This dataset contains the anonymised transcripts of the interviews conducted between November and December 2021 at the department of Classical Philology and Italian Studies (FICLIT) at the University of Bologna. It further includes the qualitative data analysis of the interviews, carried out using a grounded theory approach and the open source software QualCoder version 2.9.

This dataset is an ATLAS.ti copy bundle that contains the analysis of 86 articles that appeared between March 2011 and March 2013 in the Dutch quality newspaper NRC Handelsblad in the weekly article series 'the last word' [Dutch: 'het laatste woord'] that were written by NRC editor Gijsbert van Es. Newspaper texts have been retrieved from LexisNexis (http://academic.lexisnexis.nl/). These articles describe the experience of the last phase of life of people who were confronted with approaching death due to cancer or other life-threatening diseases, or due to old age and age-related health losses. The analysis focuses on the meanings concerning death and dying that were expressed by these people in their last phase of life. The data-set was analysed with ATLAS.ti and contains a codebook. In the memo manager a memo is included that provides information concerning the analysed data. Culturally embedded meanings concerning death and dying have been interpreted as 'death-related cultural affordances': possibilities for perception and action in the face of death that are offered by the cultural environment. These have been grouped into three different ‘cultural niches’ (sets of mutually supporting cultural affordances) that are grounded in different mechanisms for determining meaning: a canonical niche (grounding meaning in established (religious) authority and tradition), a utilitarian niche (grounding meaning in rationality and utilitarian function) and an expressive niche (grounding meaning in authentic (and often aesthetic) self-expression. Interviews are in Dutch; Codes, analysis and metadata are in English.

The first step in a behavioral study is represented by the organization of a suitable ethogram, that is, a formal description of individual components of the behavior. Then, each component of such a behavioral repertoire can be quantified (e.g., how many times it occurs, its duration, percent distribution, latency, etc.). However, it is our contention that the possibility to describe the behavior of a living being by means of hundreds or even thousands of numbers concerning isolated components, disjointed from the comprehensive behavioral architecture, does not imply the possibility to use those numbers to reconstruct the meaning of behavior. Such a level of comprehension requires a qualitative approach based on the analysis of behavioral structure and its underlying dynamics. By means of synergic utilization of quantitative and qualitative data a more complete description of a given behavior becomes available. In present study we discuss results obtained from observations of feeding behavior in two groups of male Wistar rats: a control group, under standard diet, and a second group, under hyperglycidic one. Results have been presented both in terms of quantitative evaluations and in terms of structural/qualitative ones, the latter obtained by means of T-pattern detection and analysis. As to quantitative results, mean durations showed a significant reduction of Walking and Feeding and an increase of Hind-Paw Licking and Body Grooming; concerning mean occurrences, a significant increase of Front-Paw Licking, Hind-Paw Licking, and Body Grooming was present; percent distributions showed significant reductions for Walking and Feeding and a significant increase for all grooming activities. As to qualitative assessments, T-pattern analysis unveiled a clear-cut behavioral reorganization induced by the hyperglycidic diet. If on the one hand, 50 different T-patterns were detected in subjects under standard diet, on the other hand, 703 different T-patterns were discovered in animals under hyperglycidic treatment, with a highly significant increase of mean lengths and a significant reduction of mean occurrences of T-patterns. Synergic evaluation of results in terms of quantitative and qualitative aspects shows, in rats fed with hyperglycidic diet, an increased anxiety condition, likely dependent on food-related stimuli and suggestive of a pervasive craving-related behavior.

Abstract

The percentage of adolescents who do not drink alcohol seems to have increased in the Western world in the past years. However, alcohol abstainers are a particularly understudied group, especially in Switzerland. In order to fill in this gap, the objectives of this research were: (1) To describe the characteristics of alcohol abstainers and whether abstinence evolves into alcohol use over time; (2) To assess the reasons why some youths decide not to drink alcohol or, at the most, drink very moderately; and (3) To understand how abstinent youths live their choice, and how they are perceived/treated by their peers. To respond to the research questions, we plan to use an Explanatory Sequential Design: a mixed-methods design implying collecting and analyzing quantitative and then qualitative data in two consecutive phases within one study.

Geographic coverage

TREE: national / Switzerland

GenerationFRee : Canton of Fribourg

Qualitative part: French-speaking part of Switzerland, mainly canton of Vaud

Analysis unit

TREE1 : 3347 participants (longitudinal sample, after imputation and weights)

GenerationFRee 1645 participants (longitudinal sample, after imputation and weights)

Qualitative data : 63 participants, including non-consumers and consumers of alcohol, aged between 14 and 20 living in the French-speaking part of Switzerland and fluent in French

Universe

TREE: young people living in Switzerland who participated in the Programme for International Student Assessment (PISA) survey of the year 2000 and left compulsory school the same year (mean age 16 years at baseline). The sample was then followed annually.

GenerationFRee: students and apprentices (post-mandatory school) in the canton of Fribourg

Qualitative data: youth aged between 14 and 20 living in the French-speaking part of Switzerland and fluent in French

Kind of data

Qualitative and quantitative data

For quantitative data, we performed secondary analyses with no data collection.

Data are available on separated deposit: • TREE1 (original data) : https://doi.org/10.23662/FORS-DS-816-7 • TREE2 (original data) : https://doi.org/10.23662/FORS-DS-1255-1 • GenerationFREE (extract useful for this project) and qualitative data : https://doi.org/10.16909/dataset/37

Quantitative data GenerationFRee is a longitudinal (4 waves) study carried in all post-mandatory schools in the canton of Fribourg among students and apprentices (aged 15-24 years, mean age of 16 at baseline). We used explanatory variables such as biological sex, age, place of birth, type of residence (rural, urban), family structure, academic track, school performance (self-assessment), relationship with the mother and the father, monthly available money, current tobacco smoking, current cannabis use, physical activity, social life, positive view of the future, family socioeconomic status (self-assessment), somatic health and emotional well-being. For the independent variable, alcohol status, the questions asked were Q1-“Do you drink alcohol?” and Q2-“Have you been drunk in the last 30 days?”. Q1 possible answers were “yes” or “no” and Q2 possible answers were: 1=“never”, 2=“1 to 2 times”, 3=”3 to 9 times”, 4= “10 times or more”. The categories were defined as: - Abstinent: answer “no” to Q1 - Light drinkers: Q1=”yes”, Q2=”1” (ever used alcohol but never been drunk) - Heavy drinkers: Q1=”yes”, Q2=”2”, “3” or “4” (ever used alcohol and been drunk in the last 30 days

The TREE1 cohort is a longitudinal study based on a sample of more than 6000 young people living in Switzerland who participated in the Programme for International Student Assessment (PISA) survey of the year 2000 and left compulsory school the same year (mean age 16 years at baseline). The sample was followed annually from 2001 to 2007 and additionally in 2010 and 2014 for a total of nine waves. The TREE2 cohort is the second of the TREE cohorts. The design is the same, with a baseline in 2016 (mean age 16 years at baseline) and an annual wave since 2017, with only the first two waves available for analysis at the moment. For the TREE cohorts, the question included in the questionnaire was “How many times have you drank alcohol in the last month?” The possible answers ranged from 1 [Never] to 5 [Every day]. Three categories were defined for the current analysis: • Abstinent (Never); • Light drinkers (1-3 times per month); • Heavy drinkers (weekly or more often).

Qualitative data The objectives of the qualitative research were to explore how young people define the term ‘abstinence’; to explore their opinions on the Dry January challenge; to assess the reasons why some young people decide not to drink alcohol; to assess the advantages and disadvantages of non-consumption of alcohol; to understand how young non-drinkers live their choice and how they are perceived/treated by their peers; to identify strategies used by non-drinkers to avoid alcohol use while still socializing with their friends. In order to extract the different themes and dimensions raised by the participants, we carried out a thematic content analysis, a method of extracting subjective interpretations and meanings using a process of classification and categorisation of the data

Sampling procedure

The procedures are indicated on the dataset-specific repositories.

Mode of data collection

Procedures are available on the relevant dataset-specific pages.

Cleaning operations

The procedures are indicated on the dataset-specific repositories.

BackgroundCurrently, the biggest issue facing the entire world is mental health. According to the Ethiopian Ministry of Health, nearly one-fourth of the community is experiencing any of the mental illness categories. Most of the cases were treated in religious and traditional institutions, which the community most liked to be treated. However, there were very limited studies conducted to show the level of mental health literacy among traditional healers.AimsThe study aimed to assess the level of mental health literacy and its associated factors among traditional healers toward mental illness found in Northeast, Ethiopia from September 1-30/2022.MethodA mixed approach cross-sectional study design was carried out on September 130, 2022, using simple random sampling with a total sample of 343. Pretested, structured questionnaires and face-to-face interviews were utilized for data collection. The level of Mental Health Literacy (MHL) was assessed using the 35 mental health literacy (35-MHLQ) scale. The semi-structured checklist was used for the in-depth interview and the FGD for the qualitative part. Data was entered using Epi-data version 4.6 and, then exported to SPSS version 26 for analysis. The association between outcome and independent variables was analyzed with bivariate and multivariable linear regression. P-values < 0.05 were considered statistically significant. Thematic analysis was used to analyze the qualitative data, and the findings were then referenced with the findings of the quantitative data.ResultsThe findings of this study showed that the sample of traditional healers found in Dessie City scored a total mean of mental health literacy of 91.81 ± 10:53. Age (β = -0.215, 95% CI (-0.233, -0.05), p = 0.003, informal educational status (β = -5.378, 95% CI (-6.505, -0.350), p = 0.029, presence of relative with a mental disorder (β = 6.030, 95% CI (0.073, 7.428),p = 0.046, getting information on mental illness (β = 6.565, 95% CI (3.432, 8.680), p =

Interview data on a sample of software startups focusing on the early stages of their evolution paths.

Summary of qualitative analysis of the data done with NVivo11 in a study focusing on the software startups from the viewpoints of resource-based-view and human capital theories. Human captital, defined as one type of resources in resource-based-view theory, is defined in existing research broadly as a set of capabilities, knowledge, skills, education, experience, and other similar human attributes, and seen as a source of economic growth at all levels from an individual to nations and the world.The qualitative analysis of the interview data was done to answer the following research questions: 1) What are the engineering-related capabilities necessary for creating a product in a software startup?, 2) What are the means to acquire the necessary capabilities?, and 3) What are the reasons for deploying different capability-acquiring means?

The findings of the analysis were used for drawing conclusions, how the established theories, resource-based-view and human capital theories, fit to the actual situations in software startups.

This research selected three cities as case studies in Brazil (Pelotas, Belo Horizonte, and Brasilia) and three cities as case studies in the UK (Edinburgh, Manchester and Glasgow). The case study cities represented a broad spectrum of urban areas, in terms of demography (mixed tenures by age), inequality (health and social disparities between high and low income groups), topography (different types of urban densities and form) and urban development (varying levels of physical transformation and change). Within each of the case study cities, three neighbourhoods were selected as study sites reflecting a diversity in population density and income levels (measures guided by previous research examining neighbourhood satisfaction amongst older adults). The neighbourhoods comprised a mix of low, medium and high income and low, medium and high-density areas. Neighbourhood level analysis has been chosen because: (i) the greatest time spent by older adults in retirement is at home and in the immediate neighbourhood locality, (ii) older adults are increasingly dependent upon social relationships in the neighbourhood as they age; and (iii) older adults have important psychological and emotional bonds and association with the neighbourhood (as community). As part of the first work package of the research, a total number of 180 semi-structured interviews (30 per case study city; 10 per neighbourhood) were conducted with older adults to explore the in-depth experiences of ageing-in-place. The interviews identified how sense of place is negotiated and constructed (meaning, identity, belonging), identifying everyday behaviours within the built environment, and the importance of specific social and cultural supports.

Ageing populations in Brazil and the UK have generated new challenges in how to best design living environments that support and promote everyday social engagement for older people. The ageing-in-place agenda posits that the preferred environment to age is the community, enabling older people to retain a sense of independence, safety and belonging. Encouraging older adults to remain in their communities has contributed to planning and design concepts such as Age-Friendly Cities and Communities, Lifelong Homes and Liveable Neighbourhoods. However, current urban planning and development models have overlooked the notion of sense of place, articulated through supports for active living, social participation and meaningful involvement in the community. Integrating sense of place into the built environment is essential for supporting active ageing, ensuring that older adults can continue to make a positive contribution in their communities and potentially reducing health and social care costs. This project has three core aims: (i) to investigate how sense of place is experienced by older people from different social settings living in diverse neighbourhoods in Brazil and the UK; (ii) to translate these experiences into designs for age friendly communities that support sense of place; and (iii) to better articulate the role of older adults as active placemakers in the design process by involving the community at all stages of the research. We will undertake fieldwork in a total of 18 neighbourhoods (of varying densities and income levels) across 6 case study cities in Brazil (Pelotas, Porto Alegre, and Brasilia) and the UK (Edinburgh, Manchester and Glasgow). We will use a range of methods to achieve the project aims, including sense of place surveys and semi-structured interviews alongside experiential methods including 'go along' walks, photo and video diaries and community mapping exercises to capture the place-based needs of older adults. The new data generated will answer the following research questions: (i) How is sense of place experienced by older adults from different social classes living in diverse neighbourhoods in Brazil and the UK? (ii) What services, amenities and features are needed to create age friendly communities that promote healthy cities and active ageing in different urban and cultural contexts? (iii) How can communities be designed to better integrate the sense of place needs of older adults across different urban and cultural contexts? A community-based participatory approach will be adopted to the research, bringing together all stakeholders in a process of collaborative dialogue and co-design to challenge the hierarchical power relationships that exist when planning 'for' and not 'with' older people. The results will be used to co-create place-making tools and resources which are essential for designing age friendly environments for older adults. Findings will be disseminated to community, policymaker, practitioner and academic audiences through ongoing and end of project knowledge translation activities.

The quantitative and qualitative datasets comprise data from the HOPEVOL study a national study of appropriate hospice care in the Netherlands. This study contains multiple datasets 1) HOPEVOL1 and HOPEVOL2study: The raw data from two dataset were merged to one complete set containing data from 803 patients admitted to hospices in the Netherlands in 2017 and 2018. In total 266 variables were collected from all patients. 2) HOPEVOL1 en HOPEVOL2 report The datasets comprises data from 204 patients contributed to an indepth symptom management practices overview, containing information on practices of 14 symptoms and use of three PROMS in total 296 variables 3) A data dictionary of all data collected in HOPEVOL1 and HOPEVOL2 in Dutch 4) HOPEVOL_hospice_characteristics: comprises information of structure and process of care of 42 hospices in 149 variables. 5) Dignity_caregiver: qualitative data, transcriptions of focusgroups interviews with caregivers working in hospices in the Netherlands discussing dignity and dignity conserving care practices in daily hospice care. 6) Dignity_patient: qualitative data: transcriptions of of interviews with patients exploring the meaning of dignity and dignity conserving care form the patient perspective. 7) Dignity_patient_dignity_inventory; contains patient characteristics, PDI outcomes and USD4D outcomes of 99 patients admitted to hospices in the Netherlands in 2021.

These datasets are part of a research on open data in the municipality of Delft. The research is focused on motivation perspectives of citizens to engage in democratic processes by using open data. By doing this, the municipality can adapt their policy on open data to the characteristics of (potential) users and the wishes of the citizens. To identify these motivation perspectives, Q-methodology was used. A survey was used that asks participants to rank a number of statements. The survey that is made is spread among citizens of Delft. In total, 22 people participated in the survey. The gathered data is used to conduct a factor analysis and identify motivation perspectives among citizens of Delft. These datasets contain the gathered Q-sorts and the conducted analyses.

Project Overview This study aims to highlight the meanings of the child to people living in a married couple in Benin. It stems from a larger data collection work on the understanding of high fertility among married Beninese based on their social representations of the child, medical contraception, abortion as well as their perceptions of the determinants of negotiation of the use of medical contraception in the married couple. To achieve this, semi-structured individual interviews were conducted with 30 volunteers of both sexes aged 18 and over. Analysis of the data shows that the respondents carry meanings of the child that are deeply rooted in the cultural realities of Benin or at the very least very out of step with the objectives of contraceptive propaganda. Thus, the government must consider these meanings of the child to optimize its fertility decline policy in Benin. Data Overview The shared data consist of a table listing the codes employed, their definitions, and relevant excerpts. The full transcripts cannot be shared due to participant confidentiality protections.

The objective was to identify innovative strategies that may increase recruitment and/or retention of groups less represented in chronic disease clinical research. A systematic review was conducted. Inclusion criteria were: (a) NIH-defined racial and ethnic minority groups and clinical research; (b) evidence-based, clinical research recruitment and/or retention strategies involving the leading causes of mortality and morbidity in the United States; (c) conducted in the United States; and (d) qualitative design. Data exploring the strategies were extracted and thematically analyzed. Twenty-seven studies were included. Studies focused on cancer (70%), recruitment (93%), and perspectives from clinicians (63%). The most referenced strategies were education (44%), communication (48%), and community-based participatory research (63%). Critical themes include empowerment, transparency, trust, and sustainability. Strategies must prioritize the community and be implemented sustainably, where cultural humility and community-based participatory research are foundational. Methods We adhered to and adapted the Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) guidelines, Enhancing the Quality and Transparency of Health Research (EQUATOR) guidelines, and The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) checklist to report this completed systematic review and meta-synthesis. Eligibility criteria Briefly, we included studies with qualitative or mixed methods research designs, were conducted in the U.S., published in English or Spanish in a peer-reviewed journal between 2009 and 2024, and that demonstrated evidence-based recruitment and/or retention strategies for clinical research focused on the leading causes of morbidity and mortality in the U.S. as determined by the Centers for Disease Control and Prevention (CDC). Studies spanning ten years from 2009 were initially selected; this was later updated to include fifteen years from 2009 to reflect the increasing significance and importance of this work during this period. Eligible studies targeted ethnic and racial minorities defined by the NIH. Studies included all ages and used the NIH definition of clinical research. Information sources and search strategy The literature search strategy was developed in collaboration with the review team and trained biomedical librarians (NT and AL) at the National Institutes of Health (NIH). The search strategy was created using a combination of text words and the controlled vocabulary terms in the following databases: (PubMed (MeSH) Medical Subject Headings, Embase - EMTREE, and CINAHL subject headings. The search was refined using an iterative process and finalized by the review team members and librarians. For each search strategy, the search terms included these text words and controlled vocabulary when available: underrepresented, minority, racial and ethnic groups, clinical research, and disparities. The following databases were searched: PubMed (National Library of Medicine), Embase (Elsevier), CINAHL Plus (Cumulative Index to Nursing and Allied Health Literature - EBSCOhost), and Web of Science Core Collection (Clarivate Analytics). The following limits were applied using the filters available in each database. The search was limited to human studies only and was limited to studies conducted in the United States. The final search strategy can be found in the S2 Appendix. Selection process Covidence systematic review software (Veritas Health Innovation, Melbourne, Australia; www.covidence.org) imported studies and automatically excluded duplicates. All stages of the screening, data extraction, and quality assessment were independently conducted by members of the review team (CJP, JMG, AK, MW, LA, and JGG). The review team was composed of six members. The review team first screened titles and abstracts to identify studies that met the inclusion criteria. Next, the full texts of studies included during the title and abstract were screened using the same eligibility criteria. Each article was screened by two reviewers and conflicts between reviewers were resolved by consensus discussion with the review team. Data collection process & data items Data from each included study were collected by two reviewers using Covidence. The following outcomes of interest were extracted: focus on recruitment, retention, or both; and a description of the evidence-based strategies. We extracted data on study characteristics, including year of publication and condition of interest, including subtype for cancer. Additionally, we extracted characteristics including race and ethnicity, sex assigned at birth if applicable, geography (urban or rural), and role in clinical research (e.g., participant, clinician (i.e., medical or research staff), community leader, etc.). Study risk of bias assessment For the quality assessment, we evaluated the following domains: (a) role of the researcher; (b) sampling method; (c) data collection method; and (d) analysis method, which were identified as all criteria met or criteria partially met. We followed the adapted guidelines and conceptual domains of the Critical Appraisal Skills Programme (CASP) quality assessment tool to assess the quality of studies. Two reviewers assessed the risk of bias for each included study and resolved disagreements by consensus discussion with the review team. Synthesis methods A thematic synthesis was operationalized for the data analysis, where we analyzed the findings and developed inductive and deductive codes using qualitative synthesis methodologies and established guidelines. The thematic synthesis utilized an iterative process grounded in qualitative thematic analysis methodologies. We initially developed a deductive coding scheme, focusing on direct meaning and content that highlighted evidence-based strategies and direct quotations from study participants. The team discussed and created the codebook, and then each code was defined. Discrepancies or additional deductive codes were added and discussed by the team for consensus. Each study was coded independently by reviewers. Inductive codes were later added to describe high-level interpretation and themes. Both deductive and inductive codes existed in our codebook using this iterative process. Further analysis was conducted where strategies and themes were summarized into a conceptual model emphasizing key elements for the recruitment and retention of racial and ethnic groups historically underrepresented in clinical research.

This presentation was given at IDCC 2025 and appended with a structural overview of the proposed network. The subtitle was added for context during publication. Although well-trained staff at the facility can help with research data management requests, they are generally not able to handle all cases orare not provided for in the facilities. This is where domain-specific helpdesks come into play, providing additional expertise. However, eventhese staff soon reach their limits in tricky scenarios resulting from variety of data formats, workflows and available repositories. Agriculturaldata management requests for example may range from large geodata to growth parameters all the way to genetic information and the properhandling of qualitative data. In these cases, it is paramount to be able to rely on a functioning network of associated data stewards who areexperts in their (sub)field of research to engage with expertise requested. In this talk, we will present our concept of associated data stewards:When a request reaches a helpdesk and goes beyond its respective expertise, it is forwarded to a committed data steward, researcher or poolthereof, from another - in this case European - institution to which the request fits thematically, methodologically or locally. The associated datastewards may answer the request and return it, or several data stewards from interlinking fields may discuss and iterate the request. Currently,the Leibniz Centre for Agricultural Landscape Research (ZALF, Germany), the Wageningen Data Competence Center (WDCC, TheNetherlands) and the Swedish University of Agricultural Sciences (SLU, Sweden) are piloting a domain-specific associated data stewardnetwork for agricultural research data management. In this talk, we will highlight the proposed setup and advantages of this network which hasthree important prerequisites: a) a clear definition of the agricultural sub-domains covered by each helpdesk including expertise of each datasteward, b) a mutual understanding of each other's workflows and technical solutions and c) a structured workflow used to distribute requestswhich also re-informs the original receiving helpdesk of the result of the request (monitoring and feedback) - all the while complying with dataprotection regulations. The presentation uses agricultural data as a real-life example but reflects on issues and possible solutions that apply toa variety of research domains.

Improving the quality of places is a crucial element in addressing the inequalities that exist across the UK. While standardised tools exist to structure conversations about place, the extent to which these capture inequalities remain unclear. This study examined the utility of the Place Standard Tool (PST) as a means of understanding inequalities in relation to place. A dataset of 8,218 PST responses collected in the north of England, and the PST itself, were analysed using an inequalities lens with a particular focus on the qualitative data collected through the tool. The results showed that despite limits to the demographic data recorded by the PST such as the lack of ethnicity and disability data, key themes relating to protected characteristic groups were captured in the data. The analysis identified the themes of ethnicity, gender, physical mobility, economic status, and housing situation as particularly prominent within the dataset, and reflects on how these themes affect people’s relationships with place. In its current form, the PST demonstrates an ability to improve understanding of inequalities in relation to place. However, extra consideration, particularly relating to ensuring the PST is applied equitably, and some adaptation of questions would unlock its full potential. Improving the quality of demographic data collected is a key part of improving the accuracy and equity of data collection.Responding proactively to gaps in response rates during data collection exercises can improve the overall quality of data collected, particularly for minority groups.Considering equitable and accessible ways to collect data using the Place Standard Tool is key to fulfilling its potential as a tool for examining inequalities in relation to place. Improving the quality of demographic data collected is a key part of improving the accuracy and equity of data collection. Responding proactively to gaps in response rates during data collection exercises can improve the overall quality of data collected, particularly for minority groups. Considering equitable and accessible ways to collect data using the Place Standard Tool is key to fulfilling its potential as a tool for examining inequalities in relation to place.

Abstract copyright UK Data Service and data collection copyright owner.

This is a qualitative data collection. This project aimed to explore the meaning of wellness and resilience for older people with osteoarthritis (OA) through a year-long qualitative study. This included looking at the relationship between resilience and use of health services; and at transitions in health experiences. A further aim was to explore the feasibility and acceptability of a longitudinal participant controlled method.

Interviews were carried out with 27 older people who reported a joint problem but rated themselves as healthy on a previous questionnaire. Diary sheets, asking about changes in health and circumstances, were sent to participants for 11 consecutive months after the first interviews. They could then choose each month whether and how to have further contact with the researchers. Of the 27 people who started in the study, five withdrew after the baseline interview and one half-way through the project when her husband became seriously ill. Most remaining participants returned all their diary sheets. Responses included brief notes, longer letters, email exchanges, two photos and a drawing. Other contact requested ranged from none through to four interviews, with most requesting a combination of phone calls and face-to-face contact. The participant-controlled method proved feasible and acceptable for participants and researchers.

A key element of wellness was being able to keep up everyday roles and activities. This required a level of physical functioning which joint pain and stiffness from (OA) could deleteriously affect. However, respondents had many ways of minimising the impact of OA symptoms, which included working through pain. If though, symptoms did not fit with their model of ’wear and tear’ arthritis- used to categorise arthritis viewed as a normal part of old age, then they were likely to consult. Resilience was tied into wellness. Having a sense of self as someone who would be able to keep going was vital and several factors appeared to influence this, including upbringing, previous experience of adversity, social relationships and feeling known and understood by health care practitioners.


Main Topics:

The main topics covered were wellness and resilience in older people with osteoarthritis.

Leadership and governance are key components of health systems, nevertheless research into leadership and governance of mental healthcare at the Primary Health Care (PHC) level is probably the least well researched and understood part of these systems. As part of assessing the integration of mental health at the PHC level in Ghana, the leadership and governance organisation and structures to ensure supervision and coordination were examined. A concurrent triangulation mixed-methods design involving both quantitative and qualitative research methods approach was adopted. The quantitative data were collected through a questionnaire, self-administered or interviewer administered, on 1010 respondents with 830 completed (response rate 82%). Key informant interviews and focus group discussions were used to collect the qualitative data. Thematic content analysis utilising NVivo 12 was applied for the qualitative field data. Stata SE16 was used for quantitative data. Data triangulation strategy was used to report the qualitative and quantitative results. The study showed that leadership and governance of mental health at the PHC level were partially developed, with a composite mean score of 2.53, due to the modest level of awareness of the Mental Health Law, inadequate functioning and coordination of mental health units, low private sector participation in mental health care services, and low levels of monitoring, supervision, and evaluation. This affected the integration of mental health at the PHC level, which was also gauged as low. The study concludes that despite the presence of legislation and policy aiming to achieve decentralised and integrated mental health services at the PHC level, mental health care is still a low-level priority within the health care system in Ghana and tends to operate within a silo. The study recommends that more practical and concerted leadership of mental health at the regional and district levels is required to drive decentralisation and integration at these levels.

Objectives

Screening in selected high risk populations for Barrett’s oesophagus (BO) and oesophageal varices (OVs) has been proposed, but there are obstacles with conventional oesophagogastroduodenoscopy (C-OGD), including patient acceptability. Portable and disposable office-based transnasal endoscopy (TNE) is a feasible and accurate alternative to C-OGD that may have use in primary and secondary care. This article outlines a qualitative analysis of patient experiences of TNE and C-OGD in order to gain an insight into an acceptable delivery of an endoscopic screening service.

Design

Purposeful sampling identified 23 participants who then underwent semi-structured interviews to determine their experiences of both procedures. Thematic analysis was conducted to derive meaning from their lived experiences.

Setting

A secondary care endoscopy unit, clinic room and interview room.

Participants

Patients referred for BO or OV surveillance and for endoscopy to investigate dyspepsi...

ABSTRACT Objective: To understand the meaning of well-being of older persons in situation of abandonment. Methods: a qualitative phenomenological study, carried out in a nursing home in Tepic, Nayarit, from 2017 to 2019. Intentional sampling with 12 older persons aged 60 and above. Data collection occurred by phenomenological interview. The ethical criteria of the General Health Law were respected. Participants signed the Informed Consent Form. Data analysis took place through phenomenological analysis. Results: four themes have emerged: 1. Living Activities of Daily Living; 2. Attention to physical needs; 3. Coexistence; 4. Spirituality experience. Conclusion: for older persons, living institutionalized implies a process of adaptation and transformation to their context and state of life, restructuring their needs that provide well-being. It is important to approach these scenarios to establish ways of experiencing aging that favor a full quality of life.

The stock represents all employees’ jobs for one year. For each job, a number of characteristics are given, for example type of contract, type of employee. It also indicates the period to which the data relate. The definition of &job & the basis for this file is an employment contract between a company and a person. That means that a person at one company cannot have more than one job at one time.

More information on how to access the data:

https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen

Population

All jobs of employees (at companies based in the Netherlands) for one year.

The aim of this metasynthesis review of published qualitative research was to investigate the lived experience and meaning ascribed to speech-generating devices (SGDs) by people with complex communication needs and their familiar communication partners. Bibliographic databases were searched up to June 2016, and selected articles were assessed for their relevance to the research aim. The metasynthesis included 21 original articles and resulted in the identification of six main themes, each of which was comprised of two or more sub-themes that related to the experience of using SGD: It’s an Inefficient Voice, It’s Not a Natural Voice, Making the Most of This Voice, It’s My Voice, It’s More Than a Voice, and Having a Voice: Being Heard. The findings depict how use of an SGD is a complex process of understanding the limitations of the device, acknowledging expectations of society, using strategies to optimize communication, being aware of what an SGD represents, and using the SGD to enable social participation and a sense of empowerment.

MBI questionnaire results over time periods T1–T4 [Mean + /− Standard Error of Mean (SEM)].