In 2021, a significant part of the United State´s population were unpaid family caregivers. That year, 15.9 percent of Mississippi residents were unpaid caregivers, the highest share in the country and closely followed by West Virginia. On the other hand, only eight percent of North Dakota residents provided free care for their relatives in 2021.

In 2021, there were 38 million family caregivers across the United States. That year, California registered the country's highest number of family caregivers, followed by Texas, Florida, and New York. On the other hand, with an estimated 58,000 people, Wyoming registered the lowest number of family caregivers in the U.S. in 2021.

In the United States, among the surveyed workers who were also unpaid caregivers, the majority tended to care for their mother or mother-in-law, accounting for 40 percent of caregivers. Following that, those who provided care for their father or father-in-law accounted for 19 percent of caregivers.

The Older Persons and Informal Caregivers Survey - Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and well-being of older persons and informal caregivers and their care use across the Netherlands. The database was developed at the start of The National Care for the Elderly Programme (‘Nationaal Programma Ouderenzorg’ - NPO) on behalf of the Organisation of Health Research and Development (ZonMw - The Netherlands), in part to ensure uniform collection of outcome measures, thus promoting comparability between studies.
Between 2008 en 2016, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset with cross-sectional and (partly) longitudinal data of >43,000 older persons and >9,000 informal caregivers. Out of these numbers, a number of 7,600 concerns care receiver - caregiver dyads of whom information on both the care receiver and caregiver is available.
The 'TOPICS-MDS NPO caregiver’ dataset contains no care receiver (older person) data, only informal caregiver data.

Data from a caregiver burden study of rural caregivers of older people with physical disabilities.

BackgroundOver the past two decades, the focus of mental health care has shifted from institutionalisation to community-based programs and short hospital stays. This change means that there is an increased role for caregivers, mostly family members, in managing persons with mental illness. Although there is evidence to support the benefits of deinstitutionalisation of mental health care, there are also indications of substantial burden experienced by caregivers; the evidence of which is limited in sub-Saharan Africa. However, knowledge of the nature and extent of this burden can inform the planning of mental health services that will not only benefit patients, but also caregivers and households.ObjectiveTo systematically review the available evidence on the economic burden of severe mental illness on primary family caregivers in sub-Saharan Africa.MethodsA comprehensive search was conducted in Pubmed, CINAHL, Econlit and Web of Science with no date limitations up to September 2016 using keywords such as "burden", "cost of illness" and "economic burden" to identify relevant published literature. Articles were appraised using a standardised data extraction tool covering themes such as physical, psychological and socioeconomic burden.ResultsSeven papers were included in the review. Caregivers were mostly family members with a mean age of 46.34, female and unemployed. Five out of seven studies (71%) estimated the full economic burden of severe mental illness on caregivers. The remainder of studies just described the caregiver burden. All seven papers reported moderate to severe caregiver burden characterised by financial constraint, productivity loss and lost employment. The caregiver’s level of income and employment status, severity of patient's condition and duration of mental illness were reported to negatively affect the economic burden experienced by caregivers.ConclusionThere is paucity of studies reporting the burden of severe mental illness on caregivers in sub-Saharan Africa. Further research is needed to present the nature and extent of this burden to inform service planning and policymaking.

Descriptive statistics for caregivers’ demographic characteristics and measures.

The national general nursing home nursing staff and care service personnel statistics form, the main columns: county/city, total, male and female total, nursing staff (male and female 2140, 4160, 6170) total, care service personnel (male and female) total.

The transition to parenthood can be challenging, with consequences to mental health and wellbeing for many first-time parents. While parents are often well-supported to care for their children, there are minimal supports available to care for themselves. Therefore, in this focus group study, we explored caregiver and service provider perspectives on what is necessary, feasible, and acceptable from a program designed to support caregivers' self-care and wellbeing from conception to 12 months post birth? We conducted a total of five focus groups with 34 participants.

As of September 2020, around 75 percent of caregivers in the United States reported the person they care for has used some form of telehealth during the COVID-19 pandemic. This statistic illustrates the percentage of caregivers in the U.S. who reported the person they cared for had used the following during the COVID-19 pandemic, as of September 2020.

Abbreviations: MMSE, Mini Mental Status Examination; DAD-ADLs, Activity of Daily Living Subscale of Disability Assessment in Dementia; DAD-ADLs, Instrumental Activities of Daily Living Subscale of Disability Assessment in Dementia; RMBPC, Revised Memory and Behaviour Problems Checklist; MOS-SSS, Medical Outcome Study Social Support Survey; SEQCFC, Self-Efficacy Questionnaire for Chinese Family Caregivers; MCS, Mental Component Summary score (MCS) of the Medical Outcome Study (MOS) Short-Form (SF-36) Health Survey.

The Older Persons and Informal Caregivers Survey - Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and well-being of older persons and informal caregivers and their care use across the Netherlands. The database was developed at the start of The National Care for the Elderly Programme (‘Nationaal Programma Ouderenzorg’ - NPO) on behalf of the Organisation of Health Research and Development (ZonMw - The Netherlands), in part to ensure uniform collection of outcome measures, thus promoting comparability between studies.Since September 2014, TOPICS-MDS data are also collected within the ZonMw funded ‘Memorabel’ programme, that is specifically aimed at improving the quality of life for people with dementia and the care and support provided to them. In Memorabel round 1 through 4, 11 different research projects have collected TOPICS-MDS data, which has resulted in a pooled database with cross-sectional and (partly) longitudinal data of 1,400 older persons with early onset or advanced dementia and about 950 informal caregivers. Out of these numbers, a number of 919 concerns care receiver - caregiver dyads of whom information on both the care receiver and caregiver is available.More background information on both NPO and Memorabel 1-4 can be found in the overall information on TOPICS-MDS under the tab ‘Data files’ in DANS EASY (doi.org/10.17026/dans-xvh-dbbf).The 'TOPICS-MDS Memorabel 1-4 care receiver' dataset, as part of the Memorabel 1-4 database, contains no informal caregiver data, only care receiver (older person) data. The dataset includes data on age, gender, country of birth, level of education, marital status and living situation of the care receiver, as well as data on physical and emotional health and well-being, quality of life, daily functioning and use of care, such as GP visits, home care, day care/treatment and admittance in a hospital, home for the aged or nursing home.Although the TOPICS-MDS survey instrument for the care receiver was updated in 2017, the same initial version of the instrument was used in both NPO and Memorabel 1-4 projects. The TOPICS-MDS care receiver data from NPO and Memorabel 1-4 can therefore be easily merged.

In 2023, there were approximately 11.46 million Alzheimer or other dementia unpaid caregivers in the United States. These caregivers provided a total of 18.4 billion hours of care which equates to roughly 347 billion U.S. dollars in value. The value to unpaid care given by Alzheimer/dementia caregivers has been increasing through the years.

Data set from six research sites that examined the feasibility and outcomes of the most promising home and community-based intervention approaches for enhancing family caregiving for Alzheimers Disease (AD) and related disorders (ADRD). A unique feature is the examination of AD burdens and interventions in three ethnic groups (Caucasians, Hispanics, and African Americans). Caregiver/care recipient dyads are entered into the study using standardized eligibility criteria. The dyads are randomized at each intervention site using site-specific procedures. Standardized assessment batteries are administered at baseline, 6, 12, and 18 months. The five general types of REACH interventions are: Individual Information and Support strategies that increase caregivers' understanding of dementia and their particular caregiving situation; Group Support and Family Systems efforts that provide caregivers with multiple forms of social support; Psychoeducational and Skill-Based Training approaches that teach caregivers coping and behavioral management strategies; Home-Based Environmental interventions that modify the home environment's effect on the care recipient and support the caregiver; and Enhanced Technology Systems such as home-centered computer/telephone networks that are designed to reduce caregiver distress and isolation. REACH II was funded in 2001 to test a single multi-component intervention among family caregivers of persons with ADRD, building upon the findings of REACH. Recruitment for REACH II was completed in January 2004 with 642 participants entering the study across 5 participating sites.

Background: Caregivers play a central role in post-stroke patients care. However, the role of and problems managed by caregivers have not been widely studied, particularly in Indonesia. This study aims to explore the roles and problems of caregivers in post- stroke patients’ care.

Method: This was a qualitative study. Caregivers of post-stroke patients from the homecare clinic of Dr Sardjito General Hospital were purposely selected during January 2017 to June 2018. Focus group discussions were conducted to explore the roles and problems of caregiving.

Results: Themes related to caregivers’ roles were: connecting patients with medical personnel and other family members, maintaining patients’ health conditions by fulfilling basic needs and assisting rehabilitation, as well as maintaining patients’ psychological conditions by encouraging conversation, telling jokes, or recreation. On the other hand, themes related to caregivers’ problems were: lack of knowledge caused by education inadequacy, underappreciated and unconcerned family, suboptimal service including limited physiotherapy and pharmacy resource, and unthorough administration, lack of communication, physical limitations and burnout, as well as uncooperative patients.

Conclusions: Caregivers play essential roles as communicators and help to maintain patient's health conditions. Common problems are related to a lack of knowledge about strokes and a lack of attention from family. Understanding the roles and problems of caregivers may help facilitate better management and increase the quality of life for both patients and their caregivers.

Financial overview and grant giving statistics of Family Caregiver Foundation Inc

The GERAS Study-US was a prospective, multicenter, observational study that aimed to assess societal costs and resource use associated with AD among patients and their primary caregivers across 76 sites in the United States. Data includes demographics/clinical characteristics; current medication; patient cognitive, functional, and behavioral assessments; patient and caregiver health-related quality of life; and patient and caregiver resource use. The data are available via the ADDI AD Workbench.

Population providing care to a family member or friend with a long-term illness, disability or aging needs, by sex and main activity of caregiver

Financial overview and grant giving statistics of Caregivers Support Network

Analysis of ‘Department for the Aging (DFTA) Caregiver Resources Contracted Providers’ provided by Analyst-2 (analyst-2.ai), based on source dataset retrieved from https://catalog.data.gov/dataset/b1e17564-7323-4ebf-ad05-82983fb9af9f on 27 January 2022.

--- Dataset description provided by original source is as follows ---

Listing of DFTA Caregivers Contracts Information and Hours of Operation.

--- Original source retains full ownership of the source dataset ---