This publication reports on newly diagnosed cancers registered in England in addition to cancer deaths registered in England during 2020. It includes this summary report showing key findings, spreadsheet tables with more detailed estimates, and a methodology document.

Background

Sarcomas are uncommon cancers that can affect any part of the body. There are many different types of sarcoma and subtypes can be grouped into soft tissue or bone sarcomas. About 15 people are diagnosed every day in the UK. 3 in every 200 people with cancer in the UK have sarcoma.

A highly granular dataset with a confirmed sarcoma event including hospital presentation, serial physiology, demography, treatment prescribed and administered, prescribed and administered drugs. The infographic includes data from 27/12/2004 to 31/12/2021 but data is available from the past 10 years+.

PIONEER geography: The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix.

EHR. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & an expanded 250 ITU bed capacity during COVID. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.

Scope: All hospitalised patients from 2004 onwards, curated to focus on Sarcoma. Longitudinal & individually linked, so that the preceding & subsequent health journey can be mapped & healthcare utilisation prior to & after admission understood. The dataset includes highly granular patient demographics & co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to acute care process (timings, staff grades, specialty review, wards and triage). Along with presenting complaints, outpatients admissions, microbiology results, referrals, procedures, therapies, all physiology readings (pulse, blood pressure, respiratory rate, oxygen saturations and others), and all blood results (urea, albumin, platelets, white blood cells and others). Includes all prescribed & administered treatments and all outcomes. Linked images are also available (radiographs, CT scans, MRI).

Available supplementary data: Matched controls; ambulance, OMOP data, synthetic data.

Available supplementary support: Analytics, Model build, validation & refinement; A.I.; Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.

The National Cancer Registration and Analysis Service (NCRAS) at Public Health England supplies cancer registration data to NHS Digital. This data is available to be linked to other data held by NHS Digital in order to provide notifications on an individual's cancer status, be available to support research studies and to identify potential research participants for clinical trials.

NCRAS is the population-based cancer registry for England. It collects, quality assures and analyses data on all people living in England who are diagnosed with malignant and pre-malignant neoplasms, with national coverage since 1971.

The Cancer Registration dataset comprises England data to the present day, and Welsh data up to April 2017.

Timescales for dissemination of agreed data can be found under 'Our Service Levels' at the following link: https://digital.nhs.uk/services/data-access-request-service-dars/data-access-request-service-dars-process Standard response

Dataset population: Persons

General health

General health is a self-assessment of a person's general state of health. People were asked to assess whether their health was very good, good, fair, bad or very bad.

For Northern Ireland, 'General health' refers to a person's health over the 12 months prior to Census day (27 March 2011).

Long-term health problem or disability

A long-term health problem or disability that limits a person's day-to-day activities and has lasted or is expected to last at least 12 months. This includes problems that are related to old age.

People were asked to assess whether their daily activities were limited a lot or a little by such a health problem, or whether their daily activities were not limited at all.

Type of long-term condition

People with more than one condition are counted separately for each condition but only once in the 'All people'/'All people in households' and 'One or more conditions' categories.

1. A communication difficulty means a difficulty with speaking or making yourself understood.
2. A mobility or dexterity difficulty means a condition that substantially limits one or more basic physical activities such as walking, climbing stairs, lifting or carrying.
3. An emotional, psychological or mental health condition includes conditions such as depression or schizophrenia.
4. Shortness of breath or difficulty breathing includes conditions such as asthma.
5. A chronic illness includes illnesses such as cancer, HIV, diabetes, heart disease or epilepsy.

A long-term condition refers to a condition which has lasted, or is expected to last, at least 12 months.