting in central figures can take up to several days and the hospitals providing the data are under significant operational pressure. This means that the totals reported at 5pm on each day may not include all deaths that occurred on that day or on recent prior days.

The original dataset is sourced directly from the NHS source site, this original dataset is then cleaned and converted to a csv format available for inclusion into a Kaggle notebook.

There are 3 files considered within the data :- 1. Fatalities_by_age_uk 2.Fatalities_by_region_uk 3.Fatalities_by_trust_uk

Data runs from March 1st up to the current day. Any discrepancies will be outlined. The first is cumulative for any previous days leading up to of relevance. The following days are not cumulative and represent the updated value for the date under consideration.

A start kernel is provided to demonstrate using the dataset.

Citations

This dataset is sourced from the NHS statistical work areas:- https://www.england.nhs.uk/statistics/statistical-work-areas/

This dataset has been sourced and provided to aid in the following competition:- https://www.kaggle.com/c/covid19-global-forecasting-week-4

Dataset description

Daily official UK Covid data. The data is available per country (England, Scotland, Wales and Northern Ireland) and for different regions in England. The different regions are split into two different files as part of the data is directly gathered by the NHS (National Health Service). The files that contain the word 'nhsregion' in their name, include data related to hospitals only, such as number of admissions or number of people in respirators. The files containing the word 'region' in their name, include the rest of the data, such as number of cases, number of vaccinated people or number of tests performed per day. The next paragraphs describe the columns for the different file types.

Region files

Files related to regions (word 'region' included in the file name) have the following columns: - "date": date in YYYY-MM-DD format - "area type": type of area covered in the file (region or nation) - "area name": name of area covered in the file (region or nation name) - "daily cases": new cases on a given date - "cum cases": cumulative cases - "new deaths 28days": new deaths within 28 days of a positive test - "cum deaths 28days": cumulative deaths within 28 days of a positive test - "new deaths_60days": new deaths within 60 days of a positive test - "cum deaths 60days": cumulative deaths within 60 days of a positive test - "new_first_episode": new first episodes by date - "cum_first_episode": cumulative first episodes by date - "new_reinfections": new reinfections by specimen data - "cum_reinfections": cumualtive reinfections by specimen data - "new_virus_test": new virus tests by date - "cum_virus_test": cumulative virus tests by date - "new_pcr_test": new PCR tests by date - "cum_pcr_test": cumulative PCR tests by date - "new_lfd_test": new LFD tests by date - "cum_lfd_test": cumulative LFD tests by date - "test_roll_pos_pct": percentage of unique case positivity by date rolling sum - "test_roll_people": unique people tested by date rolling sum - "new first dose": new people vaccinated with a first dose - "cum first dose": cumulative people vaccinated with a first dose - "new second dose": new people vaccinated with a first dose - "cum second dose": cumulative people vaccinated with a first dose - "new third dose": new people vaccinated with a booster or third dose - "cum third dose": cumulative people vaccinated with a booster or third dose

Country files

Files related to countries (England, Northern Ireland, Scotland and Wales) have the above columns and also: - "new admissions": new admissions, - "cum admissions": cumulative admissions, - "hospital cases": patients in hospitals, - "ventilator beds": COVID occupied mechanical ventilator beds - "trans_rate_min": minimum transmission rate (R) - "trans_rate_max": maximum transmission rate (R) - "trans_growth_min": transmission rate growth min - "trans_growth_max": transmission rate growth max

NHS Region files

Files related to nhsregion (word 'nhsregion' included in the file name) have the following columns: - "new admissions": new admissions, - "cum admissions": cumulative admissions, - "hospital cases": patients in hospitals, - "ventilator beds": COVID occupied mechanical ventilator beds - "trans_rate_min": minimum transmission rate (R) - "trans_rate_max": maximum transmission rate (R) - "trans_growth_min": transmission rate growth min - "trans_growth_max": transmission rate growth max

It's worth noting that the dataset hasn't been cleaned and it needs cleaning. Also, different files have different null columns. This isn't an error in the dataset but the way different countries and regions report the data.

Excess Winter Deaths (EWD) by age and conditions (underlying cause of death) expressed as average per year based on 7 years pooled data, 2004-2011. EWD trend expressed as average per year based on 3 years data. The Excess Winter Mortality Index (EWM Index was calculated based on the 'ONS Method' which defines the winter period as December to March, and the non-winter period as August to November of that same year and April to July of the following year. This winter period was selected as they are the months which over the last 50 years have displayed above average monthly mortality. However, if mortality starts to increase prior to this, for example in November, the number of deaths in the non-winter period will increase, which in turn will decrease the estimate of excess winter mortality. The EWM Index will be partly dependent on the proportion of older people in the population as most excess winter deaths effect older people (there is no standardisation in this calculation by age or any other factor). Excess winter mortality is calculated as winter deaths (deaths occurring in December to March) minus the average of non-winter deaths (April to July of the current year and August to November of the previous year). The Excess winter mortality index is calculated as excess winter deaths divided by the average non-winter deaths, expressed as a percentage. Relevant link: http://www.wmpho.org.uk/excesswinterdeathsinEnglandatlas/

Annual data on death registrations by single year of age for the UK (1974 onwards) and England and Wales (1963 onwards).

Following the publication of the period and cohort life expectancy tables ONS prepares databases for the UK and each of the constituent countries containing mortality data used in the calculation of historic and projected life tables. Published for the first time in this release are tables of historic and projected qx (probability of dying at each age) and lx values (numbers of people surviving at each age) for the UK, on a period and cohort basis for each year 1951 to 2060. Source agency: Office for National Statistics Designation: Official Statistics not designated as National Statistics Language: English Alternative title: qx and lx tables

Population Mid-year Estimates from the Office for National Statistics (ONS). These are the official estimates of the resident population in Lincolnshire. ONS uses information from the census and other data to produce these official mid-year population estimates every year between each census. These figures show how many people live in each local area and the population age-sex structure. This data is updated annually. Although the ONS data shows exact numbers, they are estimates so some rounding should be applied. For current Armed forces populations, two Ministry of Defence links are also shown below. The ONS 2021 Census link has Veterans data. Population Projections data sourced from ONS is also available on this platform. The Source link shown below is to the ONS Nomis website. It has user-friendly data query tools for a broad range of ONS and other datasets from official sources.

This mapping tool enables you to see how COVID-19 deaths in your area may relate to factors in the local population, which research has shown are associated with COVID-19 mortality. It maps COVID-19 deaths rates for small areas of London (known as MSOAs) and enables you to compare these to a number of other factors including the Index of Multiple Deprivation, the age and ethnicity of the local population, extent of pre-existing health conditions in the local population, and occupational data. Research has shown that the mortality risk from COVID-19 is higher for people of older age groups, for men, for people with pre-existing health conditions, and for people from BAME backgrounds. London boroughs had some of the highest mortality rates from COVID-19 based on data to April 17th 2020, based on data from the Office for National Statistics (ONS). Analysis from the ONS has also shown how mortality is also related to socio-economic issues such as occupations classified ‘at risk’ and area deprivation. There is much about COVID-19-related mortality that is still not fully understood, including the intersection between the different factors e.g. relationship between BAME groups and occupation. On their own, none of these individual factors correlate strongly with deaths for these small areas. This is most likely because the most relevant factors will vary from area to area. In some cases it may relate to the age of the population, in others it may relate to the prevalence of underlying health conditions, area deprivation or the proportion of the population working in ‘at risk occupations’, and in some cases a combination of these or none of them. Further descriptive analysis of the factors in this tool can be found here: https://data.london.gov.uk/dataset/covid-19--socio-economic-risk-factors-briefing

COVID-19 is a infectious Disease which has infected more than 500 people in UK and many more people world-wide.

Acknowledgements Sincere thanks to Public Health England and Local governments. Source of Data: UK Government and Public Health UK

****Notes on the methodology**** This service shows case numbers as reported to Public Health England (PHE), matched to Administrative Geography Codes from the Office of National Statistics. Cases include people who have recovered.

Events are time-stamped on the date that PHE was informed of the new case or death.

The map shows circles that grow or shrink in line with the number of cases in that geographic area.

Data from Scotland, Wales and Northern Ireland is represented on the charts, total indicators and on the country level map layer.

Contains Ordnance Survey data © Crown copyright and database right 2020. Contains National Statistics data © Crown copyright and database right 2020.

Terms of Use No special restrictions or limitations on using the item’s content have been provided.

Provisional deaths registration data for single year of age and average age of death (median and mean) of persons whose death involved coronavirus (COVID-19), England and Wales. Includes deaths due to COVID-19 and breakdowns by sex.

SUMMARYThis analysis, designed and executed by Ribble Rivers Trust, identifies areas across England with the greatest levels of cancer (in persons of all ages). Please read the below information to gain a full understanding of what the data shows and how it should be interpreted.ANALYSIS METHODOLOGYThe analysis was carried out using Quality and Outcomes Framework (QOF) data, derived from NHS Digital, relating to cancer (in persons of all ages).This information was recorded at the GP practice level. However, GP catchment areas are not mutually exclusive: they overlap, with some areas covered by 30+ GP practices. Therefore, to increase the clarity and usability of the data, the GP-level statistics were converted into statistics based on Middle Layer Super Output Area (MSOA) census boundaries.The percentage of each MSOA’s population (all ages) with cancer was estimated. This was achieved by calculating a weighted average based on:The percentage of the MSOA area that was covered by each GP practice’s catchment areaOf the GPs that covered part of that MSOA: the percentage of registered patients that have that illness The estimated percentage of each MSOA’s population with cancer was then combined with Office for National Statistics Mid-Year Population Estimates (2019) data for MSOAs, to estimate the number of people in each MSOA with cancer, within the relevant age range.Each MSOA was assigned a relative score between 1 and 0 (1 = worst, 0 = best) based on:A) the PERCENTAGE of the population within that MSOA who are estimated to have cancerB) the NUMBER of people within that MSOA who are estimated to have cancerAn average of scores A & B was taken, and converted to a relative score between 1 and 0 (1= worst, 0 = best). The closer to 1 the score, the greater both the number and percentage of the population in the MSOA that are estimated to have cancer, compared to other MSOAs. In other words, those are areas where it’s estimated a large number of people suffer from cancer, and where those people make up a large percentage of the population, indicating there is a real issue with cancer within the population and the investment of resources to address that issue could have the greatest benefits.LIMITATIONS1. GP data for the financial year 1st April 2018 – 31st March 2019 was used in preference to data for the financial year 1st April 2019 – 31st March 2020, as the onset of the COVID19 pandemic during the latter year could have affected the reporting of medical statistics by GPs. However, for 53 GPs (out of 7670) that did not submit data in 2018/19, data from 2019/20 was used instead. Note also that some GPs (997 out of 7670) did not submit data in either year. This dataset should be viewed in conjunction with the ‘Health and wellbeing statistics (GP-level, England): Missing data and potential outliers’ dataset, to determine areas where data from 2019/20 was used, where one or more GPs did not submit data in either year, or where there were large discrepancies between the 2018/19 and 2019/20 data (differences in statistics that were > mean +/- 1 St.Dev.), which suggests erroneous data in one of those years (it was not feasible for this study to investigate this further), and thus where data should be interpreted with caution. Note also that there are some rural areas (with little or no population) that do not officially fall into any GP catchment area (although this will not affect the results of this analysis if there are no people living in those areas).2. Although all of the obesity/inactivity-related illnesses listed can be caused or exacerbated by inactivity and obesity, it was not possible to distinguish from the data the cause of the illnesses in patients: obesity and inactivity are highly unlikely to be the cause of all cases of each illness. By combining the data with data relating to levels of obesity and inactivity in adults and children (see the ‘Levels of obesity, inactivity and associated illnesses: Summary (England)’ dataset), we can identify where obesity/inactivity could be a contributing factor, and where interventions to reduce obesity and increase activity could be most beneficial for the health of the local population.3. It was not feasible to incorporate ultra-fine-scale geographic distribution of populations that are registered with each GP practice or who live within each MSOA. Populations might be concentrated in certain areas of a GP practice’s catchment area or MSOA and relatively sparse in other areas. Therefore, the dataset should be used to identify general areas where there are high levels of cancer, rather than interpreting the boundaries between areas as ‘hard’ boundaries that mark definite divisions between areas with differing levels of cancer.TO BE VIEWED IN COMBINATION WITH:This dataset should be viewed alongside the following datasets, which highlight areas of missing data and potential outliers in the data:Health and wellbeing statistics (GP-level, England): Missing data and potential outliersLevels of obesity, inactivity and associated illnesses (England): Missing dataDOWNLOADING THIS DATATo access this data on your desktop GIS, download the ‘Levels of obesity, inactivity and associated illnesses: Summary (England)’ dataset.DATA SOURCESThis dataset was produced using:Quality and Outcomes Framework data: Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital.GP Catchment Outlines. Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital. Data was cleaned by Ribble Rivers Trust before use.MSOA boundaries: © Office for National Statistics licensed under the Open Government Licence v3.0. Contains OS data © Crown copyright and database right 2021.Population data: Mid-2019 (June 30) Population Estimates for Middle Layer Super Output Areas in England and Wales. © Office for National Statistics licensed under the Open Government Licence v3.0. © Crown Copyright 2020.COPYRIGHT NOTICEThe reproduction of this data must be accompanied by the following statement:© Ribble Rivers Trust 2021. Analysis carried out using data that is: Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital; © Office for National Statistics licensed under the Open Government Licence v3.0. Contains OS data © Crown copyright and database right 2021. © Crown Copyright 2020.CaBA HEALTH & WELLBEING EVIDENCE BASEThis dataset forms part of the wider CaBA Health and Wellbeing Evidence Base.

The Excess Winter Mortality Index (EWD Index) shows excess winter deaths as a Percentage Ratio of the number of deaths expected in the (eight) warmer months either side of Winter (01 December to 31 March). So the data’s yearly time period is from 01 August to 31 July the following year. In other words, EWD is the ratio of extra deaths from all causes during the winter months compared to average non-winter deaths. The EWD Index is partly dependent on the proportion of Older People in the population, as most excess winter deaths affect Older People. This indicator covers all ages, but there is no standardisation in its calculation by age or any other factor. So figures for an area can be influenced for example by the proportion of Older People. This dataset is updated annually. Source: Office for Health Improvement and Disparities (OHID) Public Health Outcomes Framework (PHOF), indicator 90360 / E14. Age breakouts, confidence intervals and metadata are shown on the PHE (PHOF) site. Note: Please be advised that the ONS currently has this dataset under consultation for review (as of 09/01/2025) so may not be updated annually until the review has concluded. The full notice can be found on the ONS link for the Winter Mortality publication - please see link in the Additional Information Section.

Title: Monthly War Data on WWI and WWII (Synthetic)

Description: This dataset provides a synthetic month-by-month, country-level representation of key metrics during World War I and World War II. It encompasses key nations involved in the conflicts and aims to showcase patterns and events influenced by historical timelines.

Key Features:

Year: The year of the data entry. Month: The month of the data entry. Country: The nation in focus. The dataset includes the USA, UK, Germany, USSR/Russia, and France. War Status: A binary variable indicating if the war was ongoing for that nation during that month (1 for Yes, 0 for No). Civilian Deaths: An estimated count of civilian deaths during that month. Military Deaths: An estimated count of military deaths during that month. Economic Impact Factor: A fictional index from 0 to 100 indicating the economic strain on the nation (a higher score indicates more strain). Population: Estimated population of the nation during that month. Note:

The data provided in this dataset is synthetically generated and is influenced by historical events and timelines. However, it is not an accurate representation of actual events and should be used with caution for analytical purposes. It is primarily designed for educational and illustrative tasks, allowing users to practice data analysis techniques in a historically-inspired context.

Background
The Labour Force Survey (LFS) is a unique source of information using international definitions of employment and unemployment and economic inactivity, together with a wide range of related topics such as occupation, training, hours of work and personal characteristics of household members aged 16 years and over. It is used to inform social, economic and employment policy. The LFS was first conducted biennially from 1973-1983. Between 1984 and 1991 the survey was carried out annually and consisted of a quarterly survey conducted throughout the year and a 'boost' survey in the spring quarter (data were then collected seasonally). From 1992 quarterly data were made available, with a quarterly sample size approximately equivalent to that of the previous annual data. The survey then became known as the Quarterly Labour Force Survey (QLFS). From December 1994, data gathering for Northern Ireland moved to a full quarterly cycle to match the rest of the country, so the QLFS then covered the whole of the UK (though some additional annual Northern Ireland LFS datasets are also held at the UK Data Archive). Further information on the background to the QLFS may be found in the documentation.

Longitudinal data
The LFS retains each sample household for five consecutive quarters, with a fifth of the sample replaced each quarter. The main survey was designed to produce cross-sectional data, but the data on each individual have now been linked together to provide longitudinal information. The longitudinal data comprise two types of linked datasets, created using the weighting method to adjust for non-response bias. The two-quarter datasets link data from two consecutive waves, while the five-quarter datasets link across a whole year (for example January 2010 to March 2011 inclusive) and contain data from all five waves. A full series of longitudinal data has been produced, going back to winter 1992. Linking together records to create a longitudinal dimension can, for example, provide information on gross flows over time between different labour force categories (employed, unemployed and economically inactive). This will provide detail about people who have moved between the categories. Also, longitudinal information is useful in monitoring the effects of government policies and can be used to follow the subsequent activities and circumstances of people affected by specific policy initiatives, and to compare them with other groups in the population. There are however methodological problems which could distort the data resulting from this longitudinal linking. The ONS continues to research these issues and advises that the presentation of results should be carefully considered, and warnings should be included with outputs where necessary.

New reweighting policy
Following the new reweighting policy ONS has reviewed the latest population estimates made available during 2019 and have decided not to carry out a 2019 LFS and APS reweighting exercise. Therefore, the next reweighting exercise will take place in 2020. These will incorporate the 2019 Sub-National Population Projection data (published in May 2020) and 2019 Mid-Year Estimates (published in June 2020). It is expected that reweighted Labour Market aggregates and microdata will be published towards the end of 2020/early 2021.

LFS Documentation
The documentation available from the Archive to accompany LFS datasets largely consists of the latest version of each user guide volume alongside the appropriate questionnaire for the year concerned. However, volumes are updated periodically by ONS, so users are advised to check the latest documents on the ONS Labour Force Survey - User Guidance pages before commencing analysis. This is especially important for users of older QLFS studies, where information and guidance in the user guide documents may have changed over time.

Additional data derived from the QLFS
The Archive also holds further QLFS series: End User Licence (EUL) quarterly data; Secure Access datasets; household datasets; quarterly, annual and ad hoc module datasets compiled for Eurostat; and some additional annual Northern Ireland datasets.

Variables DISEA and LNGLST
Dataset A08 (Labour market status of disabled people) which ONS suspended due to an apparent discontinuity between April to June 2017 and July to September 2017 is now available. As a result of this apparent discontinuity and the inconclusive investigations at this stage, comparisons should be made with caution between April to June 2017 and subsequent time periods. However users should note that the estimates are not seasonally adjusted, so some of the change between quarters could be due to seasonality. Further recommendations on historical comparisons of the estimates will be given in November 2018 when ONS are due to publish estimates for July to September 2018.

An article explaining the quality assurance investigations that have been conducted so far is available on the ONS Methodology webpage. For any queries about Dataset A08 please email Labour.Market@ons.gov.uk.

Occupation data for 2021 and 2022 data files

The ONS has identified an issue with the collection of some occupational data in 2021 and 2022 data files in a number of their surveys. While they estimate any impacts will be small overall, this will affect the accuracy of the breakdowns of some detailed (four-digit Standard Occupational Classification (SOC)) occupations, and data derived from them. Further information can be found in the ONS article published on 11 July 2023: https://www.ons.gov.uk/employmentandlabourmarket/peopleinwork/employmentandemployeetypes/articles/revisionofmiscodedoccupationaldataintheonslabourforcesurveyuk/january2021toseptember2022" style="background-color: rgb(255, 255, 255);">Revision of miscoded occupational data in the ONS Labour Force Survey, UK: January 2021 to September 2022.

2022 Weighting

The population totals used for the latest LFS estimates use projected growth rates from Real Time Information (RTI) data for UK, EU and non-EU populations based on 2021 patterns. The total population used for the LFS therefore does not take into account any changes in migration, birth rates, death rates, and so on since June 2021, and hence levels estimates may be under- or over-estimating the true values and should be used with caution. Estimates of rates will, however, be robust.

United Kingdom UK: Death Rate: Crude: per 1000 People data was reported at 9.100 Ratio in 2016. This records a decrease from the previous number of 9.200 Ratio for 2015. United Kingdom UK: Death Rate: Crude: per 1000 People data is updated yearly, averaging 11.300 Ratio from Dec 1960 (Median) to 2016, with 57 observations. The data reached an all-time high of 12.200 Ratio in 1963 and a record low of 8.700 Ratio in 2011. United Kingdom UK: Death Rate: Crude: per 1000 People data remains active status in CEIC and is reported by World Bank. The data is categorized under Global Database’s United Kingdom – Table UK.World Bank.WDI: Population and Urbanization Statistics. Crude death rate indicates the number of deaths occurring during the year, per 1,000 population estimated at midyear. Subtracting the crude death rate from the crude birth rate provides the rate of natural increase, which is equal to the rate of population change in the absence of migration.; ; (1) United Nations Population Division. World Population Prospects: 2017 Revision. (2) Census reports and other statistical publications from national statistical offices, (3) Eurostat: Demographic Statistics, (4) United Nations Statistical Division. Population and Vital Statistics Reprot (various years), (5) U.S. Census Bureau: International Database, and (6) Secretariat of the Pacific Community: Statistics and Demography Programme.; Weighted average;

The National Survey of Bereaved People (VOICES - Views of Informal Carers - Evaluation of Services) is an annual survey designed to measure the quality of end-of-life care. The VOICES survey particularly focuses on the last three months of life. Results are used to inform policy decisions and enable evaluation of the quality of end of life care by age group, sex, in different settings (home, hospital, care homes and hospices) and by different causes of death. Quality of end-of-life care is also included as an indicator in the NHS Outcomes Framework and the VOICES survey is used to monitor progress against this.

The Department of Health (DH) first commissioned the survey in 2011 to follow up on a commitment made in the End of Life Care Strategy. Previously, very little systematic information was available about the quality of care delivered to people approaching the end of life, despite reports from the Healthcare Commission and the Neuberger review highlighting deficiencies in care. The commissioning responsibility for the survey moved from DH to NHS England following the restructuring of the Health and Care systems in England in April 2013. Each year a sample of approximately 49,000 adults who died in England is selected from the deaths registration database held by the Office for National Statistics (ONS). To ensure the sample represents the deaths in England for the given period and covers the key domains of interest, the sample is stratified according to the cause of death, place of death and geography. For the 2011 and 2012 surveys, geography was based on Primary Care Trust (PCT) clusters. For the 2013 survey onwards, this is based on NHS Area Teams (NHS Area Team 2013 has also been applied to the earlier datasets).

The VOICES questionnaire is sent by post to the person who registered the death of the deceased; this is usually a relative or friend of the deceased. Questionnaires are sent out between 4 and 11 months after the patient has died. As is standard in most postal surveys, if no response is received, this first questionnaire is then followed up with two reminders. Once fieldwork, data capture, cleaning and processing are complete, findings are disseminated at both the national and sub-national level.

Further information about the survey and links to related publications may be found on the ONS National Bereavement Survey (VOICES) QMI webpage.

End User Licence and Secure Access versions available
The UK Data Service holds standard End User Licence (EUL) and Secure Access versions of the National Survey of Bereaved People data. EUL data are available to registered users but Secure Access data are only available to ONS Accredited Researchers (in addition, project approval and successful completion of a stringent training course are required before access can be granted). The Secure Access version contains finer detail variables (e.g. IMD deciles as opposed to quintiles in the EUL data, Strategic Clinical Network in addition to NHS Area Teams, and more detailed information on age, causes, dates and place of death). Users are strongly advised to check whether the EUL datasets (SNs 7975-7979, 8017 and 8018) and are sufficient for their research needs before making an application for the Secure Access version.

Background:

A PIONEER synthetic dataset of 20,000 ethnically diverse hypertrophic cardiomyopathy patients created using CT-GAN generative AI. Data includes clinical & biological phenotyping, co-morbidities, investigations (ECG, ECHO), procedures & outcomes.

Well-created synthetic data establishes a governance risk-free environment for algorithm development & experimentation. This includes evaluating new treatment models, care management systems, clinical decision support, and more. Synthetic data is of particular use in rare diseases, where real data may be in short supply, or to replicate disease in less common patient demographics (e.g. ethnicities).

Familial hypertrophic cardiomyopathy (HCM) is a rare genetic condition characterised by thickening (hypertrophy) of the cardiac muscle, usually of the interventricular septum. Arrhythmias can be life threatening and HCM is associated with an increased risk of sudden death. Some affected individuals develop potentially fatal heart failure, which may require heart transplantation. Approximately 130,000 people have HCM in the UK, but there is a significant burden of undiagnosed disease and diagnostic delay.

Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.

Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.

Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can provide real world data to meet bespoke requirements.

Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.