The National Child Development Study (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan.
The NCDS has its origins in the Perinatal Mortality Survey (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565.
Survey and Biomeasures Data (GN 33004):
To date there have been nine attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the 1970 Birth Cohort Study (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137) and the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669).
Four separate datasets covering responses to NCDS over all sweeps are available. National Child Development Deaths Dataset: Special Licence Access (SN 7717) covers deaths; National Child Development Study Response and Outcomes Dataset (SN 5560) covers all other responses and outcomes; National Child Development Study: Partnership Histories (SN 6940) includes data on live-in relationships; and National Child Development Study: Activity Histories (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.
From 2002-2004, a Biomedical Survey was completed and is available under End User Licence (EUL) (SN 8731) and Special Licence (SL) (SN 5594). Proteomics analyses of blood samples are available under SL SN 9254.
Linked Geographical Data (GN 33497):
A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies.
Linked Administrative Data (GN 33396):
A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a Deaths dataset (SN 7717) available under SL and the Linked Health Administrative Datasets (SN 8697) available under Secure Access.
Additional Sub-Studies (GN 33562):
In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the NCDS series access data webpage.
How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:
For information on how to access biomedical data from NCDS that are not held at the UKDS, see the CLS Genetic data and biological samples webpage.
Further information about the full NCDS series can be found on the Centre for Longitudinal Studies website.
The National Child Development Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2017: Secure Access includes data files from the NHS Digital HES database for those cohort members who provided consent to health data linkage in the Age 50 sweep. The HES database contains information about all hospital admissions in England. The following linked HES data are available:
1) Accident and Emergency (A&E)
The A&E dataset details each attendance to an Accident and Emergency care facility in England, between 01-04-2007 and 31-03-2017 (inclusive). It includes major A&E departments, single speciality A&E departments, minor injury units and walk-in centres in England.
2) Admitted Patient Care (APC)
The APC data summarises episodes of care for admitted patients, where the episode occurred between 01-04-1997 and 31-03-2017 (inclusive).
3) Critical Care (CC)
The CC dataset covers records of critical care activity between 01-04-2009 and 31-03-2017 (inclusive).
4) Out Patient (OP)
The OP dataset lists the outpatient appointments between 01-04-2003 and 31-03-2017 (inclusive).
CLS/ NHS Digital Sub-licence agreement
NHS Digital has given CLS permission for onward sharing of the Next Steps/HES dataset via the UKDS Secure Lab. In order to ensure data minimisation, NHS Digital requires that researchers only access the HES variables needed for their approved research project. Therefore, the HES linked data provided by the UKDS to approved researchers will be subject to sub-setting of variables. The researcher will need to request a specific sub-set of variables from the Next Steps HES data dictionary, which will subsequently make available within their UKDS Secure Account. Once the researcher has finished their research, the UKDS will delete the tailored dataset for that specific project. Any party wishing to access the data deposited at the UK Data Service will be required to enter into a Licence agreement with CLS (UCL), in addition to the agreements signed with the UKDS, provided in the application pack.
Latest edition information
For the second edition (September 2022), 7 previously unavailable variables have been added to the A&E, APC and OP data files. The User Guide has also been updated, along with the variable list, to reflect the changes.
This dataset contains information about hospitals in England. National Health Service (NHS) Choices considers hospitals as locations that provide predominantly inpatient services. It includes information about organization and post codes, telephone number and email address for several hospital organizations in England.
https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions
Publication changes: Please read the section on 'Notes on changes to publications' within the PDF report as this highlights changes to data currently published and potentially future reports. This report shows monthly numbers of NHS Hospital and Community Health Service (HCHS) staff groups working in Trusts and CCGs in England (excluding primary care staff). Data is available as headcount and full-time equivalents. This data is an accurate summary of the validated data extracted from the NHS's HR and Payroll system. In addition to the regular monthly reports there are a series of quarterly reports which include statistics on staff in Trusts and CCGs and information for NHS Support Organisations and Central Bodies. The quarterly analysis is published each September (June data), December (September data), March (December data) and June (March data). Additional healthcare workforce data relating to GPs and the Independent Healthcare Provider workforce are also available via the Related Links below. We welcome feedback on the methodology and tables within this publication. Please email us with your comments and suggestions, clearly stating Monthly HCHS Workforce as the subject heading, via enquiries@nhsdigital.nhs.uk or 0300 303 5678
Abstract copyright UK Data Service and data collection copyright owner.The National Child Development Study (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan. The NCDS has its origins in the Perinatal Mortality Survey (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565. Survey and Biomeasures Data (GN 33004):To date there have been nine attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the 1970 Birth Cohort Study (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137) and the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669). Four separate datasets covering responses to NCDS over all sweeps are available. National Child Development Deaths Dataset: Special Licence Access (SN 7717) covers deaths; National Child Development Study Response and Outcomes Dataset (SN 5560) covers all other responses and outcomes; National Child Development Study: Partnership Histories (SN 6940) includes data on live-in relationships; and National Child Development Study: Activity Histories (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.From 2002-2004, a Biomedical Survey was completed and is available under End User Licence (EUL) (SN 8731) and Special Licence (SL) (SN 5594). Proteomics analyses of blood samples are available under SL SN 9254.Linked Geographical Data (GN 33497): A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. Linked Administrative Data (GN 33396):A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a Deaths dataset (SN 7717) available under SL and the Linked Health Administrative Datasets (SN 8697) available under Secure Access.Additional Sub-Studies (GN 33562):In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the NCDS series access data webpage. How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:For information on how to access biomedical data from NCDS that are not held at the UKDS, see the CLS Genetic data and biological samples webpage.Further information about the full NCDS series can be found on the Centre for Longitudinal Studies website. The National Child Development Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2017: Secure Access includes data files from the NHS Digital HES database for those cohort members who provided consent to health data linkage in the Age 50 sweep. The HES database contains information about all hospital admissions in England. The following linked HES data are available: 1) Accident and Emergency (A&E) The A&E dataset details each attendance to an Accident and Emergency care facility in England, between 01-04-2007 and 31-03-2017 (inclusive). It includes major A&E departments, single speciality A&E departments, minor injury units and walk-in centres in England. 2) Admitted Patient Care (APC)The APC data summarises episodes of care for admitted patients, where the episode occurred between 01-04-1997 and 31-03-2017 (inclusive). 3) Critical Care (CC) The CC dataset covers records of critical care activity between 01-04-2009 and 31-03-2017 (inclusive). 4) Out Patient (OP) The OP dataset lists the outpatient appointments between 01-04-2003 and 31-03-2017 (inclusive).CLS/ NHS Digital Sub-licence agreement NHS Digital has given CLS permission for onward sharing of the Next Steps/HES dataset via the UKDS Secure Lab. In order to ensure data minimisation, NHS Digital requires that researchers only access the HES variables needed for their approved research project. Therefore, the HES linked data provided by the UKDS to approved researchers will be subject to sub-setting of variables. The researcher will need to request a specific sub-set of variables from the Next Steps HES data dictionary, which will subsequently make available within their UKDS Secure Account. Once the researcher has finished their research, the UKDS will delete the tailored dataset for that specific project. Any party wishing to access the data deposited at the UK Data Service will be required to enter into a Licence agreement with CLS (UCL), in addition to the agreements signed with the UKDS, provided in the application pack.Latest edition informationFor the second edition (September 2022), 7 previously unavailable variables have been added to the A&E, APC and OP data files. The User Guide has also been updated, along with the variable list, to reflect the changes.
Abstract copyright UK Data Service and data collection copyright owner.The 1970 British Cohort Study (BCS70) began in 1970 when data were collected about the births and families of babies born in the United Kingdom in one particular week in 1970. Since then, there have been nine further full data collection exercises in order to monitor the cohort members' health, education, social and economic circumstances. These took place when respondents were aged 5 in 1975, aged 10 in 1980, aged 16 in 1986, aged 26 in 1996, aged 30 in 1999-2000 (SN 5558), aged 34 in 2004-2005, aged 42 in 2012 and aged 46 in 2016-18. A range of sub-sample and supplementary surveys have also been conducted, and a separate dataset covering response to BCS70 over all waves is available under SN 5641, 1970 British Cohort Study Response Dataset, 1970-2012.Further information about the BCS70 and may be found on the Centre for Longitudinal Studies website. As well as BCS70, the CLS now also conducts the NCDS series.How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:For information on how to access biomedical data from BCS70 that are not held at the UKDS, see the CLS Genetic data and biological samples webpage. In 2012, consent was sought for data linkage of health administrative records from the Hospital Episode Statistics (HES) to survey data for cohort members in the 1970 British Cohort Study (BCS70). The main aim of this data linkage exercise is to enhance the research potential of the study, by combining administrative record with the rich information collected in the surveys. The 1970 British Cohort Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2022: Secure Access contains information about all hospital admissions in England. The following linked HES data are available: 1) Accident and Emergency (A&E) The A&E dataset details each attendance to an Accident and Emergency care facility in England, between 01-04-2007 and 31-03-2019 (inclusive). It includes major A&E departments, single speciality A&E departments, minor injury units and walk-in centres in England. 2) Admitted Patient Care (APC) The APC data summarises episodes of care for admitted patients, where the episode occurred between 01-04-1997 and 31-03-2022 (inclusive). 3) Critical Care (CC) The CC dataset covers records of critical care activity between 01-04-2009 and 31-03-2022 (inclusive). 4) Out Patient (OP) The OP dataset lists the outpatient appointments between 01-04-2003 and 31-03-2022 (inclusive). 5) Emergency Care Dataset (ECDS) The ECDS lists the emergency care appointments between 01-04-2020 and 31-03-2022 (inclusive). 6) Consent data The consents dataset describes consent to linkage, and is current at the time of deposit CLS/ NHS Digital Sub-licence agreementNHS Digital has given CLS permission for onward sharing of the Next Steps/HES dataset via the UKDS Secure Lab. In order to ensure data minimisation, NHS Digital requires that researchers only access the HES variables needed for their approved research project. Therefore, the HES linked data provided by the UKDS to approved researchers will be subject to sub-setting of variables. The researcher will need to request a specific sub-set of variables from the Next Steps HES data dictionary, which will subsequently make available within their UKDS Secure Account. Once the researcher has finished their research, the UKDS will delete the tailored dataset for that specific project. Any party wishing to access the data deposited at the UK Data Service will be required to enter into a Licence agreement with CLS (UCL), in addition to the agreements signed with the UKDS, provided in the application pack.Latest edition informationFor the third edition (August 2024), the ECDS and Consents datasets were added and medical records for the financial years 2017-2022 were added. The User Guide and Variable List have also been updated.
https://research.ourfuturehealth.org.uk/apply-to-access-the-data/https://research.ourfuturehealth.org.uk/apply-to-access-the-data/
Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.
The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (March 2025) includes linked NHS England clinical data on 1,151,453 participants
Additional linked datasets are available: - ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1,414,260 participants. - ‘Genotype Array Data’ which includes genotype array data on 707,522 variants from a subset of 651,050 participants - Clinical Measurements Data which contains clinical data from 1,025,498 participants.
The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data.
We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.
Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
License information was derived automatically
Hospital Beds in the United Kingdom increased to 2.45 per 1000 people in 2022 from 2.43 per 1000 people in 2021. This dataset includes a chart with historical data for the United Kingdom Hospital Beds.
Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
License information was derived automatically
Experiences of being on an NHS hospital waiting list for adults in Great Britain; indicators from the Opinions and Lifestyle Survey (OPN).
https://digital.nhs.uk/about-nhs-digital/terms-and-conditionshttps://digital.nhs.uk/about-nhs-digital/terms-and-conditions
This publication of the SHMI relates to discharges in the reporting period November 2023 - October 2024. The SHMI is the ratio between the actual number of patients who die following hospitalisation at the trust and the number that would be expected to die on the basis of average England figures, given the characteristics of the patients treated there. The SHMI covers patients admitted to hospitals in England who died either while in hospital or within 30 days of being discharged. To help users of the data understand the SHMI, trusts have been categorised into bandings indicating whether a trust's SHMI is 'higher than expected', 'as expected' or 'lower than expected'. For any given number of expected deaths, a range of observed deaths is considered to be 'as expected'. If the observed number of deaths falls outside of this range, the trust in question is considered to have a higher or lower SHMI than expected. The expected number of deaths is a statistical construct and is not a count of patients. The difference between the number of observed deaths and the number of expected deaths cannot be interpreted as the number of avoidable deaths or excess deaths for the trust. The SHMI is not a measure of quality of care. A higher than expected number of deaths should not immediately be interpreted as indicating poor performance and instead should be viewed as a 'smoke alarm' which requires further investigation. Similarly, an 'as expected' or 'lower than expected' SHMI should not immediately be interpreted as indicating satisfactory or good performance. Trusts may be located at multiple sites and may be responsible for 1 or more hospitals. A breakdown of the data by site of treatment is also provided, as well as a breakdown of the data by diagnosis group. Further background information and supporting documents, including information on how to interpret the SHMI, are available on the SHMI homepage (see Related Links).
Background:
The Millennium Cohort Study (MCS) is a large-scale, multi-purpose longitudinal dataset providing information about babies born at the beginning of the 21st century, their progress through life, and the families who are bringing them up, for the four countries of the United Kingdom. The original objectives of the first MCS survey, as laid down in the proposal to the Economic and Social Research Council (ESRC) in March 2000, were:
Further information about the MCS can be found on the Centre for Longitudinal Studies web pages.
The content of MCS studies, including questions, topics and variables can be explored via the CLOSER Discovery website.
The first sweep (MCS1) interviewed both mothers and (where resident) fathers (or father-figures) of infants included in the sample when the babies were nine months old, and the second sweep (MCS2) was carried out with the same respondents when the children were three years of age. The third sweep (MCS3) was conducted in 2006, when the children were aged five years old, the fourth sweep (MCS4) in 2008, when they were seven years old, the fifth sweep (MCS5) in 2012-2013, when they were eleven years old, the sixth sweep (MCS6) in 2015, when they were fourteen years old, and the seventh sweep (MCS7) in 2018, when they were seventeen years old.The Millennium Cohort Study: Linked Health Administrative Data (Scottish Medical Records), Child Health Reviews, 2000-2015: Secure Access includes data files from the NHS Digital Hospital Episode Statistics database for those cohort members who provided consent to health data linkage in the Age 50 sweep, and had ever lived in Scotland. The Scottish Medical Records database contains information about all hospital admissions in Scotland. This study concerns the Child Health Reviews (CHR) from first visit to school reviews.
Other datasets are available from the Scottish Medical Records database, these include:
Emergency hospital admission rates for all conditions and all ages. Data is available from Health and Social Care Information Centre Indicator Portal and Hospital episode statistics legacy website containing content from the London Health Observatory].
Indirectly age and sex standardised rates.
See our new monthly data page for data from November 2024 onwards.
These official statistics were independently reviewed by the Office for Statistics Regulation in May 2022. They comply with the standards of trustworthiness, quality and value in the https://code.statisticsauthority.gov.uk/" class="govuk-link">Code of Practice for Statistics and should be labelled ‘accredited official statistics’. Accredited official statistics are called National Statistics in the Statistics and Registration Service Act 2007. Further explanation of accredited official statistics can be found on the https://osr.statisticsauthority.gov.uk/accredited-official-statistics/" class="govuk-link">Office for Statistics Regulation website.
In response to user feedback, we are testing alternative ways of presenting the monthly data sets as visualisations on the UKHSA data dashboard. The current data sets will continue to be published as normal and users will be consulted prior to any significant changes. We encourage users to review and provide feedback on the new dashboard content.
Monthly counts of total reported, hospital-onset, hospital-onset healthcare associated (HOHA), community-onset healthcare associated (COHA), community-onset and community-onset community associated (COCA) MRSA bacteraemias by NHS organisations.
These documents contain the monthly counts of total reported, hospital-onset and community-onset MRSA bacteraemia by NHS organisations.
The UK Government Web Archive contains MRSA bacteraemia data from previous financial years, including:
data from https://webarchive.nationalarchives.gov.uk/ukgwa/20230510143423/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-location-of-onset" class="govuk-link">2022 to 2023
data from https://webarchive.nationalarchives.gov.uk/ukgwa/20220614173109/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-location-of-onset" class="govuk-link">2021 to 2022
data from https://webarchive.nationalarchives.gov.uk/20210507180210/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-location-of-onset" class="govuk-link">2020 to 2021
data from https://webarchive.nationalarchives.gov.uk/20200506173036/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-location-of-onset" class="govuk-link">2019 to 2020
data from https://webarchive.nationalarchives.gov.uk/20190508011104/https://www.gov.uk/government/collections/staphylococcus-aureus-guidance-data-and-analysis" class="govuk-link">2018 to 2019
data from https://webarchive.nationalarchives.gov.uk/20180510152304/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-attributed-clinical-commissioning-group" class="govuk-link">2017 to 2018
data from https://webarchive.nationalarchives.gov.uk/20170515101840tf_/https://www.gov.uk/government/statistics/mrsa-bacteraemia-monthly-data-by-attributed-clinical-commissioning-group" class="govuk-link">2013 to 2014, up to 2016 to 2017
data from https://webarchive.nationalarchives.gov.uk/20140712114853tf_/http://www.hpa.org.uk/web/HPAweb&HPAwebStandard/HPAweb_C/1254510675444" class="govuk-link">2013 and earlier
https://digital.nhs.uk/services/data-access-request-service-darshttps://digital.nhs.uk/services/data-access-request-service-dars
Hospital Episode Statistics (HES) is a database containing details of all admissions, A and E attendances and outpatient appointments at NHS hospitals in England.
Initially this data is collected during a patient's time at hospital as part of the Commissioning Data Set (CDS). This is submitted to NHS Digital for processing and is returned to healthcare providers as the Secondary Uses Service (SUS) data set and includes information relating to payment for activity undertaken. It allows hospitals to be paid for the care they deliver.
This same data can also be processed and used for non-clinical purposes, such as research and planning health services. Because these uses are not to do with direct patient care, they are called 'secondary uses'. This is the HES data set.
HES data covers all NHS Clinical Commissioning Groups (CCGs) in England, including:
Each HES record contains a wide range of information about an individual patient admitted to an NHS hospital, including:
We apply a strict statistical disclosure control in accordance with the NHS Digital protocol, to all published HES data. This suppresses small numbers to stop people identifying themselves and others, to ensure that patient confidentiality is maintained.
Timescales for dissemination can be found under 'Our Service Levels' at the following link: https://digital.nhs.uk/services/data-access-request-service-dars/data-access-request-service-dars-process
https://www.pioneerdatahub.co.uk/data/data-request-process/https://www.pioneerdatahub.co.uk/data/data-request-process/
OMOP dataset: Hospital COVID patients: severity, acuity, therapies, outcomes Dataset number 2.0
Coronavirus disease 2019 (COVID-19) was identified in January 2020. Currently, there have been more than 6 million cases & more than 1.5 million deaths worldwide. Some individuals experience severe manifestations of infection, including viral pneumonia, adult respiratory distress syndrome (ARDS) & death. There is a pressing need for tools to stratify patients, to identify those at greatest risk. Acuity scores are composite scores which help identify patients who are more unwell to support & prioritise clinical care. There are no validated acuity scores for COVID-19 & it is unclear whether standard tools are accurate enough to provide this support. This secondary care COVID OMOP dataset contains granular demographic, morbidity, serial acuity and outcome data to inform risk prediction tools in COVID-19.
PIONEER geography The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix. There is a higher than average percentage of minority ethnic groups. WM has a large number of elderly residents but is the youngest population in the UK. Each day >100,000 people are treated in hospital, see their GP or are cared for by the NHS. The West Midlands was one of the hardest hit regions for COVID admissions in both wave 1 & 2.
EHR. University Hospitals Birmingham NHS Foundation Trust (UHB) is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & 100 ITU beds. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”. UHB has cared for >5000 COVID admissions to date. This is a subset of data in OMOP format.
Scope: All COVID swab confirmed hospitalised patients to UHB from January – August 2020. The dataset includes highly granular patient demographics & co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to care process (timings, staff grades, specialty review, wards), presenting complaint, acuity, all physiology readings (pulse, blood pressure, respiratory rate, oxygen saturations), all blood results, microbiology, all prescribed & administered treatments (fluids, antibiotics, inotropes, vasopressors, organ support), all outcomes.
Available supplementary data: Health data preceding & following admission event. Matched “non-COVID” controls; ambulance, 111, 999 data, synthetic data. Further OMOP data available as an additional service.
Available supplementary support: Analytics, Model build, validation & refinement; A.I.; Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.
https://www.pioneerdatahub.co.uk/data/data-request-process/https://www.pioneerdatahub.co.uk/data/data-request-process/
Background
Sarcomas are uncommon cancers that can affect any part of the body. There are many different types of sarcoma and subtypes can be grouped into soft tissue or bone sarcomas. About 15 people are diagnosed every day in the UK. 3 in every 200 people with cancer in the UK have sarcoma.
A highly granular dataset with a confirmed sarcoma event including hospital presentation, serial physiology, demography, treatment prescribed and administered, prescribed and administered drugs. The infographic includes data from 27/12/2004 to 31/12/2021 but data is available from the past 10 years+.
PIONEER geography: The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix.
EHR. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & an expanded 250 ITU bed capacity during COVID. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Scope: All hospitalised patients from 2004 onwards, curated to focus on Sarcoma. Longitudinal & individually linked, so that the preceding & subsequent health journey can be mapped & healthcare utilisation prior to & after admission understood. The dataset includes highly granular patient demographics & co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to acute care process (timings, staff grades, specialty review, wards and triage). Along with presenting complaints, outpatients admissions, microbiology results, referrals, procedures, therapies, all physiology readings (pulse, blood pressure, respiratory rate, oxygen saturations and others), and all blood results (urea, albumin, platelets, white blood cells and others). Includes all prescribed & administered treatments and all outcomes. Linked images are also available (radiographs, CT scans, MRI).
Available supplementary data: Matched controls; ambulance, OMOP data, synthetic data.
Available supplementary support: Analytics, Model build, validation & refinement; A.I.; Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.
The update for March 2022 has been published by the Office for Health Improvement and Disparities (OHID).
Place of death factsheets have been updated. These are available for each clinical commissioning group and include percentage of deaths in hospital, home, care home, hospice and other places by age at death (all ages, 0 to 64 years, 65 to 74 years, 74 to 84 years and 85 years and older) for 2019, 2020 and 2021 (provisional).
This update also includes the launch of the care home factsheets. These are available for each upper-tier local authority and include trends in care home deaths and data on care home bed availability by service speciality.
The https://fingertips.phe.org.uk/profile/end-of-life" class="govuk-link">palliative and end of life care profiles are presented in an interactive tool which aims to help local government and health services improve care at the end of life.
According to a survey carried out in the United Kingdom in 2023, almost 70 percent of the public trusted their health data to be handled securely by GP practices and NHS hospitals and clinics. The least trusted types of organizations in the UK were the local and national governments, followed by health technology companies.
Open Government Licence 3.0http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/
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Counts and rates of deaths and hospital admissions associated with temperature for England and Wales from 2001 to 2020.
The number of admissions has increased year-on-year from 2000 to 2020. Due to the COVID-19 pandemic, hospital admission dropped in 2020/21. In 2023/24 there were around 17.6 million admissions* to NHS hospitals in England, showing that admission numbers have reached and exceeded pre-pandemic levels.
Abstract copyright UK Data Service and data collection copyright owner. The Organisation for Economic Co-operation and Development (OECD) Health Statistics offers the most comprehensive source of comparable statistics on health and health systems across OECD countries. It is an essential tool for health researchers and policy advisors in governments, the private sector and the academic community, to carry out comparative analyses and draw lessons from international comparisons of diverse health care systems. Within UKDS.Stat the data are presented in the following databases: Health status This datasets presents internationally comparable statistics on morbidity and mortality with variables such as life expectancy, causes of mortality, maternal and infant mortality, potential years of life lost, perceived health status, infant health, dental health, communicable diseases, cancer, injuries, absence from work due to illness. The annual data begins in 2000. Non-medical determinants of health This dataset examines the non-medical determinants of health by comparing food, alcohol, tobacco consumption and body weight amongst countries. The data are expressed in different measures such as calories, grammes, kilo, gender, population. The data begins in 1960. Healthcare resources This dataset includes comparative tables analyzing various health care resources such as total health and social employment, physicians by age, gender, categories, midwives, nurses, caring personnel, personal care workers, dentists, pharmacists, physiotherapists, hospital employment, graduates, remuneration of health professionals, hospitals, hospital beds, medical technology with their respective subsets. The statistics are expressed in different units of measure such as number of persons, salaried, self-employed, per population. The annual data begins in 1960. Healthcare utilisation This dataset includes statistics comparing different countries’ level of health care utilisation in terms of prevention, immunisation, screening, diagnostics exams, consultations, in-patient utilisation, average length of stay, diagnostic categories, acute care, in-patient care, discharge rates, transplants, dialyses, ICD-9-CM. The data is comparable with respect to units of measures such as days, percentages, population, number per capita, procedures, and available beds. Health Care Quality Indicators This dataset includes comparative tables analyzing various health care quality indicators such as cancer care, care for acute exacerbation of chronic conditions, care for chronic conditions and care for mental disorders. The annual data begins in 1995. Pharmaceutical market This dataset focuses on the pharmaceutical market comparing countries in terms of pharmaceutical consumption, drugs, pharmaceutical sales, pharmaceutical market, revenues, statistics. The annual data begins in 1960. Long-term care resources and utilisation This dataset provides statistics comparing long-term care resources and utilisation by country in terms of workers, beds in nursing and residential care facilities and care recipients. In this table data is expressed in different measures such as gender, age and population. The annual data begins in 1960. Health expenditure and financing This dataset compares countries in terms of their current and total expenditures on health by comparing how they allocate their budget with respect to different health care functions while looking at different financing agents and providers. The data covers the years starting from 1960 extending until 2010. The countries covered are Australia, Austria, Belgium, Canada, Chile, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Israel, Italy, Japan, Korea, Luxembourg, Mexico, Netherlands, New Zealand, Norway, Poland, Portugal, Slovak Republic, Slovenia, Spain, Sweden, Switzerland, Turkey, United Kingdom, and United States. Social protection This dataset introduces the different health care coverage systems such as the government/social health insurance and private health insurance. The statistics are expressed in percentage of the population covered or number of persons. The annual data begins in 1960. Demographic references This dataset provides statistics regarding general demographic references in terms of population, age structure, gender, but also in term of labour force. The annual data begins in 1960. Economic references This dataset presents main economic indicators such as GDP and Purchasing power parities (PPP) and compares countries in terms of those macroeconomic references as well as currency rates, average annual wages. The annual data begins in 1960. These data were first provided by the UK Data Service in November 2014.
The National Child Development Study (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan.
The NCDS has its origins in the Perinatal Mortality Survey (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565.
Survey and Biomeasures Data (GN 33004):
To date there have been nine attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the 1970 Birth Cohort Study (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137) and the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669).
Four separate datasets covering responses to NCDS over all sweeps are available. National Child Development Deaths Dataset: Special Licence Access (SN 7717) covers deaths; National Child Development Study Response and Outcomes Dataset (SN 5560) covers all other responses and outcomes; National Child Development Study: Partnership Histories (SN 6940) includes data on live-in relationships; and National Child Development Study: Activity Histories (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.
From 2002-2004, a Biomedical Survey was completed and is available under End User Licence (EUL) (SN 8731) and Special Licence (SL) (SN 5594). Proteomics analyses of blood samples are available under SL SN 9254.
Linked Geographical Data (GN 33497):
A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies.
Linked Administrative Data (GN 33396):
A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a Deaths dataset (SN 7717) available under SL and the Linked Health Administrative Datasets (SN 8697) available under Secure Access.
Additional Sub-Studies (GN 33562):
In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the NCDS series access data webpage.
How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:
For information on how to access biomedical data from NCDS that are not held at the UKDS, see the CLS Genetic data and biological samples webpage.
Further information about the full NCDS series can be found on the Centre for Longitudinal Studies website.
The National Child Development Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2017: Secure Access includes data files from the NHS Digital HES database for those cohort members who provided consent to health data linkage in the Age 50 sweep. The HES database contains information about all hospital admissions in England. The following linked HES data are available:
1) Accident and Emergency (A&E)
The A&E dataset details each attendance to an Accident and Emergency care facility in England, between 01-04-2007 and 31-03-2017 (inclusive). It includes major A&E departments, single speciality A&E departments, minor injury units and walk-in centres in England.
2) Admitted Patient Care (APC)
The APC data summarises episodes of care for admitted patients, where the episode occurred between 01-04-1997 and 31-03-2017 (inclusive).
3) Critical Care (CC)
The CC dataset covers records of critical care activity between 01-04-2009 and 31-03-2017 (inclusive).
4) Out Patient (OP)
The OP dataset lists the outpatient appointments between 01-04-2003 and 31-03-2017 (inclusive).
CLS/ NHS Digital Sub-licence agreement
NHS Digital has given CLS permission for onward sharing of the Next Steps/HES dataset via the UKDS Secure Lab. In order to ensure data minimisation, NHS Digital requires that researchers only access the HES variables needed for their approved research project. Therefore, the HES linked data provided by the UKDS to approved researchers will be subject to sub-setting of variables. The researcher will need to request a specific sub-set of variables from the Next Steps HES data dictionary, which will subsequently make available within their UKDS Secure Account. Once the researcher has finished their research, the UKDS will delete the tailored dataset for that specific project. Any party wishing to access the data deposited at the UK Data Service will be required to enter into a Licence agreement with CLS (UCL), in addition to the agreements signed with the UKDS, provided in the application pack.
Latest edition information
For the second edition (September 2022), 7 previously unavailable variables have been added to the A&E, APC and OP data files. The User Guide has also been updated, along with the variable list, to reflect the changes.