Combined cancer registry data from all VHA facilities. Includes North American Association of Central Cancer Registries, Inc. (NAACCR).

The United States Cancer Statistics (USCS) online databases in WONDER provide cancer incidence and mortality data for the United States for the years since 1999, by year, state and metropolitan areas (MSA), age group, race, ethnicity, sex, childhood cancer classifications and cancer site. Report case counts, deaths, crude and age-adjusted incidence and death rates, and 95% confidence intervals for rates. The USCS data are the official federal statistics on cancer incidence from registries having high-quality data and cancer mortality statistics for 50 states and the District of Columbia. USCS are produced by the Centers for Disease Control and Prevention (CDC) and the National Cancer Institute (NCI), in collaboration with the North American Association of Central Cancer Registries (NAACCR). Mortality data are provided by the Centers for Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS), National Vital Statistics System (NVSS).

Abstract

The Greater Bay Area Cancer Registry (GBACR), in compliance with California state law, gathers information about all cancers diagnosed or treated in a nine-county area (Alameda, Contra Costa, Marin, Monterey, San Benito, San Francisco, San Mateo, Santa...

Documentation

PHS does NOT host these data. This listing is information only.

The Greater Bay Area Cancer Registry (GBACR), in compliance with California state law, gathers information about all cancers diagnosed or treated in a nine-county area (Alameda, Contra Costa, Marin, Monterey, San Benito, San Francisco, San Mateo, Santa Clara and Santa Cruz). This information is obtained from medical records provided by hospitals, doctors\342\200\231 offices, and other related facilities.

The information, stored under secure conditions with strict regulations that protect confidentiality, helps the GBACR understand cancer occurrence and survival in the Greater Bay Area. For each patient, the information includes basic demographic facts like age, gender, and race/ethnicity, as well as cancer type, extent of disease, treatment and survival. Combined over the diverse Bay Area population, this information gives the GBACR and all users an opportunity to learn how such characteristics may be related to cancer causes, mortality, care and prevention.

In addition to its local use, information collected by the GBACR becomes part of state and federal population-based registries whose mission is to monitor cancer occurrence at the state and national levels, respectively. Data from the GBACR have contributed to the National Cancer Institute’s Surveillance, Epidemiology and End Results (SEER) program since 1973. The nine counties are also part of the statewide California Cancer Registry (CCR), which conducts essential monitoring of cancer occurrence and survival in California.

GBACR data are of the highest quality, as recognized by national and international registry standard-setting organizations, including SEER, the National Program for Cancer Registries, and the North American Association for Central Cancer Registries (NAACCR).

The CPIC has also started collecting data on environmenal factors. These data are available in the The California Neighborhoods Data System. This a new resource for examining the impact of neighborhood characteristics on cancer incidence and outcomes in populations includes a compilation of existing geospatial and other secondary data for characterizing contextual factors

A summary and description of social and built environment data and measures in the California Neighborhoods Data System (2010) can be found here: Social and Built Environment Data and Measures

More information about this new data source can be found here: The California Neighborhoods Data System

Patient characteristics All reported cancer cases in the state of California.

Data overview Data categories Socioeconomic status Racial/ethnic composition Immigration/acculturation characteristics Racial/ethnic residential segregation Population density Urbanicity (Rural/Urban) Housing Businesses Commuting Street connectivity Parks Farmers Markets Traffic density Crime Tapestry Segmentation

Notes To apply for these data, you can see instructions here: https://www.ccrcal.org/retrieve-data/data-for-researchers/how-to-request-ccr-data/

Retinoblastoma is the most common intraocular cancer in children, with significant variations in incidence and Survival. This study sought to evaluate nationwide retinoblastoma incidences and survival rates in the United States from 1996 to 2018. We extracted data from the North American Association of Central Cancer Registries (NACCR) and the National Program of Cancer Registries between 1996 and 2018. Cases were stratified by sex, age, race, Hispanic origin, urban or rural origin, stage of the disease, and state of residence and compared by laterality. We applied SEER*Stat version 8.4.0.1 software for age-adjusted incidence rates (AAIR) and annual average per cent change (AAPC) and JoinPoint version 4.9.1.0 software to assess incidence trends. Survival trends were evaluated with JPSurv online software. The study comprised 5730 patients with a crude incidence rate (CIR) of 0.89 per million. The incidence declined from 29.6 per million in the first year of life to 16.5 in the second year. The CIR for unilateral and bilateral diseases were 0.61 and 0.27, respectively. Males had a slightly higher and significant crude incidence of 0.93 versus 0.86 for females. Hispanics had the highest rate of 1.48 in general. Treatment data revealed chemotherapy usage in 39% of unilateral and 78% of bilateral patients. The 5-year cumulative relative Survival did not significantly differ between unilateral (96.8%) and bilateral (97.0%) patients. A slight but significant annual decline in CIR was observed, with a trend toward an increase in the percentage of patients diagnosed in the first year of life. This study indicated an overall decrease in incidence but a slight increase in early diagnosis. Findings underscore the need for consistent surveillance, early detection strategies, and personalized care to improve patient outcomes. The changes in the Survival in the unilateral disease require further investigations and mitigation strategies.