81 datasets found
  1. d

    Cancer Registration Statistics, England 2020

    • digital.nhs.uk
    Updated Oct 20, 2022
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    (2022). Cancer Registration Statistics, England 2020 [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cancer-registration-statistics
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    Dataset updated
    Oct 20, 2022
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Area covered
    England
    Description

    This publication reports on newly diagnosed cancers registered in England in addition to cancer deaths registered in England during 2020. It includes this summary report showing key findings, spreadsheet tables with more detailed estimates, and a methodology document.

  2. d

    Cancer Registrations Statistics, England 2021- First release, counts only

    • digital.nhs.uk
    Updated Oct 19, 2023
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    (2023). Cancer Registrations Statistics, England 2021- First release, counts only [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cancer-registration-statistics
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    Dataset updated
    Oct 19, 2023
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Description

    This publication reports on newly diagnosed cancers registered in England during 2021. It includes this summary report showing key findings, spreadsheet tables with more detailed estimates, and a methodology document. Cancer registrations (incidence) are provided by: Diagnosis (ICD-10 3-digit codes) by gender, age group, geographic region, deprivation and stage at diagnosis for selected cancer sites Diagnosis (ICD-10 4-digit code) by gender and age group

  3. Cancer incidence and mortality - Dataset - data.gov.uk

    • ckan.publishing.service.gov.uk
    Updated Dec 10, 2011
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    ckan.publishing.service.gov.uk (2011). Cancer incidence and mortality - Dataset - data.gov.uk [Dataset]. https://ckan.publishing.service.gov.uk/dataset/cancer_incidence_and_mortality
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    Dataset updated
    Dec 10, 2011
    Dataset provided by
    CKANhttps://ckan.org/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    Commentary, charts and tables present information on cancer cases and deaths in the UK. This publication has been discontinued as a result of the ONS Consultation on Statistical Products 2013. The last edition published was in December 2012. Source agency: Office for National Statistics Designation: National Statistics Language: English Alternative title: Cancer incidence and mortality

  4. d

    Cancer Registration Statistics, England 2019

    • digital.nhs.uk
    Updated Oct 21, 2021
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    (2021). Cancer Registration Statistics, England 2019 [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cancer-registration-statistics
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    Dataset updated
    Oct 21, 2021
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Description

    This release summarises the diagnoses in 2019 registered by NDRS covering all registerable neoplasms (all cancers, all in situ tumours, some benign tumours and all tumours that have uncertain or unknown behaviours)

  5. Cancer Statistics Registrations, England (Series MB1) - Dataset -...

    • ckan.publishing.service.gov.uk
    Updated Dec 10, 2011
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    ckan.publishing.service.gov.uk (2011). Cancer Statistics Registrations, England (Series MB1) - Dataset - data.gov.uk [Dataset]. https://ckan.publishing.service.gov.uk/dataset/cancer_statistics_registrations_england_series_mb1
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    Dataset updated
    Dec 10, 2011
    Dataset provided by
    CKANhttps://ckan.org/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Area covered
    England
    Description

    Presents national and regional information about cancer incidence. Source agency: Office for National Statistics Designation: National Statistics Language: English Alternative title: Cancer Statistics Registrations, England (Series MB1)

  6. Cancer Statistics Data Package

    • johnsnowlabs.com
    csv
    Updated Jan 20, 2021
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    John Snow Labs (2021). Cancer Statistics Data Package [Dataset]. https://www.johnsnowlabs.com/marketplace/cancer-statistics-data-package/
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    csvAvailable download formats
    Dataset updated
    Jan 20, 2021
    Dataset authored and provided by
    John Snow Labs
    Description

    This data package contains information on cancer its type, its occurrence by age, type and site. It also provides detailed data on adult and childhood cancer survival rates and deaths caused by breast cancer in females.

  7. Information provided to support cancer patients in the United Kingdom (UK)...

    • statista.com
    Updated Jun 20, 2022
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    Statista (2022). Information provided to support cancer patients in the United Kingdom (UK) 2019 [Dataset]. https://www.statista.com/statistics/534971/cancer-diagnosis-support-for-cancer-patients-united-kingdom-uk/
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    Dataset updated
    Jun 20, 2022
    Dataset authored and provided by
    Statistahttp://statista.com/
    Time period covered
    2019
    Area covered
    United Kingdom
    Description

    This statistic displays the share of information offered to support patients after a cancer diagnosis in the United Kingdom in 2019. Of respondents, 70.1 percent received information about support or self-help groups.

  8. Information provided about operations for cancer in England 2019

    • statista.com
    Updated Nov 24, 2025
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    Statista (2025). Information provided about operations for cancer in England 2019 [Dataset]. https://www.statista.com/statistics/534976/information-provided-about-operations-for-cancer-united-kingdom-uk/
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    Dataset updated
    Nov 24, 2025
    Dataset authored and provided by
    Statistahttp://statista.com/
    Time period covered
    2019
    Area covered
    United Kingdom, England
    Description

    This statistic displays the share of information provided about operations for cancer in the United Kingdom in 2019. The majority of respondents, 95.4 percent, said they had all the information they needed before their operation.

  9. Cancer Trends in England and Wales - Dataset - data.gov.uk

    • ckan.publishing.service.gov.uk
    Updated Dec 10, 2011
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    ckan.publishing.service.gov.uk (2011). Cancer Trends in England and Wales - Dataset - data.gov.uk [Dataset]. https://ckan.publishing.service.gov.uk/dataset/cancer_trends_in_england_and_wales
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    Dataset updated
    Dec 10, 2011
    Dataset provided by
    CKANhttps://ckan.org/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Area covered
    United Kingdom, Wales, England
    Description

    Brings together a large amount of information on cancer incidence, deaths from cancer, prevalence and survival from cancer. Source agency: Office for National Statistics Designation: Official Statistics not designated as National Statistics Language: English Alternative title: Cancer Trends in England and Wales

  10. Cancer Registrations in England

    • data.wu.ac.at
    html
    Updated Jun 4, 2018
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    Office for National Statistics (2018). Cancer Registrations in England [Dataset]. https://data.wu.ac.at/odso/data_gov_uk/ZTVjOTk2MWYtMGY3OC00MjY4LTg4MjMtYzE2OGFjMTc3MDNm
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    htmlAvailable download formats
    Dataset updated
    Jun 4, 2018
    Dataset provided by
    Office for National Statisticshttp://www.ons.gov.uk/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    Presents information on the number of newly diagnosed cases of cancer (incidence) and the age-standardised incidence rates for England.

    This publication has been discontinued and the data are now included within Cancer Statistics Registrations, England (Series MB1) so that all cancer registration data can be found in one place. The last volume to be published was Cancer Registrations in England - 2010

    Source agency: Office for National Statistics

    Designation: National Statistics

    Language: English

    Alternative title: Cancer Registrations in England

  11. b

    Five year survival from all cancers - ICP Outcomes Framework - Registered...

    • cityobservatory.birmingham.gov.uk
    csv, excel, geojson +1
    Updated Sep 9, 2025
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    (2025). Five year survival from all cancers - ICP Outcomes Framework - Registered Locality [Dataset]. https://cityobservatory.birmingham.gov.uk/explore/dataset/five-year-survival-from-all-cancers-icp-outcomes-framework-registered-locality/
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    csv, json, geojson, excelAvailable download formats
    Dataset updated
    Sep 9, 2025
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    This dataset presents information on five-year survival rates from all cancers, focusing on individuals diagnosed with invasive cancers (ICD-10 codes C00 to C97, excluding non-melanoma skin cancer C44). It provides a simplified local methodology for calculating survival outcomes, enabling analysis by ethnicity, deprivation, and within the Birmingham and Solihull (BSol) geography. While it does not replicate the national calculation, it offers valuable insights into cancer survival trends at a more granular level.

    Rationale

    The primary aim of this indicator is to increase five-year survival rates from all cancers. Monitoring survival over a five-year period provides a meaningful measure of cancer outcomes and the effectiveness of early diagnosis and treatment interventions.

    Numerator

    The numerator includes individuals who were diagnosed with a specific type of cancer and subsequently died from the same type of cancer within five years of diagnosis. Only invasive cancers (ICD-10 codes C00 to C97, excluding C44) are included.

    Denominator

    The denominator comprises all individuals diagnosed with an invasive cancer (ICD-10 codes C00 to C97, excluding C44) within a five-year period.

    Caveats

    This dataset uses a simplified methodology that does not replicate the national calculation. As a result, the values reported here may differ from nationally published figures. However, this approach allows for the inclusion of breakdowns by ethnicity, deprivation, and local geography (BSol), which are not always available in national statistics.

    External References

    For more information, refer to the National Cancer Registration and Analysis Service (NCRAS).

    Localities ExplainedThis dataset contains data based on either the resident locality or registered locality of the patient, a distinction is made between resident locality and registered locality populations:Resident Locality refers to individuals who live within the defined geographic boundaries of the locality. These boundaries are aligned with official administrative areas such as wards and Lower Layer Super Output Areas (LSOAs).Registered Locality refers to individuals who are registered with GP practices that are assigned to a locality based on the Primary Care Network (PCN) they belong to. These assignments are approximate—PCNs are mapped to a locality based on the location of most of their GP surgeries. As a result, locality-registered patients may live outside the locality, sometimes even in different towns or cities.This distinction is important because some health indicators are only available at GP practice level, without information on where patients actually reside. In such cases, data is attributed to the locality based on GP registration, not residential address.

    Click here to explore more from the Birmingham and Solihull Integrated Care Partnerships Outcome Framework.

  12. c

    Cancer (in persons of all ages): England

    • data.catchmentbasedapproach.org
    • hub.arcgis.com
    Updated Apr 6, 2021
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    The Rivers Trust (2021). Cancer (in persons of all ages): England [Dataset]. https://data.catchmentbasedapproach.org/datasets/cancer-in-persons-of-all-ages-england
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    Dataset updated
    Apr 6, 2021
    Dataset authored and provided by
    The Rivers Trust
    Area covered
    Description

    SUMMARYThis analysis, designed and executed by Ribble Rivers Trust, identifies areas across England with the greatest levels of cancer (in persons of all ages). Please read the below information to gain a full understanding of what the data shows and how it should be interpreted.ANALYSIS METHODOLOGYThe analysis was carried out using Quality and Outcomes Framework (QOF) data, derived from NHS Digital, relating to cancer (in persons of all ages).This information was recorded at the GP practice level. However, GP catchment areas are not mutually exclusive: they overlap, with some areas covered by 30+ GP practices. Therefore, to increase the clarity and usability of the data, the GP-level statistics were converted into statistics based on Middle Layer Super Output Area (MSOA) census boundaries.The percentage of each MSOA’s population (all ages) with cancer was estimated. This was achieved by calculating a weighted average based on:The percentage of the MSOA area that was covered by each GP practice’s catchment areaOf the GPs that covered part of that MSOA: the percentage of registered patients that have that illness The estimated percentage of each MSOA’s population with cancer was then combined with Office for National Statistics Mid-Year Population Estimates (2019) data for MSOAs, to estimate the number of people in each MSOA with cancer, within the relevant age range.Each MSOA was assigned a relative score between 1 and 0 (1 = worst, 0 = best) based on:A) the PERCENTAGE of the population within that MSOA who are estimated to have cancerB) the NUMBER of people within that MSOA who are estimated to have cancerAn average of scores A & B was taken, and converted to a relative score between 1 and 0 (1= worst, 0 = best). The closer to 1 the score, the greater both the number and percentage of the population in the MSOA that are estimated to have cancer, compared to other MSOAs. In other words, those are areas where it’s estimated a large number of people suffer from cancer, and where those people make up a large percentage of the population, indicating there is a real issue with cancer within the population and the investment of resources to address that issue could have the greatest benefits.LIMITATIONS1. GP data for the financial year 1st April 2018 – 31st March 2019 was used in preference to data for the financial year 1st April 2019 – 31st March 2020, as the onset of the COVID19 pandemic during the latter year could have affected the reporting of medical statistics by GPs. However, for 53 GPs (out of 7670) that did not submit data in 2018/19, data from 2019/20 was used instead. Note also that some GPs (997 out of 7670) did not submit data in either year. This dataset should be viewed in conjunction with the ‘Health and wellbeing statistics (GP-level, England): Missing data and potential outliers’ dataset, to determine areas where data from 2019/20 was used, where one or more GPs did not submit data in either year, or where there were large discrepancies between the 2018/19 and 2019/20 data (differences in statistics that were > mean +/- 1 St.Dev.), which suggests erroneous data in one of those years (it was not feasible for this study to investigate this further), and thus where data should be interpreted with caution. Note also that there are some rural areas (with little or no population) that do not officially fall into any GP catchment area (although this will not affect the results of this analysis if there are no people living in those areas).2. Although all of the obesity/inactivity-related illnesses listed can be caused or exacerbated by inactivity and obesity, it was not possible to distinguish from the data the cause of the illnesses in patients: obesity and inactivity are highly unlikely to be the cause of all cases of each illness. By combining the data with data relating to levels of obesity and inactivity in adults and children (see the ‘Levels of obesity, inactivity and associated illnesses: Summary (England)’ dataset), we can identify where obesity/inactivity could be a contributing factor, and where interventions to reduce obesity and increase activity could be most beneficial for the health of the local population.3. It was not feasible to incorporate ultra-fine-scale geographic distribution of populations that are registered with each GP practice or who live within each MSOA. Populations might be concentrated in certain areas of a GP practice’s catchment area or MSOA and relatively sparse in other areas. Therefore, the dataset should be used to identify general areas where there are high levels of cancer, rather than interpreting the boundaries between areas as ‘hard’ boundaries that mark definite divisions between areas with differing levels of cancer.TO BE VIEWED IN COMBINATION WITH:This dataset should be viewed alongside the following datasets, which highlight areas of missing data and potential outliers in the data:Health and wellbeing statistics (GP-level, England): Missing data and potential outliersLevels of obesity, inactivity and associated illnesses (England): Missing dataDOWNLOADING THIS DATATo access this data on your desktop GIS, download the ‘Levels of obesity, inactivity and associated illnesses: Summary (England)’ dataset.DATA SOURCESThis dataset was produced using:Quality and Outcomes Framework data: Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital.GP Catchment Outlines. Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital. Data was cleaned by Ribble Rivers Trust before use.MSOA boundaries: © Office for National Statistics licensed under the Open Government Licence v3.0. Contains OS data © Crown copyright and database right 2021.Population data: Mid-2019 (June 30) Population Estimates for Middle Layer Super Output Areas in England and Wales. © Office for National Statistics licensed under the Open Government Licence v3.0. © Crown Copyright 2020.COPYRIGHT NOTICEThe reproduction of this data must be accompanied by the following statement:© Ribble Rivers Trust 2021. Analysis carried out using data that is: Copyright © 2020, Health and Social Care Information Centre. The Health and Social Care Information Centre is a non-departmental body created by statute, also known as NHS Digital; © Office for National Statistics licensed under the Open Government Licence v3.0. Contains OS data © Crown copyright and database right 2021. © Crown Copyright 2020.CaBA HEALTH & WELLBEING EVIDENCE BASEThis dataset forms part of the wider CaBA Health and Wellbeing Evidence Base.

  13. Cancer in England

    • data.wu.ac.at
    html
    Updated Apr 25, 2014
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    Office for National Statistics (2014). Cancer in England [Dataset]. https://data.wu.ac.at/odso/data_gov_uk/ODNjYWFlMGEtY2Y5YS00MWI1LWJhZTEtZGM0MjE0MTk2ZTg5
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    htmlAvailable download formats
    Dataset updated
    Apr 25, 2014
    Dataset provided by
    Office for National Statisticshttp://www.ons.gov.uk/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    This presents information on incidence, mortality and survival from the most common cancers.

    Source agency: Office for National Statistics

    Designation: National Statistics

    Language: English

    Alternative title: Cancer in England

  14. Prostate cancer: the most common cancer in men in England

    • data.wu.ac.at
    • data.europa.eu
    html
    Updated Apr 26, 2014
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    Office for National Statistics (2014). Prostate cancer: the most common cancer in men in England [Dataset]. https://data.wu.ac.at/schema/data_gov_uk/ZjZhZGM2ZGUtMzM4NC00NDIzLWIyNzQtMDJiYzI3ZDBjYzg3
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    htmlAvailable download formats
    Dataset updated
    Apr 26, 2014
    Dataset provided by
    Office for National Statisticshttp://www.ons.gov.uk/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    This summary brings together information on prostate cancer incidence, mortality and survival.

    Source agency: Office for National Statistics

    Designation: National Statistics

    Language: English

    Alternative title: Prostate cancer: the most common cancer in men in England

  15. Adult Cancer Survival in England 2013 to 2017

    • johnsnowlabs.com
    csv
    Updated Jan 20, 2021
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    John Snow Labs (2021). Adult Cancer Survival in England 2013 to 2017 [Dataset]. https://www.johnsnowlabs.com/marketplace/adult-cancer-survival-in-england-2013-to-2017/
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    csvAvailable download formats
    Dataset updated
    Jan 20, 2021
    Dataset authored and provided by
    John Snow Labs
    Area covered
    United Kingdom, England
    Description

    This dataset includes information regarding Cancer survival in England where adults aged 15 to 99 were diagnosed between 2013 and 2017 and followed up to 2018. When the data for this report were extracted for analysis on 11 August 2019, cancer registrations in 2017 were believed to be at least 98% complete, and the vital status for each patient at 31 December 2017 was known for at least 99% of cancers registered between 2013 and 2017.

  16. Positive Likelihood Ratios (LR) for symptoms in Lung Cancer patients prior...

    • plos.figshare.com
    • datasetcatalog.nlm.nih.gov
    xls
    Updated Jun 1, 2023
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    Grace N. Okoli; Olga Kostopoulou; Brendan C. Delaney (2023). Positive Likelihood Ratios (LR) for symptoms in Lung Cancer patients prior to diagnosis. [Dataset]. http://doi.org/10.1371/journal.pone.0207686.t004
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    xlsAvailable download formats
    Dataset updated
    Jun 1, 2023
    Dataset provided by
    PLOShttp://plos.org/
    Authors
    Grace N. Okoli; Olga Kostopoulou; Brendan C. Delaney
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    Positive Likelihood Ratios (LR) for symptoms in Lung Cancer patients prior to diagnosis.

  17. d

    Cancer Services Profiles

    • digital.nhs.uk
    Updated Dec 6, 2022
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    (2022). Cancer Services Profiles [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cancer-services-profiles
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    Dataset updated
    Dec 6, 2022
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Description

    The interactive Cancer Services profile tool has been updated to include the latest financial year of data that are available, collated by the National Disease Registration Service (NDRS). For 28 indicators, the latest data is now available for the financial year 2021 to 2022; for the cancer incidence indicator the tool has been updated to include the 2020 to 2021 data.

  18. u

    CAM

    • datacatalogue.ukdataservice.ac.uk
    Updated Mar 10, 2021
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    Cancer Research UK (2021). CAM [Dataset]. http://doi.org/10.5255/UKDA-SN-8752-1
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    Dataset updated
    Mar 10, 2021
    Dataset provided by
    UK Data Servicehttps://ukdataservice.ac.uk/
    Authors
    Cancer Research UK
    Area covered
    United Kingdom
    Description
    The Cancer Awareness Measure (CAM) is a survey designed to assess public awareness of cancer warning signs/symptoms, cancer risk factors and barriers to help seeking. Data have been collected every two years from 2008 to 2017 from a representative face to face sample of the population of Great Britain via the Office of National Statistics (ONS) Opinions and Lifestyle Survey. Data have traditionally been collected via face-to-face in-home interviews. In 2017 a parallel run of data collection was undertaken to explore whether it would be possible to move data collection online. The results of this work revealed that samples collected via online and face to face methods were largely similar, with slight differences in participant characteristics, awareness of cancer signs and symptoms and barriers to help seeking. Based on this work, CAM data has been collected online from 2019 (see SN 8751).

    Patients with cancer in the UK tend to present with more advanced disease and have poorer survival rates than their European counterparts. One of the work streams set out in the National Awareness and Early Diagnosis Initiative (NAEDI), which was established under the Department of Health's Cancer Reform Strategy for improving cancer outcomes, has focused on developing a validated standardised measure for the general population, comprising a set of questions designed to reliably assess cancer awareness.

    The purpose of the Cancer Awareness Measure (CAM) is to facilitate accurate and sensitive surveillance of public awareness of cancer over time, identify information needs, and monitor the impact of campaigns promoting cancer awareness and early presentation. It helps to develop an in-depth understanding of current awareness, attitudes, beliefs and behaviours in relation to cancer.

    Further information about the CAM, including findings and guidance on the use of CAM, may be found on the Cancer Research UK Cancer Awareness Measures (CAMs) webpage.

  19. 2

    CAM

    • datacatalogue.ukdataservice.ac.uk
    Updated Feb 7, 2022
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    Cancer Research UK (2022). CAM [Dataset]. http://doi.org/10.5255/UKDA-SN-8892-1
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    Dataset updated
    Feb 7, 2022
    Dataset provided by
    UK Data Servicehttps://ukdataservice.ac.uk/
    Authors
    Cancer Research UK
    Area covered
    United Kingdom
    Description

    The Cancer Awareness Measure (CAM) was developed in 2007-8 to address the absence of a validated measure of general public awareness of cancer (Stubbings, S., Robb, K., Waller, J., Ramirez, A., Austoker, J., Macleod, U., Hion, S., and Wardle, J. (2009) 'Development of a measurement tool to assess public awareness of cancer', British Journal of Cancer, 101(2), S13-S17.).

    The survey includes measures of awareness of signs and symptoms of cancer, cancer risk factors, age-related risk, screening programmes and potential barriers to seeing the GP. Since then, Cancer Research UK (CRUK) has significantly revised and updated the survey, including a wider range of questions and collecting data online instead of face-to-face. The CAM was also previously known as the National Awareness and Early Diagnosis Initiative Cancer Awareness Measure (NAEDI-CAM).

    The Cancer Awareness Measure (CAM) is a survey designed to assess public awareness of cancer warning signs/symptoms, cancer risk factors and barriers to help seeking. Data have been collected every two years from 2008 from a representative face to face sample of the population of Great Britain via the Office of National Statistics (ONS) https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000043" style="background-color: rgb(255, 255, 255);">Opinions and Lifestyle Survey. The 2014 survey was conducted online using a GB representative sample (3,044 adults) from Trinity McQueen.

    Patients with cancer in the UK tend to present with more advanced disease and have poorer survival rates than their European counterparts. One of the work streams set out in the National Awareness and Early Diagnosis Initiative (NAEDI), which was established under the Department of Health's Cancer Reform Strategy for improving cancer outcomes, has focused on developing a validated standardised measure for the general population, comprising a set of questions designed to reliably assess cancer awareness.

    The purpose of the Cancer Awareness Measure (CAM) is to facilitate accurate and sensitive surveillance of public awareness of cancer over time, identify information needs, and monitor the impact of campaigns promoting cancer awareness and early presentation. It helps to develop an in-depth understanding of current awareness, attitudes, beliefs and behaviours in relation to cancer.

    Further information about the CAM may be found on the Cancer Research UK https://www.cancerresearchuk.org/health-professional/awareness-and-prevention/the-cancer-awareness-measures-cam#CAM_Use3">Cancer Awareness Measures (CAMs) webpage.

  20. c

    National Cancer Patient Experience Survey, 2011-2012

    • datacatalogue.cessda.eu
    Updated Nov 28, 2024
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    Department of Health (2024). National Cancer Patient Experience Survey, 2011-2012 [Dataset]. http://doi.org/10.5255/UKDA-SN-7134-1
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    Dataset updated
    Nov 28, 2024
    Dataset authored and provided by
    Department of Health
    Time period covered
    Jan 1, 2012 - May 1, 2012
    Area covered
    England
    Variables measured
    Individuals, National
    Measurement technique
    Three communications were despatched to patients: initial survey, and two reminders (to non-responders only)., Postal survey
    Description

    Abstract copyright UK Data Service and data collection copyright owner.

    The National Cancer Patient Experience Surveys (NCPES) began in 2010, after the 2007 'Cancer Reform Strategy' set out a commitment to establish a new survey programme. The NCPES is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients. It is designed to monitor national progress on cancer care and to help gather vital information on the Transforming Inpatient Care Programme, the National Cancer Survivorship Initiative and the National Cancer Equality Initiative. An Advisory Group was set up for the NCPES with the National Cancer Director, professionals, voluntary sector representatives, academics and patient survey experts. The Group agreed on the following guiding principles and objectives:
    • a standard national survey tool was to be used
    • surveys would be conducted at Trust level and identify cancer groups
    • the survey would cover all cancers and include the whole care pathway
    • the survey should use the word 'cancer' unlike the 2000 and 2004 surveys
    • the survey focus would be on patients (rather than carers)
    • the data would be used for benchmarking performance across Trusts and by cancer groups where numbers allow
    • the data would be used to inform national and local policy
    • the data would be made publicly available whilst observing patient data protection requirements and maintaining confidentiality.
    The survey is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients.

    The NCPES has been replicated in Wales (see SN 7510), Northern Ireland, the Isle of Man, parts of Australia, and the Middle East. Further information can be found on the Quality Health Limited National Cancer Patient Experience Survey webpage and the NHS England Cancer Patient Experience Survey webpage.

    2010-2015 surveys temporarily withdrawn
    The data for the 2010-2014 surveys were temporarily withdrawn at the request of the depositor in October 2015. The 2015 data (SN 8163 and the Special Licence version, SN 8164) were temporarily withdrawn at the request of the depositor in February 2020.


    The 2011-2012 survey included all adult patients who were treated for cancer between 1 September and 30 November 2011 in NHS Trusts across England. Patients were placed into one of 13 cancer groups using their ICD10 code (cancer diagnosis code). The survey covered both inpatients and day case patients.


    Main Topics:
    The data cover different stages of the patients' 'cancer journey', from diagnosis to outpatient treatment:
    • initial GP visits before diagnosis (how many appointments, time period)
    • diagnostic tests (understanding of these)
    • how patients were told about the cancer diagnosis (understanding, sensitivity, written information)
    • decisions on treatment (understanding, side effects explained, involvement in decision making, written information)
    • whether patients were given a named key worker (Cancer Nurse Specialist provision and experience of them)
    • support measures patients were informed about (information on support groups, financial help, free prescriptions)
    • hospital doctors (understanding, confidence and trust in them, knowledge of patient case)
    • ward nurses (understanding, confidence, availability)
    • overall hospital care and treatment (information provision, privacy, knowledge of case, pain control, dignity and respect)
    • information provided before going home (written information and understanding, information on care at home and health or social services provision)
    • day patient experience (radiotherapy, chemotherapy, side effects, pain control, emotional support, appointment delay, time with doctor, doctor notes and case understanding)
    • wider care experience (hospital and community staff working together, information transfer)
    • demographic data
    • information provided by the participating Trusts such as date of discharge, diagnosis etc.
    Standard Measures: Positive scoring methodology was used to create individual question scores. The National Report used analysis of IMD deciles based on patients' postcodes provided as part of the dataset by individual NHS...

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(2022). Cancer Registration Statistics, England 2020 [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cancer-registration-statistics

Cancer Registration Statistics, England 2020

Cancer registrations statistics, England

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42 scholarly articles cite this dataset (View in Google Scholar)
Dataset updated
Oct 20, 2022
License

https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

Area covered
England
Description

This publication reports on newly diagnosed cancers registered in England in addition to cancer deaths registered in England during 2020. It includes this summary report showing key findings, spreadsheet tables with more detailed estimates, and a methodology document.

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