A list of NIH-supported repositories that accept submissions of appropriate scientific research data from biomedical researchers. It includes resources that aggregate information about biomedical data and information sharing systems. Links are provided to information about submitting data to and accessing data from the listed repositories. Additional information about the repositories and points-of contact for further information or inquiries can be found on the websites of the individual repositories.

A listing of NIH supported data sharing repositories that make data accessible for reuse. Most accept submissions of appropriate data from NIH-funded investigators (and others), but some restrict data submission to only those researchers involved in a specific research network. Also included are resources that aggregate information about biomedical data and information sharing systems. The table can be sorted according by name and by NIH Institute or Center and may be searched using keywords so that you can find repositories more relevant to your data. Links are provided to information about submitting data to and accessing data from the listed repositories. Additional information about the repositories and points-of-contact for further information or inquiries can be found on the websites of the individual repositories.

The NIH Common Data Elements (CDE) Repository has been designed to provide access to structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes. Visit the NIH CDE Resource Portal for contextual information about the repository.

The goal of BioLINCC is to facilitate and coordinate the existing activities of the NHLBI Biorepository and the Data Repository and to expand their scope and usability to the scientific community through a single web-based user interface.

This dataset aggregates information about 191 research data repositories that were shut down. The data collection was based on the registry of research data repositories re3data and a comprehensive content analysis of repository websites and related materials. Documented in the dataset are the period in which a repository was active, the risks resulting in its shutdown, and the repositories taking over custody of the data after.

In the age of digital transformation, scientific and social interest for data and data products is constantly on the rise. The quantity as well as the variety of digital research data is increasing significantly. This raises the question about the governance of this data. For example, how to store the data so that it is presented transparently, freely accessible and subsequently available for re-use in the context of good scientific practice. Research data repositories provide solutions to these issues.

Considering the variety of repository software, it is sometimes difficult to identify a fitting solution for a specific use case. For this purpose a detailed analysis of existing software is needed. Presented table of requirements can serve as a starting point and decision-making guide for choosing the most suitable for your purposes repository software. This table is dealing as a supplementary material for the paper "How to choose a research data repository software? Experience report." (persistent identifier to the paper will be added as soon as paper is published).

This dataset tracks the updates made on the dataset "NIH Data Sharing Repositories" as a repository for previous versions of the data and metadata.

A database which contains longitudinal structural MRIs, spectroscopy, DTI and correlated clinical/behavioral data from approximately 500 healthy, normally developing children, ages newborn to young adult.

This file collection is part of the ORD Landscape and Cost Analysis Project (DOI: 10.5281/zenodo.2643460), a study jointly commissioned by the SNSF and swissuniversities in 2018.

Please cite this data collection as: von der Heyde, M. (2019). Data from the International Open Data Repository Survey. Retrieved from https://doi.org/10.5281/zenodo.2643493

Further information is given in the corresponding data paper: von der Heyde, M. (2019). International Open Data Repository Survey: Description of collection, collected data, and analysis methods [Data paper]. Retrieved from https://doi.org/10.5281/zenodo.2643450

Contact

Swiss National Science Foundation (SNSF)

Open Research Data Group

E-mail: ord@snf.ch

swissuniversities

Program "Scientific Information"

Gabi Schneider

E-Mail: isci@swissuniversities.ch

BRADS is a repository for data and biospecimens from population health research initiatives and clinical or interventional trials designed and implemented by NICHD’s Division of Intramural Population Health Research (DIPHR). Topics include human reproduction and development, pregnancy, child health and development, and women’s health. The website is maintained by DIPHR.

The NIDDK Central Repository stores biosamples, genetic and other data collected in designated NIDDK-funded clinical studies. The purpose of the NIDDK Central Repository is to expand the usefulness of these studies by allowing a wider research community to access data and materials beyond the end of the study.

Objective To characterise experiences using clinical research data shared through the National Institutes of Health (NIH)'s Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC) clinical research data repository, along with data recipients’ perceptions of the value, importance and challenges with using BioLINCC data. Design and setting Cross-sectional web-based survey. Participants All investigators who requested and received access to clinical research data from BioLINCC between 2007 and 2014. Main outcome measures Reasons for BioLINCC data request, research project plans, interactions with original study investigators, BioLINCC experience and other project details. Results There were 536 investigators who requested and received access to clinical research data from BioLINCC between 2007 and 2014. Of 441 potential respondents, 195 completed the survey (response rate=44%); 89% (n=174) requested data for an independent study, 17% (n=33) for pilot/preliminary analysis. Commonly cited reasons for requesting data through BioLINCC were feasibility of collecting data of similar size and scope (n=122) and insufficient financial resources for primary data collection (n=76). For 95% of respondents (n=186), a primary research objective was to complete new research, as opposed to replicate prior analyses. Prior to requesting data from BioLINCC, 18% (n=36) of respondents had contacted the original study investigators to obtain data, whereas 24% (n=47) had done so to request collaboration. Nearly all (n=176; 90%) respondents found the data to be suitable for their proposed project; among those who found the data unsuitable (n=19; 10%), cited reasons were data too complicated to use (n=5) and data poorly organised (n=5). Half (n=98) of respondents had completed their proposed projects, of which 67% (n=66) have been published. Conclusions Investigators were primarily using clinical research data from BioLINCC for independent research, making use of data that would otherwise have not been feasible to collect.

"The NICHD Data and Specimen Hub (DASH) is a centralized resource that allows researchers to share and access de-identified data from studies funded by NICHD. DASH also serves as a portal for requesting biospecimens from selected DASH studies.". This dataset is associated with the following publication: Deluca, N., K. Thomas, A. Mullikin, R. Slover, L. Stanek, D. Pilant, and E. Hubal. Geographic and demographic variability in serum PFAS concentrations for pregnant women in the United States. Journal of Exposure Science and Environmental Epidemiology. Nature Publishing Group, London, UK, 33(1): 710-724, (2023).

Spreadsheet listing data repositories that are recommended by Scientific Data (Springer Nature) as being suitable for hosting data associated with peer-reviewed articles. Please see the repository list on Scientific Data's website for the most up to date list.

Data on Calcium Dynamics based on calcium indicators Salsa6F and Fluo4 in astrocytes in response to photolysis

The attached data sets provides an overview of the landscape of research data repositories in 2015. They are based on an analysis of the re3data - registry of research data repositories from December 2015.

This file collection is part of the ORD Landscape and Cost Analysis Project (DOI: 10.5281/zenodo.2643460), a study jointly commissioned by the SNSF and swissuniversities in 2018.

Please cite this data collection as: von der Heyde, M. (2019). Data and tools of the landscape and cost analysis of data repositories currently used by the Swiss research community. Retrieved from https://doi.org/10.5281/zenodo.2643495

Connected data papers are: von der Heyde, M. (2019). Open Data Landscape: Repository Usage of the Swiss Research Community: Description of collection, collected data, and analysis methods [Data paper]. Retrieved from https://doi.org/10.5281/zenodo.2643430 von der Heyde, M. (2019). International Open Data Repository Survey: Description of collection, collected data, and analysis methods [Data paper]. Retrieved from https://doi.org/10.5281/zenodo.2643450

Connected data sets are: von der Heyde, M. (2019). Data from the Swiss Open Data Repository Landscape survey. Retrieved from https://doi.org/10.5281/zenodo.2643487 von der Heyde, M. (2019). Data from the International Open Data Repository Survey. Retrieved from https://doi.org/10.5281/zenodo.2643493

Contact

Swiss National Science Foundation (SNSF)

Open Research Data Group

E-mail: ord@snf.ch

swissuniversities

Program "Scientific Information"

Gabi Schneider

E-Mail: isci@swissuniversities.ch

This dataset tracks the updates made on the dataset "NIH Common Data Elements Repository" as a repository for previous versions of the data and metadata.

Data file is composed of two sheets. First sheet includes raw data: colony numbers for each salicylic acid concentration and exposure time with their repetitions. Second sheet includes means of the log(colony numbers) and standart deviations. These were used to interpret the results and calculate EC50 values.

This dataset tracks the updates made on the dataset "National Institute of Health (NIH) Intramural Research Reports" as a repository for previous versions of the data and metadata.