AbstractObjectives: To assess feasibility, acceptability, and clinical sensibility of a novel survey, the Advance Care Planning (ACP) Engagement Survey in various health care settings. Setting: A target sample of 50 patients from each of primary care, hospital, cancer care, and dialysis care settings. Participants: A convenience sample of patients without cognitive impairment who could speak and read English was recruited. Patients 50 years and older were eligible in primary care; patients 80 and older or 55 years and older with clinical markers of advanced chronic disease were recruited in hospital; patients aged 19 and older were recruited in cancer and renal dialysis centres. Outcomes: We assessed feasibility, acceptability and clinical sensibility of the ACP Engagement Survey using a 6-point scale. The ACP Engagement Survey measures ACP processes (knowledge, contemplation, self-efficacy, readiness) on 5-point Likert scales and actions (yes/no). Results: 196 patients (38 to 96 years old, 50.5% women) participated. Mean (±standard deviation) time to administer was 48.8 ±19.6 minutes. Mean acceptability scores ranged from 3.2±1.3 in hospital to 4.7±0.9 in primary care and mean relevance ranged from 3.5±1.0 in hospital to 4.9±0.9 in dialysis centres (p values <0.001 for both). The mean process score was 3.1±0.6 and the mean action score was 11.2±5.6 (of a possible 25). Conclusions: The ACP Engagement Survey demonstrated feasibility and acceptability in out-patient settings, but was less feasible and acceptable among hospitalized patients due to length. A shorter version may improve feasibility. Engagement in ACP was low to moderate. Usage notesREADMEThe Readme file includes a list of files in this data package, and a description of the variables that were removed from the dataset to protect participant identity. Please see the "Data dictionary" for a description of the variables that were included in the dataset, and the "Summary table of indirect identifier data" for a summary of values reported at removed variables.Data Dictionary - Canadian ACP engagement sample BMJ OpenThis file describes the variables that were included in the dataset, and their allowable values.Canadian ACP engagement sample BMJ Open_data dictionary.xlsxCanadian ACP engagement survey pilotThis file contains the responses of 196 patients in acute care, primary care, cancer care and renal care to a 108-item ACP engagement survey. Process Measures (knowledge, contemplation, self-efficacy, and readiness, 5-point Likert scales) and Action Measures (yes/no whether an ACP behavior was completed) are included.Canadian ACP engagement sample_BMJ Open_indirect identifiers removed.xlsxSummary table of indirect identifier data - Canadian ACP engagement_BMJ OpenThis file contains descriptive analysis summary tables of indirect identifiers that were removed from the dataset.Canadian ACP engagement_BMJ Open_summary table of indirect identifier data.docx

Adolescents living with HIV (ALHIV) face psychosocial challenges that could affect HIV treatment outcomes. Peer support networks and aspects of well-being, including self-efficacy, self-esteem, and social capital, could ameliorate these challenges. This retrospective analysis describes participation in existing facility-based adolescent clubs and the associations between club attendance, adolescent well-being, and HIV treatment outcomes. Data were collected through interviews with a sub-sample of adolescents aged 10-19 years and medical record abstraction of all adolescents attending HIV services at seven clinics in Tanzania. Independent variables included adolescent club attendance, self-efficacy, self-esteem, symptoms of depression/anxiety, social capital, and other health utilization or HIV experience characteristics. Study outcomes included visit adherence, viral suppression (<1000 cp/ml), and retention. Of 645 adolescents, 75% attended clubs at least once, with a median of eight..., Data were collected through interviews with a sub-sample of adolescents aged 10-19 years and medical record abstraction of all adolescents attending HIV services at seven clinics in Tanzania. Data were analyzed using STATA 16.1., , # Adolescent clubs and self-efficacy linked to better HIV outcomes

Dataset DOI: 10.5061/dryad.cnp5hqc5n

Description of the data and file structure

We conducted a retrospective analysis of adolescents living with HIV attending seven health facilities with well-established adolescent clubs as part of their HIV clinical services. Data sources included (1) abstracted data on HIV/ART clinical visits from 2015 to 2019, (2) abstracted data on club attendance records from 2016 to 2018, and (3) data collected from structured interviews with a subset of attending adolescents in 2018.

Participant and siteid IDs are unlinkable to any personal identifiers. Neither ID alone nor in combination with other variables in the dataset can be used to identify any individual or geographic location within the study country, Tanzania. Two age variables, while treated as continuous in the analyses, were binned to declassify them as "indirect identifiers." The remaining indirect ..., Among those recruited for an interview, caregivers of minors and adolescents who were either emancipated or age 18 years or older provided written informed consent. Adolescent minors (age 10–17) provided verbal assent. For adolescents whose medical record information was included in the analysis but who were not recruited for interview, a waiver of informed consent was granted under a separate protocol approved by the National Research Ethics Committee of the National Institute for Medical Research in Tanzania and the US-based IRB, Advarra. All data were fully anonymized using participant and site ID numbers unlinked to any personal identifiers.