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NHS England collect and publish data about people with dementia at each GP practice in England, to enable NHS GPs and commissioners to make informed choices about how to plan their dementia services around patients’ needs. The publication includes the rate of dementia diagnosis. As not everyone with dementia has a formal diagnosis, this statistic compares the number of people thought to have dementia with the number of people diagnosed with dementia, aged 65 and over. Where current monthly data for a GP practice is unavailable, the most recent data available are used (up to a maximum of 6 months). Prior to October 2022, dementia data was collected via the dementia data core contract service and published as the "Recorded Dementia Diagnoses" series. The data in these two publication series are not comparable. This is due to the retrospective application of codes to patient records and changes in patient registration, as well as differences in coverage and the specification of several the counts. Refer to the ‘Related Links’ for the supporting information page where details on these changes can be found.
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From March 2025, a new page for data updates will be published. These will be available in the Dementia data and intelligence collection.
This page title has been updated to reflect that it contains the commentary from the December 2024 update.
An indicator update for December 2024 is now available in the https://fingertips.phe.org.uk/profile/dementia/supporting-information/surveillance%20factsheet">dementia surveillance factsheet.
The dementia profile is designed to improve the availability and accessibility of information on dementia. The data is presented in an interactive tool that allows users to view and analyse it in a user-friendly format.
The profile is structured around ‘The Well Pathway for Dementia’, available on the https://www.england.nhs.uk/mental-health/dementia/">NHS England Dementia page, with indicators arranged into 5 data domains:
Indicators in the dementia profile are shown for integrated care boards (ICBs) and sub locations (sub ICBs) where used, and for local authority geographies. This data gives local commissioners and providers the information needed to benchmark current practice against other areas in England and the England level.
If you have any comments, questions or feedback, contact us at ndi@dhsc.gov.uk.
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This dataset reports the dementia diagnosis rate among individuals aged 65 and over in England. It reflects the proportion of people within this age group who have a recorded diagnosis of dementia, compared to the estimated number of people expected to have dementia based on prevalence models. The data is derived from General Practice records and national prevalence estimates, offering a view into how effectively dementia is being identified and recorded in primary care settings.
Rationale
Improving the diagnosis rate of dementia is a key public health priority, as early identification allows for better care planning, support, and treatment. This indicator helps assess how well healthcare systems are performing in identifying dementia among older adults, and supports efforts to close the gap between estimated and recorded cases.
Numerator
The numerator includes patients aged 65 and older who are registered for General Medical Services and have an unresolved diagnosis of dementia. These counts are broken down by five-year age and sex bands and are extracted from GP Clinical Systems via the General Practice Extraction Service (GPES) on the last day of the reporting month.
Denominator
The denominator is the estimated number of people aged 65 and older expected to have dementia within the population. This estimate is calculated by applying reference prevalence rates to the registered population.
Caveats
From 2017 onwards, a new methodology was introduced for this indicator, which is not directly comparable with previous versions. As a result, overlapping time series data may show differing values. Users should exercise caution when comparing historical data.
External References
More information is available from the following sources:
Recorded Dementia Diagnoses - NHS Digital Primary Care Dementia Data - NHS Digital Fingertips Public Health Profiles
Localities ExplainedThis dataset contains data based on either the resident locality or registered locality of the patient, a distinction is made between resident locality and registered locality populations:Resident Locality refers to individuals who live within the defined geographic boundaries of the locality. These boundaries are aligned with official administrative areas such as wards and Lower Layer Super Output Areas (LSOAs).Registered Locality refers to individuals who are registered with GP practices that are assigned to a locality based on the Primary Care Network (PCN) they belong to. These assignments are approximate—PCNs are mapped to a locality based on the location of most of their GP surgeries. As a result, locality-registered patients may live outside the locality, sometimes even in different towns or cities.This distinction is important because some health indicators are only available at GP practice level, without information on where patients actually reside. In such cases, data is attributed to the locality based on GP registration, not residential address.
Click here to explore more from the Birmingham and Solihull Integrated Care Partnerships Outcome Framework.
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The recorded prevalence of dementia, by ethnicity at Clinical Commissioning Group (CCG) level.
These data are published in support of the Dementia Strategy and the Dementia Challenge
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TwitterWe collect and publish data about people with dementia at each GP practice, so that the NHS (GPs and commissioners) can make informed choices about how to plan their services around their patient’s needs.
This publication includes the rate of dementia diagnosis. As not everyone with dementia has a formal diagnosis, this statistic compares the number of people thought to have dementia with the number of people diagnosed with dementia, aged 65 and over
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TwitterThe dementia profile is designed to improve the availability and accessibility of information on dementia. The data is presented in an interactive tool that allows users to view and analyse it in a user-friendly format.
The profile is structured around the https://www.england.nhs.uk/mentalhealth/wp-content/uploads/sites/29/2016/03/dementia-well-pathway.pdf" class="govuk-link">NHS England well pathway for dementia and provides a snapshot of the prevalence of dementia and care provided to people with dementia, broken down by geographical area, to help local government and health services improve dementia care.
The profile includes the estimated dementia diagnosis rate, which shows the number of people with a formal diagnosis of dementia as a percentage of those estimated to have the disease. A timely diagnosis helps those living with dementia, their carers and healthcare staff to improve health and care outcomes as outlined within the Prime Minister’s challenge.
Please note that the COVID-19 pandemic has impacted on indicators in the dementia profile that use the dementia monthly Quality Outcomes Framework and Care Quality Commissions datasets. However, indicators that use the annual Quality Outcomes Framework, Hospital Episode Statistics (Admitted Patient Care) and the Office for National Statistics mortality datasets are not impacted by the COVID-19 pandemic. All indicators in the preventing well domain are not impacted by the COVID-19 pandemic.
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TwitterMonitored the number of dementia diagnoses against the target outlined in the Prime Minister's Challenge on Dementia.
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TwitterThe publication will present at England level: recorded prevalence and how this compares with research based studies at different ages, and how prevalence differs at different ages depending on comorbidity; CCG level: the rate of emergency hospital admissions for dementia per person recorded with a dementia diagnosis.
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Legacy unique identifier: P01754
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Recorded dementia diagnoses, January 2017
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NHS Digital collect and publish data about people with dementia so that the NHS (GPs and commissioners) can make informed choices about how to plan their services around their patient's needs. This summary of recorded dementia diagnoses data for 2016-17 includes recorded prevalence and how this compares with research based studies at different ages. It also presents estimated diagnosis rates for those aged 65 and over and regional comparisons on the prescribing of anti-psychotic medication to people with dementia.
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We collect and publish data about people with dementia at each GP practice, so that the NHS (GPs and commissioners) can make informed choices about how to plan their services around their patient’s needs. This publication covers key facts taken from the monthly Recorded Dementia Diagnoses publications released between April 2018 and March 2019. The special topics covered in this publication include an ARIMA forecast of estimated diagnosis rate, as well as a closer look at the changes in diagnosis rate over the course of the year.
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Patients in England with a record of dementia diagnosis on their clinical record.
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The objective of the Quality and Outcomes Framework (QOF) is to improve the care patients are given by rewarding practices for the quality of care they provide to their patients, based on several indicators across a range of key areas of clinical care and public health. This publication provides data for the reporting year 1 April 2024 to 31 March 2025 and covers all General Practices in England that participated in QOF in 2024-25. Payment protection has been applied to some indicators in 2024-25. More information on payment protection can be found in the ‘Technical Annex’ which forms part of this publication and QOF guidance found under 'Related Links'. GP practices have been mapped to their respective PCNs, Sub ICB Locations, ICBs and Regions using reference data current on 1 April 2025. This mapping has been applied to data for both the current and previous reporting year. Please note, the ‘Indicator definitions.xlsx’ file has been discontinued. This information (indicator IDs, descriptions and point values) is still available in the ‘MAPPING_INDICATORS.csv’ file, which can be accessed via the ‘Raw data.csv’ files download from the Resources section below.
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These official statistics provide findings for England from the Mental Capacity Act 2005, Deprivation of Liberty Safeguards (DoLS) data collection for the period 1 April 2023 to 31 March 2024. DoLS are a legal framework applying to individuals who lack the mental capacity to consent to the arrangements for their care. Where such care may amount to a "deprivation of liberty" the arrangements are independently assessed to ensure they are in the best interests of the individual concerned. The data is collected from local authorities in England, who are the supervisory bodies for authorising deprivations of liberty of adults in care homes and hospitals. The aim of this publication is to inform users about aspects of DoLS activity, including the profile of people for whom a DoLS application was received, applications completed and their outcome, and applications not completed. This page presents the key facts and data tables. Further chapters give more detailed key information about data quality, how the data should be used, how the data was collected and collated (Introduction and Key Points chapter) and background about DoLS (Background Supporting Information). The DoLS dashboard, which is an interactive business intelligence tool published alongside the data tables, presents further insight of the data including breakdowns by local authority.
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This indicator measures how many people with specific long-term conditions, which should not normally require hospitalisation, are admitted to hospital in an emergency. These conditions include, for example, diabetes, epilepsy and high blood pressure. This outcome is concerned with how successfully the NHS manages to reduce emergency admissions for all long-term conditions where optimum management can be achieved in the community. Legacy unique identifier: P01749
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This publication providers the results from the 2024 Patient-Led Assessments of the Care Environment (PLACE) Programme. PLACE assessments are an annual appraisal of the non-clinical aspects of NHS and independent/private healthcare settings, undertaken by teams made up of staff and members of the public (known as patient assessors). The team must include a minimum of 2 patient assessors, making up at least 50 per cent of the group. PLACE assessments provide a framework for assessing quality against common guidelines and standards in order to quantify the facility’s cleanliness, food and hydration provision, the extent to which the provision of care with privacy and dignity is supported, and whether the premises are equipped to meet the needs of people with dementia or with a disability. The PLACE collection underwent a major national review between 2018 – 2019, significantly revising the question set and guidance documentation. Annual review continues before each programme to ensure this collection remains relevant and delivers its aims. The 2019 established a new baseline, and scores are not comparable with any previously published. From 2022, we enforced minimum patient assessor numbers and ratios, and assessments not meeting this standard were excluded from the national results (and therefore are not comparable to previous datasets). Users should also bear in mind that the 2022 programme was heavily impacted by the covid-19 pandemic (and received fewer completed assessments), so 2023 and 2024 results should not be compared with earlier years.
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This analysis looks at Quality Outcomes Framework (QOF) recorded dementia diagnoses for 2012-13 and 2013-14. To support monitoring of progress towards the ambitions of the Dementia Challenge, Department of Health (DH) and NHS England requested that the HSCIC release the QOF dementia register data for 2013-14 early, ahead of the full publication of QOF Achievement, prevalence, and exceptions data scheduled for October 2014. Data for 2013-14 are provisional and will be updated in the full publication. This is the first time that data such as this have been released early.
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NHS England collect and publish data about people with dementia at each GP practice in England, to enable NHS GPs and commissioners to make informed choices about how to plan their dementia services around patients’ needs. The publication includes the rate of dementia diagnosis. As not everyone with dementia has a formal diagnosis, this statistic compares the number of people thought to have dementia with the number of people diagnosed with dementia, aged 65 and over. Where current monthly data for a GP practice is unavailable, the most recent data available are used (up to a maximum of 6 months). Prior to October 2022, dementia data was collected via the dementia data core contract service and published as the "Recorded Dementia Diagnoses" series. The data in these two publication series are not comparable. This is due to the retrospective application of codes to patient records and changes in patient registration, as well as differences in coverage and the specification of several the counts. Refer to the ‘Related Links’ for the supporting information page where details on these changes can be found.