Abstract

The Longitudinal Aging Study in India (LASI) aims to understand the situation of India’s elderly population by collecting data on their health, social situations, and economic circumstances. It will provide a foundation for innovative, rigorous, and multidisciplinary studies of aging in India that will inform policy and advance scientific knowledge. Its goal is to provide data harmonized with the Health and Retirement Study (HRS) and its sister studies around the world. A pilot study has been conducted that includes household survey data, Computer-Assisted Personal Interviews (CAPI) and molecular biomarkers. The results of the pilot study will inform the design of a full-scale, nationally representative LASI, with a sample of roughly 30,000 to be followed longitudinally (with refresher populations added as needed). Due to its harmonized design with parallel international studies, LASI will contribute to scientific insights and policy development in other countries as well. LASI will ultimately be part of a worldwide effort aimed at understanding how different institutions, cultures, and policies can understand and prepare for population ageing.

Documentation

You can download the pilot data at the Harvard Program on the Global Demography of Aging website

Methodology

The LASI pilot survey targeted 1,600 individuals aged 45 and older and their spouses, and will inform the design and rollout of a full-scale, nationally representative LASI survey. The expectation is that LASI will be a biennial survey and will be representative of Indians aged 45 and older, with no upper age limit.

1,600 age-qualifying individuals were drawn from a stratified, multistage area probability sampling design. After a series of pre-pilot studies designed to test the instrument and the key ideas behind it, pilot data were collected through face-to-face interviews over three month time periods. Descriptive analyses of the data will be performed and lessons will be drawn to inform the launching of a full-scale LASI survey.

The LASI pilot survey was conducted in four states: Karnataka, Kerala, Punjab, and Rajasthan. To capture regional variation we have included two northern states (Punjab and Rajasthan) and two southern states (Karnataka and Kerala). Karnataka and Rajasthan were included in the Study on Global AGEing and Adult Health (SAGE), which will enable us to compare our findings with the SAGE data. The inclusion of Kerala and Punjab demonstrates our aim to obtain a broader representation of India, where geographic variations accompanied by socioeconomic and cultural differences call for careful study and deliberation. Punjab is an example of an economically developed state, while Rajasthan is relatively poor, with very low female literacy, high fertility, and persisting gender disparities. Kerala, which is known for its relatively efficient health care system, has undergone rapid social development and is included as a potential harbinger of how other Indian states might evolve.

The dataset was collated by Matthew Gentzkow, Jesse M. Shapiro and Matt Taddy (2018). The project combines the data and code into one folder, and alters paths within Rheault and Cochrane's code to incorporate this. The partial replication incorporates model creation scripts from the src folder of the Rheualt and Cochrane (2020) paper into a single Jupyter Notebook exclusively for recreating the 3 plots in Figure 2.The dataset is available under the ODC-BY 1.0 license, however this was unavailable in the license dropdown, so CC BY 4.0 was selected.Paper CitationLudovic Rheault and Christopher Cochrane. 2020. Word Embeddings for the Analysis of Ideological Placement in Parliamentary Corpora. Political Analysis 28(1): 112-133.@article{RHE20,author = {Ludovic Rheault and Christopher Cochrane},title = {Word Embeddings for the Analysis of Ideological Placement in Parliamentary Corpora},journal = {Political Analysis},year = {2020},volume = {28},number = {1},pages = {112-133}}Code (from the paper) Github repohttps://github.com/lrheault/partyembedDataset CitationGentzkow, Matthew, Jesse M. Shapiro, and Matt Taddy. Congressional Record for the 43rd-114th Congresses: Parsed Speeches and Phrase Counts. Palo Alto, CA: Stanford Libraries [distributor], 2018-01-16. https://data.stanford.edu/congress_text

Abstract

Avon Longitudinal Study of Parents and Children (ALSPAC)

Documentation

Based at the University of Bristol, the Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study.

Between April 1991 and December 1992 we recruited more than 14,000 pregnant women into the study and these women (some of whom had two pregnancies or multiple births during the recruitment period), the children arising from the pregnancy, and their partners have been followed up intensively over two decades.

We are the most detailed study of its kind in the world and we provide the international research community with a rich resource for the study of the environmental and genetic factors that affect a person’s health and development. Through our research we aim to inform policy and practices that will provide a better life for future generations.

Abstract

The Longitudinal Indian Family Health (LIFE) is a long-term research study that will examine socio-economic and environmental influences on children’s health and development in India. The main aim of the study is to understand the link between the environmental conditions in which Indian women conceive, go through their pregnancy and give birth, and their physical and mental health during this period.

The cohort comprises married women between 15 and 35 years of age (mean 22 years), recruited before pregnancy or in the first trimester of pregnancy, from 2009 to 2011. These CHVs focus on women in the village to ascertain pregnancy (by interview) and to educate and encourage the women to seek regular antenatal care and other health care services. REACH has enumerated all household members in these communities and mapped each dwelling by a geographical information system (GIS). During each visit, CHVs conduct interviews to collect and update information on demography and pregnancy. Since 2004, CHVs have been collecting data on infant deaths and birthweights in the population. Socio-demographic variables such as access to electricity, means of transportation and possession of audio-visual devices were collected from REACH database

Documentation

You can submit a proposal to collaborate with LIFE Study investigators. A written protocol must be submitted, reviewed and approved by the LIFE Data Sharing Plan Committee before initiation of new projects. For further information, contact Dr P. S. Reddy at [reddyps@verizon.net]. Updated information may be found on the research centre website at [www.sharefoundations.org].

Methodology

The LIFE study is being conducted in villages of Medchal Mandal, R.R.District, Telangana, India. Since 2009, 1227 women aged between 15 and 35 years were recruited before conception or within 14 weeks of gestation. Women were followed through pregnancy, delivery, and postpartum. Follow-up of children is ongoing. Baseline data were collected from husbands of 642 women.

Anthropometric measurements, biological samples and detailed questionnaire data were collected during registration, the first and third trimesters, delivery and at 1 month postpartum. Anthropometric measurements and health questionnaire data are obtained for each child, and a developmental assessment is done at 1, 6, 12, 18, 24, 36, 48 and 60 months. At 36 months, each child is screened for development and mental health problems. Questionnaires are completed for pregnancy loss and death of children under 5 years old. The LIFE Biobank preserves over 6000 samples.

Abstract

The Born in Bradford study is tracking the health and wellbeing of over 13,500 children, and their parents born at Bradford Royal Infirmary between March 2007 and December 2010.

Documentation

Born in Bradford is a prospective pregnancy and birth cohort established to examine how genetic, nutritional, environmental, behavioral and social factors affect health and development during childhood, and subsequently adult life, in a deprived multi-ethnic population. It was developed in close consultation with local communities, clinicians and policy makers with commitment from the outset to undertake research that would both inform interventions to improve health in the city and generate robust science relevant to similar communities in the UK and across the world. Between 2007 and 2011 information on a wide range of characteristics were collected from 12,453 women (and 3,356 partners) who experienced 13,778 pregnancies and delivered 13,818 live births.

Source

Notes

Data Presentation: Born in Bradford Data

Born in Bradford Data Dictionary

Born in Bradford has a number of unique strengths: a) Composition. Half of all the families recruited are living in the UK’s most deprived wards, and 45% are of Pakistani origin. Half of Pakistani-origin mothers and fathers were born outside the UK and over half are related to their partner. This combination enhances the opportunity to study the interplay of deprivation, ethnicity, migration and cultural characteristics and their relationship to social, economic and health outcomes research relevant to many communities across the world.

b) Rich characterization. Detailed information has been collected from parents about demographic, economic, lifestyle, cultural, medical and health factors. Pregnancy oral glucose tolerance tests (OGTT), have been completed in 85% of the cohort and in combination with repeat fetal ultrasound data and subsequent follow-up growth and adiposity (repeat skinfolds, weight and height from birth to current age) will enable BiB uniquely to explore ethnic differences in body composition trajectories through infancy and childhood.

c) Genetic and biomarker data. Maternal, neonatal and follow-up child blood samples have provided biomarker measures of adiposity and immunity, together with stored samples, for which funding has been secured, to assess targeted NMR metabolites in maternal pregnancy fasting samples, cord-blood and infant samples taken at 12-24 months. Genome wide data is available for 9000+ mothers and 8000+ children and funding has been secured for DNA methylation of 1000 mother-child pairs. Our BiB biobank contains 200,000 stored samples.

d) System-wide coverage. The study has successfully linked primary and secondary care, radiology, laboratory and local authority data. This successful data linkage to routine health and education data will allow life-time follow up of clinical outcomes for BiB children and their parents, and educational attainment for children.

e) Community involvement. Close links with members of the public and particularly with cohort members allow the co-production of research in terms of the identification of research questions, monitoring the demands research makes on participants and discussion of the implementation of findings. The study has strong community roots and city-wide support.

Full details of the cohort and related publications can be found on the website

Patient characteristics Children born in the city of Bradford Claims years: 2007-2011 12,453 women with 13,776 pregnancies and 3,448 of their partners Cord blood samples have been obtained and stored and DNA extraction on 10,000 mother\offspring pairs. Sex: Adults: 12,453 women, 3,448 males

Application

If you are interested in working with these data, the application packet, with examples, can be found here: Born in Bradford Application Packet