68 datasets found
  1. Data Security and Protection Toolkit

    • standards.nhs.uk
    Updated May 12, 2025
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    NHS England (2025). Data Security and Protection Toolkit [Dataset]. https://standards.nhs.uk/published-standards/data-security-and-protection-toolkit
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    Dataset updated
    May 12, 2025
    Dataset provided by
    National Health Servicehttps://www.nhs.uk/
    Authors
    NHS England
    Description

    The Data Security and Protection (DSP) Toolkit is an online tool that enables relevant organisations to measure their performance against the data security and information governance requirements mandated by the Department of Health and Social Care.

  2. Confidence in the NHS to protect patient data in Great Britain 2018

    • statista.com
    Updated Jun 6, 2016
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    Conor Stewart (2016). Confidence in the NHS to protect patient data in Great Britain 2018 [Dataset]. https://www.statista.com/study/30294/digital-health-industry-in-the-united-kingdom-statista-dossier/
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    Dataset updated
    Jun 6, 2016
    Dataset provided by
    Statistahttp://statista.com/
    Authors
    Conor Stewart
    Area covered
    United Kingdom
    Description

    This statistic displays the result of a survey asking British individuals how confident they are in the ability of the National Health Service to protect patient data as of 2018. According to the results, 60 percent of respondents were fairly confident that the NHS can protect their patient data, while only three percent of individuals were not at all confident.

  3. Spend over £500 in The NHS Information Centre

    • data.wu.ac.at
    • data.europa.eu
    csv
    Updated Jan 8, 2016
    + more versions
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    NHS Digital (2016). Spend over £500 in The NHS Information Centre [Dataset]. https://data.wu.ac.at/odso/data_gov_uk/YzM2YmI1ZWItNzE1MC00MGY4LTg4OGYtMTdhMDNkZTQwY2Mw
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    csvAvailable download formats
    Dataset updated
    Jan 8, 2016
    Dataset provided by
    National Health Servicehttps://www.nhs.uk/
    NHS Digitalhttps://digital.nhs.uk/
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    The Government is committed to increasing transparency across Whitehall and local Authorities. The first step for central Government departments is to publish on-line items of spend over £25,000 from April 2010 onwards.

    However at The NHS Information Centre we believe that we should start to release as much information as soon as possible and we will publish details of all of our invoices paid which total over £500. The information will be published on a monthly basis by the 15th working day.

    Publication of these lists forms part of The NHS Information Centre's commitment to be open and transparent with the wider public. For data protection reasons, where payments have been made to individuals, the names have been replaced with the word 'Redacted'.

  4. FOI-01981 - Datasets - Open Data Portal

    • opendata.nhsbsa.net
    Updated Jun 28, 2024
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    nhsbsa.net (2024). FOI-01981 - Datasets - Open Data Portal [Dataset]. https://opendata.nhsbsa.net/dataset/foi-01981
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    Dataset updated
    Jun 28, 2024
    Dataset provided by
    NHS Business Services Authority
    Description

    Redactions have been applied where information is exempt under section 40(2) of the Freedom of Information Act (FOIA) which is about personal information. Section 40(2) is an absolute, prejudice-based exemption and therefore is exempt if disclosure would contravene any of the data protection principles. In order for disclosure to comply with the lawfulness, fairness, and transparency principle (the first data protection principle), we either need the consent of the data subject(s) or there must be a legitimate interest in disclosure. In addition, the disclosure must be necessary to meet the legitimate interest and finally, the disclosure must not cause unwarranted harm. As we do not have the consent of the data subjects, the NHSBSA is therefore required to conduct a balancing exercise between legitimate interest of the applicant in disclosure against the rights and freedoms of the data subject(s). The NHSBSA acknowledges that you have a legitimate interest in disclosure of the information in order to provide the full picture of the requested information held by the NHSBSA. However, the NHSBSA considers that release of the information would breach the first data protection principle as: a) It is not fair to disclose these people’s personal details to the world and is likely to cause damage or distress to individuals b) These details are not of sufficient interest to the public to warrant an intrusion into the privacy of those individuals. We have therefore concluded that disclosure of the requested information would cause unwarranted harm and section 40(2) is engaged. Please see the following link to view the section 40 exemption in full - https://www.legislation.gov.uk/ukpga/2000/36/section/40 Publishing this response Please note that this information will be published on our Freedom of Information (FOI) disclosure log at: https://opendata.nhsbsa.net/dataset/foi-01981 Your personal details will be removed from the published response.

  5. Weekly Statistics for NHS Test and Trace (England): 31 March to 6 April 2022...

    • gov.uk
    • s3.amazonaws.com
    Updated Sep 1, 2023
    + more versions
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    UK Health Security Agency (2023). Weekly Statistics for NHS Test and Trace (England): 31 March to 6 April 2022 [Dataset]. https://www.gov.uk/government/publications/weekly-statistics-for-nhs-test-and-trace-england-31-march-to-6-april-2022
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    Dataset updated
    Sep 1, 2023
    Dataset provided by
    GOV.UKhttp://gov.uk/
    Authors
    UK Health Security Agency
    Area covered
    England
    Description

    The data reflects the NHS Test and Trace operation in England since its launch on 28 May 2020.

    This includes 2 weekly reports:

    1. NHS Test and Trace statistics:

    • people tested for coronavirus (COVID-19)
    • people testing positive for COVID-19
    • time taken for test results to become available
    • people transferred to the contact tracing system and the time taken for them to be reached
    • close contacts identified for cases managed and not managed by local health protection teams (HPTs), and time taken for them to be reached

    2. Rapid asymptomatic testing statistics: number of lateral flow device (LFD) tests reported by test result.

    There are 4 sets of data tables accompanying the reports.

    For transparency, we’ve added LFD dispatches data outside of the original reported timeframe, up to and including June 2023.

  6. FOI-01853 - Datasets - Open Data Portal

    • opendata.nhsbsa.net
    Updated May 3, 2024
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    nhsbsa.net (2024). FOI-01853 - Datasets - Open Data Portal [Dataset]. https://opendata.nhsbsa.net/dataset/foi-01853
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    Dataset updated
    May 3, 2024
    Dataset provided by
    NHS Business Services Authority
    Description

    Under the Freedom of Information Act 2000, I request the following information: The number of individuals of all ages who were prescribed contraceptives in the financial years 2019-2020, 2021-2020, 2020-2021, 2021-2022 and 2022-2023 in community settings (GP surgeries and pharmacies) broken down by contraceptive method. I would also like the proportion these represent of contraception users. For example, X proportion of those on contraception are using the Mirena coil. If possible, I would also appreciate if this were broken down by age of those prescriptions too. To clarify, I mean patients. I also mean both contraceptive drugs and appliances/devices Response A copy of the information is attached. Please read the following information to ensure correct understanding of the data. Fewer than five Please be aware that I have decided not to release the full details where the total number of individuals falls below five. This is because the individuals could be identified, when combined with other information that may be in the public domain or reasonably available. This information falls under the exemption in section 40 subsections 2 and 3 (a) of the Freedom of Information Act (FOIA). This is because it would breach the first data protection principle as: a - It is not fair to disclose individual’s personal details to the world and is likely to cause damage or distress. b - These details are not of sufficient interest to the public to warrant an intrusion into the privacy of the individual. Please click the weblink to see the exemption in full: www.legislation.gov.uk/ukpga/2000/36/section/40 NHS Business Services Authority (NHSBSA) - NHS Prescription Services process prescriptions for Pharmacy Contractors, Appliance Contractors, Dispensing Doctors, and Personal Administration with information then used to make payments to pharmacists and appliance contractors in England for prescriptions dispensed in primary care settings (other arrangements are in place for making payments to Dispensing Doctors and Personal Administration). This involves processing over one billion prescription items and payments totalling over £9 billion each year. The information gathered from this process is then used to provide information on costs and trends in prescribing in England and Wales to over 25,000 registered NHS and Department of Health and Social Care (DHSC) users. Data Source: ePACT2 - Data in ePACT2 is sourced from the NHSBSA Data Warehouse and is derived from products prescribed on prescriptions and dispensed in the Community. The data captured from prescription processing is used to calculate reimbursement and remuneration. It includes items prescribed in England, Wales, Scotland, Northern Ireland, Guernsey/Alderney, Jersey, and Isle of Man which have been dispensed in the community in England. English prescribing that has been dispensed in Wales, Scotland, Guernsey/Alderney, Jersey, and Isle of Man is also included. The data excludes: • Items not dispensed, disallowed and those returned to the contractor for further clarification. • Prescriptions prescribed and dispensed in prisons, hospitals, and private prescriptions. • Items prescribed but not presented for dispensing or not submitted to NHS Prescription Services by the dispenser. Dataset - The data is limited to presentations prescribed in BNF sections 0703 Contraceptives and BNF section 2104 Contraceptive Devices. Data is presented at BNF Sub Paragraph and BNF Presentation level. Time Period - Financial years 2019/20, 2020/21, 2021/22, 2022/23 and 2023/24 (April 2023 - January 2024). Data is currently available up to and including January 2024. Organisation Data - The data is for prescribing in England regardless of where dispensed in the community. British National Formulary (BNF) Sub Paragraph and Presentation Code – The BNF Code is a 15-digit code in which the first seven digits are allocated according to the categories in the BNF, and the last eight digits represent the medicinal product, form, strength and the link to the generic equivalent product. NHS Prescription Services has created pseudo BNF chapters, which are not published, for items not included in BNF chapters 1 to 15. Most of such items are dressings and appliances which NHS Prescription Services has classified into four pseudo BNF chapters (20 to 23). Patient Identification - Where patient identifiable figures have been reported they are based on the information captured during the prescription processing activities. Please note, patient details cannot be captured from every prescription form and based on the criteria used for this analysis, patient information (NHS number) was only available for 98.28% of prescription items. The unique patient count figures are based on a distinct count of NHS number as captured from the prescription image. Patient ages are based on the age as captured from the prescription image and relates to the patient's age at the time of prescribing/dispensing. Please note it is possible that a single patient may be included in the results for more than one age band where a patient has received prescribing at different ages during a financial year. The figures for the number of identifiable patients should not be combined and reported at any other level than provided as this may result in the double counting of patients. For example, a single patient could appear in the results for multiple presentations or both financial years. Patient Age - Shows the age of the patient, if recorded. Data Quality for patient age - NHSBSA stores information on the age of the recipient of each prescription as it was read by computer from images of paper prescriptions or as attached to messages sent through the electronic prescription system. The NHSBSA does not validate, verify or manually check the resulting information as part of the routine prescription processing. There are some data quality issues with the ages of patients prescribed the products. The NHSBSA holds prescription images for 18 months. A sample of the data was compared to the images of the paper prescription forms from which the data was generated where these images are still available. These checks revealed issues in the reliability of age data, in particular the quality of the stored age data was poor for patients recorded as aged two years and under. When considering the accuracy of age data, it is expected that a small number of prescriptions may be allocated against any given patient age incorrectly. Application of Disclosure Control to information services (prescriptions) products- ePACT 2 data is not published statistics - it is available to authorised NHS users who are subject to Caldicott Guardian approval. We have no plans to apply disclosure control to data released to ePACT 2 users. These users are under an obligation to protect the anonymity of any patients when reusing this data or releasing derived information publicly. All requests that fall under the FOI process are subject to the NHSBSA Anonymisation and Pseudonymisation Standard. The application of the techniques described in the standard is judged on a case-by-case basis (by NHSBSA Information Governance) in respect of what techniques should be applied. The ICO typically rules on a case-by-case basis too so each case or challenge or appeal is judged on its own merits. FOI rules apply to data that we hold as part of our normal course of business.

  7. NHS Lincolnshire East Transactions over £25,000

    • data.europa.eu
    • data.wu.ac.at
    csv
    Updated Oct 15, 2020
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    NHS Lincolnshire East CCG (2020). NHS Lincolnshire East Transactions over £25,000 [Dataset]. https://data.europa.eu/data/datasets/transactions-over-25-000
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    csvAvailable download formats
    Dataset updated
    Oct 15, 2020
    Dataset provided by
    National Health Servicehttps://www.nhs.uk/
    Authors
    NHS Lincolnshire East CCG
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Area covered
    Lincolnshire
    Description

    As part of the governments commitment to improve the transparency of how public funds are used, we are required to publish details of all individual invoices, grant payments, expense paymentsor other such transactions that are over £25,000. Credit notes greater than £25,000 are also included.

    Transactions are not published if to do so would compromise personal security or contravene the law (e.g. the Data Protection Act).

  8. FOI-02334

    • opendata.nhsbsa.net
    Updated Nov 21, 2024
    + more versions
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    nhsbsa.net (2024). FOI-02334 [Dataset]. https://opendata.nhsbsa.net/dataset/foi-02334
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    Dataset updated
    Nov 21, 2024
    Dataset provided by
    NHS Business Services Authority
    Description

    This is because it would breach the first data protection principle as: it is not fair to disclose claimant personal details to the world and is likely to cause damage or distress. these details are not of sufficient interest to the public to warrant an intrusion into the privacy of the claimant. Please click the below web link to see the exemption in full.

  9. NHS Lincolnshire West CCG Transactions over £25,000

    • data.europa.eu
    • cloud.csiss.gmu.edu
    • +1more
    csv, unknown
    Updated Sep 11, 2010
    + more versions
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    NHS Lincolnshire West CCG (2010). NHS Lincolnshire West CCG Transactions over £25,000 [Dataset]. https://data.europa.eu/data/datasets/nhs-lincolnshire-west-ccg-transactions-over-25-000
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    csv, unknownAvailable download formats
    Dataset updated
    Sep 11, 2010
    Dataset provided by
    National Health Servicehttps://www.nhs.uk/
    Authors
    NHS Lincolnshire West CCG
    License

    Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
    License information was derived automatically

    Description

    As part of the governments commitment to improve the transparency of how public funds are used, we are required to publish details of all indiviudal invoices, grant payments, expense payments or other such transactions that are over £25,000. Credit notes greater than £25,000 are also included.

    Transactions are not published if to do so would compromise personal security or contravene the law (e.g. the Data Protection Act).

  10. d

    Cervical Screening (Annual)

    • digital.nhs.uk
    pdf, xlsx, zip
    Updated Nov 7, 2017
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    (2017). Cervical Screening (Annual) [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/cervical-screening-annual
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    pdf(284.2 kB), pdf(292.2 kB), zip(388.0 kB), pdf(663.7 kB), xlsx(542.6 kB), zip(49.2 kB), pdf(217.4 kB), pdf(317.1 kB)Available download formats
    Dataset updated
    Nov 7, 2017
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Time period covered
    Apr 1, 2016 - Mar 31, 2017
    Area covered
    England
    Description

    Update 19 July 2019: NHS Digital have been made aware of errors or omissions in the CSV files relating to Table 1, Table 1 (coverage) and Table 18. This data has now been replaced. Please note, the original data contained within the Excel data tables file was correct. Only the csv files mentioned were incorrect. This report presents information about the NHS Cervical Screening Programme in England in 2016-17 and includes data on the call and recall system, on screening samples examined by pathology laboratories and on referrals to colposcopy clinics.

  11. Weekly Statistics for NHS Test and Trace (England): 3 to 9 March 2022

    • gov.uk
    • s3.amazonaws.com
    Updated Mar 31, 2022
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    UK Health Security Agency (2022). Weekly Statistics for NHS Test and Trace (England): 3 to 9 March 2022 [Dataset]. https://www.gov.uk/government/publications/weekly-statistics-for-nhs-test-and-trace-england-3-to-9-march-2022
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    Dataset updated
    Mar 31, 2022
    Dataset provided by
    GOV.UKhttp://gov.uk/
    Authors
    UK Health Security Agency
    Area covered
    England
    Description

    On 21 February 2022 the Prime Minister set out a new plan for ‘Living with COVID-19’ with the end of free universal testing for the general public on 1 April 2022. As a result the frequency of this publication and accompanying data tables will reduce from weekly publications to 2-weekly publications of weekly data from 14 April 2022 (period covering 31 March 2022 to 6 April 2022). Furthermore, it is anticipated that the changes in testing policy will result in a noticeably smaller publication, with a reduction in data output tables. Details of affected data output tables will be communicated on 31 March 2022.

    The data reflects the NHS Test and Trace operation in England since its launch on 28 May 2020.

    This includes 2 weekly reports:

    1. NHS Test and Trace statistics:

    • people tested for coronavirus (COVID-19)
    • people testing positive for COVID-19
    • time taken for test results to become available
    • people transferred to the contact tracing system and the time taken for them to be reached
    • close contacts identified for cases managed and not managed by local health protection teams (HPTs), and time taken for them to be reached

    2. Rapid asymptomatic testing statistics: number of lateral flow device (LFD) tests reported by test result.

    There are 4 sets of data tables accompanying the reports.

  12. d

    Quality and Outcomes Framework

    • digital.nhs.uk
    Updated Aug 29, 2024
    + more versions
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    (2024). Quality and Outcomes Framework [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/quality-and-outcomes-framework-achievement-prevalence-and-exceptions-data
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    Dataset updated
    Aug 29, 2024
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Time period covered
    Apr 1, 2023 - Mar 31, 2024
    Description

    The objective of the Quality and Outcomes Framework (QOF) is to improve the care patients are given by rewarding practices for the quality of care they provide to their patients, based on several indicators across a range of key areas of clinical care and public health. This publication provides data for the reporting year 1 April 2023 to 31 March 2024 and covers all General Practices in England that participated in QOF in 2023-24. Payment protection has been reintroduced in 2023-24 for some indicators. More information on payment protection can be found in the ‘Technical Annex’ which forms part of this publication and QOF guidance found under 'Related Links'. GP practices have been mapped to their respective PCNs, Sub ICB Locations, ICBs and Regions using reference data current on 1 April 2024. This mapping has been applied to data for both the current and previous reporting year.

  13. f

    Additional file 2: of Unaddressed privacy risks in accredited health and...

    • springernature.figshare.com
    xlsx
    Updated May 31, 2023
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    Kit Huckvale; JosĂŠ Prieto; Myra Tilney; Pierre-Jean Benghozi; Josip Car (2023). Additional file 2: of Unaddressed privacy risks in accredited health and wellness apps: a cross-sectional systematic assessment [Dataset]. http://doi.org/10.6084/m9.figshare.c.3631904_D2.v1
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    xlsxAvailable download formats
    Dataset updated
    May 31, 2023
    Dataset provided by
    figshare
    Authors
    Kit Huckvale; JosĂŠ Prieto; Myra Tilney; Pierre-Jean Benghozi; Josip Car
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    NHS health apps and privacy: dataset. (XLSX 1569Â kb)

  14. FOI-02086 - Datasets - Open Data Portal

    • opendata.nhsbsa.net
    Updated Aug 6, 2024
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    nhsbsa.net (2024). FOI-02086 - Datasets - Open Data Portal [Dataset]. https://opendata.nhsbsa.net/dataset/foi-02086
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    Dataset updated
    Aug 6, 2024
    Dataset provided by
    NHS Business Services Authority
    Description

    Please be aware that I have decided not to release the exact number of patients, where the number is fewer than 5. This is because the patients could be identified when combined with other information that may be in the public domain or reasonably available. This information falls under the exemption in section 40 subsections 2 and 3A (a) of the Freedom of Information Act. This is because it would breach the first data protection principle as: a. it is not fair to disclose patient personal details to the world and is likely to cause damage or distress. b. these details are not of sufficient interest to the public to warrant an intrusion into the privacy of the claimant. Please click the web link below to see the exemption in full. https://www.legislation.gov.uk/ukpga/2000/36/section/40

  15. Weekly Statistics for NHS Test and Trace (England): 17 to 23 February to...

    • s3.amazonaws.com
    Updated Mar 3, 2022
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    UK Health Security Agency (2022). Weekly Statistics for NHS Test and Trace (England): 17 to 23 February to 2022 [Dataset]. https://s3.amazonaws.com/thegovernmentsays-files/content/179/1791653.html
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    Dataset updated
    Mar 3, 2022
    Dataset provided by
    GOV.UKhttp://gov.uk/
    Authors
    UK Health Security Agency
    Description

    The data reflects the NHS Test and Trace operation in England since its launch on 28 May 2020.

    This includes 2 weekly reports:

    1. NHS Test and Trace statistics:

    • people tested for coronavirus (COVID-19)
    • people testing positive for COVID-19
    • time taken for test results to become available
    • people transferred to the contact tracing system and the time taken for them to be reached
    • close contacts identified for cases managed and not managed by local health protection teams (HPTs), and time taken for them to be reached

    2. Rapid asymptomatic testing statistics: number of lateral flow device (LFD) tests conducted by test result.

    There are 4 sets of data tables accompanying the reports.

  16. e

    National Cancer Patient Experience Survey, 2016: Special Licence Access -...

    • b2find.eudat.eu
    Updated Oct 21, 2023
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    (2023). National Cancer Patient Experience Survey, 2016: Special Licence Access - Dataset - B2FIND [Dataset]. https://b2find.eudat.eu/dataset/aecba927-fca0-533d-8b00-559bd2e9de6b
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    Dataset updated
    Oct 21, 2023
    Description

    Abstract copyright UK Data Service and data collection copyright owner.The National Cancer Patient Experience Surveys (NCPES) began in 2010, after the 2007 'Cancer Reform Strategy' set out a commitment to establish a new survey programme. The NCPES is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition specific charities to improve services for patients. It is designed to monitor national progress on cancer care and to help gather vital information on the Transforming Inpatient Care Programme, the National Cancer Survivorship Initiative and the National Cancer Equality Initiative. An Advisory Group was set up for the NCPES with the National Cancer Director, professionals, voluntary sector representatives, academics and patient survey experts. The Group agreed on the following guiding principles and objectives:a standard national survey tool was to be usedsurveys would be conducted at Trust level and identify cancer groupsthe survey would cover all cancers and include the whole care pathwaythe survey should use the word 'cancer' unlike the 2000 and 2004 surveysthe survey focus would be on patients (rather than carers)the data would be used for benchmarking performance across Trusts and by cancer groups where numbers allowthe data would be used to inform national and local policythe data would be made publicly available whilst observing patient data protection requirements and maintaining confidentiality.The survey is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition-specific charities to improve services for patients. The NCPES has been replicated in Wales (see SN 7510), Northern Ireland, the Isle of Man, parts of Australia, and the Middle East. Further information can be found on the NHS England Cancer Patient Experience Survey webpage.2010-2014 data unavailable:The 2010-2014 NCPES End User Licence data were temporarily withdrawn at the depositor's request in October 2015; only the 2015 survey (SN 8163) is currently available. In addition, there is no Special Licence version of the 2010-2014 data; 2015 is the first year in the series for which both versions are held. 2016 survey:The purposes of the National Cancer Patient Experience Survey, 2016 (NCPES/CPES) were: to secure continuous improvement by building on the results of the 2015 survey and to enable local providers to assess their performance improvement with other providers; to enable commissioners to assess local improvements in cancer patient experience via locally agreed Commissioning for Quality and Innovation (CQUIN) schemes; to provide NHS England with an up to date overview of cancer patient experience across England; to provide NHS Improving Quality with data on each participating trust and the areas on which quality improvement needs to be focused; and to enable patients to make informed choices about where to go for cancer treatment via publishing the provider level analysis on publicly available websites.The 2016 data is based on the experience of an initial sample of 118,253 cancer patients, reduced to 109,663 through checking and deceased status measures, and in total 72,788 responded, either by post or online, phone or through the Quality Health translation service. The response rate was 66.4% overall, in line with the levels attained in previous years. The CPES is intended to be a vehicle enabling and supporting quality improvement in the NHS and has been used by national bodies, NHS Hospitals, specialist cancer teams, and national and condition-specific charities to improve services for patients This study, SN 8363, is subject to restrictive Special Licence Access conditions because it contains detailed data on the treatment and experiences of cancer patients. A less detailed version of the data, held under SN 8362, is available under standard End User Licence access conditions; it contains no geographic information and less detailed demographic information. Users are advised to check SN 8362 first to see whether it is sufficient for their research requirements before considering making a Special Licence Access application for this study. Main Topics:The data cover different stages of the patients' 'cancer journey', from diagnosis to outpatient treatment: initial GP visits before diagnosis (how many appointments, time period)diagnostic tests (understanding of these)how patients were told about the cancer diagnosis (understanding, sensitivity, written information)decisions on treatment (understanding, side effects explained, involvement in decision making, written information)whether patients were given a named key worker (Cancer Nurse Specialist provision and experience of them)support measures patients were informed about (information on support groups, financial help, free prescriptions)hospital doctors (understanding, confidence and trust in them, knowledge of patient case)ward nurses (understanding, confidence, availability)overall hospital care and treatment (information provision, privacy, knowledge of case, pain control, dignity and respect)information provided before going home (written information and understanding, information on care at home and health or social services provision)day patient experience (radiotherapy, chemotherapy, side effects, pain control, emotional support, appointment delay, time with doctor, doctor notes and case understanding)wider care experience (hospital and community staff working together, information transfer)demographic datainformation provided by the participating Trusts such as date of discharge, diagnosis etc.Standard Measures: Positive scoring methodology was used to create individual question scores. The National Report used analysis of IMD deciles based on patients' postcodes provided as part of the dataset by individual NHS Trusts. Standard statistical tests were used to establish statistical significance and a description of these is included in the National Report. The survey asked all cancer patients about their experiences of the NHS cancer pathway; from diagnosis through to treatment through to aftercare, as well as some questions about protected characteristics.

  17. d

    Female Genital Mutilation

    • digital.nhs.uk
    Updated Sep 19, 2024
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    (2024). Female Genital Mutilation [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/female-genital-mutilation
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    Dataset updated
    Sep 19, 2024
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Time period covered
    Apr 1, 2023 - Mar 31, 2024
    Description

    This publication includes analysis of data for the year April 2023 to March 2024 from the Female Genital Mutilation (FGM) Enhanced Dataset (SCCI 2026) which is a repository for individual level data collected by healthcare providers in England, including acute hospital providers, mental health providers and GP practices. The report includes data on the type of FGM, age at which FGM was undertaken and in which country, the age of the woman or girl at her latest attendance and if she was advised of the health implications and illegalities of FGM and various other analyses. Some data for earlier years are reported.

  18. Focus group structure.

    • plos.figshare.com
    xls
    Updated Feb 12, 2025
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    Elizabeth Ford; Katie Goddard; Michael Smith; Jaime Vera (2025). Focus group structure. [Dataset]. http://doi.org/10.1371/journal.pone.0316848.t001
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    xlsAvailable download formats
    Dataset updated
    Feb 12, 2025
    Dataset provided by
    PLOShttp://plos.org/
    Authors
    Elizabeth Ford; Katie Goddard; Michael Smith; Jaime Vera
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    IntroductionPeople living with HIV (PLWH) now have near-normal life-expectancy, but still experience stigma, and HIV status is treated as sensitive health information. When UK healthcare patient data is curated into anonymised datasets for research, HIV diagnostic codes are stripped out. As PLWH age, we must research how HIV affects conditions of ageing, but cannot do so in current NHS research datasets. We aimed to elicit views on HIV status being shared in NHS datasets, and identify appropriate safeguards.MethodsWe conducted three focus groups with a convenience sample of PLWH recruited through HIV charities, presenting information on data governance, data-sharing, patient privacy, law, and research areas envisaged for HIV and ageing. Each focus group involved two presentations, a question session, and facilitated breakout discussion groups. Discussions were audio-recorded, transcribed and analysed thematically.Results37 PLWH (age range 23-58y) took part. The overarching theme was around trust, both the loss of trust experienced by participants due to previous negative or discriminatory experiences, and the need to slowly build trust in data-sharing initiatives. Further themes showed that participants were supportive of data being used for research and health care improvements, but needed a guarantee that their privacy would be protected. A loss of trust in systems and organisations using the data, suspicion of data users’ agendas, and worry about increased discrimination and stigmatisation made them cautious about data sharing. To rebuild trust participants wanted to see transparent security protocols, accountability for following these, and communication about data flows and uses, as well as awareness training about HIV, and clear involvement of PLWH as full stakeholders on project teams and decision-making panels.ConclusionsPLWH were cautiously in favour of their data being shared for research into HIV, where this could be undertaken with high levels of security, and the close involvement of PLWH to set research agendas and avoid increased stigma.

  19. d

    5.1 Deaths from venous thromboembolism (VTE) related events within 90 days...

    • digital.nhs.uk
    csv, pdf, xlsx
    Updated Mar 17, 2022
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    (2022). 5.1 Deaths from venous thromboembolism (VTE) related events within 90 days post discharge from hospital [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/nhs-outcomes-framework/march-2022
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    csv(1.6 kB), pdf(453.7 kB), xlsx(130.5 kB), pdf(190.5 kB)Available download formats
    Dataset updated
    Mar 17, 2022
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Time period covered
    Apr 1, 2007 - Mar 31, 2021
    Area covered
    England
    Description

    Update 2 March 2023: Following the merger of NHS Digital and NHS England on 1st February 2023 we are reviewing the future presentation of the NHS Outcomes Framework indicators. As part of this review, the annual publication which was due to be released in March 2023 has been delayed. Further announcements about this dataset will be made on this page in due course. The indicator measures the number of patients who have been admitted to hospital with any cause and die within 90 days of their last discharge from a VTE related event, expressed as a rate per 100,000 adult hospital admissions. This indicator aims to measure the reduction in deaths from VTE related events by driving efforts to improve the prevention, detection and treatment of VTE before it causes death. The coronavirus (COVID-19) pandemic began to have an impact on Hospital Episode Statistics (HES) data late in the 2019/20 financial year, which continued into the 2020/21 financial year. This means we are seeing different patterns in the submitted data, for example, fewer patients being admitted to hospital, and therefore statistics which contain data from this period should be interpreted with care. Legacy unique identifier: P01790

  20. d

    Childhood Vaccination Coverage Statistics

    • digital.nhs.uk
    Updated Sep 18, 2018
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    (2018). Childhood Vaccination Coverage Statistics [Dataset]. https://digital.nhs.uk/data-and-information/publications/statistical/nhs-immunisation-statistics
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    Dataset updated
    Sep 18, 2018
    License

    https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions

    Description

    Childhood Vaccination Coverage Statistics- England 2017-18 [NS] The information in this bulletin about immunisation statistics in England comes from Public Health England (PHE). Information on childhood vaccination coverage at ages 1, 2 and 5 years is collected through the Cover of Vaccination Evaluated Rapidly (COVER) data collection for Upper Tier Local Authorities (LAs). Information on children aged 2 and 3 vaccinated against seasonal flu are collected from GPs through PHE's ImmForm system.

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NHS England (2025). Data Security and Protection Toolkit [Dataset]. https://standards.nhs.uk/published-standards/data-security-and-protection-toolkit
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Data Security and Protection Toolkit

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Dataset updated
May 12, 2025
Dataset provided by
National Health Servicehttps://www.nhs.uk/
Authors
NHS England
Description

The Data Security and Protection (DSP) Toolkit is an online tool that enables relevant organisations to measure their performance against the data security and information governance requirements mandated by the Department of Health and Social Care.

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