Patient-level data for adults and children who trigger an electronic alert for an acute kidney injury (AKI) in primary or secondary care in England.

The dataset contains self-reported patient-level data for adults with chronic kidney disease (CKD) who are under the care of NHS hospital renal centres in England. The data are collected using a survey called 'Your Health Survey' that includes identifiable information, socio-demographic information, a quality of life measure (EQ5D-5L), symptom measure (POS-S Renal) and patient activation measure (PAM). In 2016–2017 over 3,000 Your Health Surveys were collected by the UKRR as part of the quality improvement project ‘Transforming participation in chronic kidney disease’ and in 2018 ‘Transforming participation 2’ used the surveys to measure a coaching intervention in over 200 patients. See here for further information: https://renal.org/audit-research/data-permissions/data/ukrr-ckd-patient-measures-dataset/pam-and-prom-data

The dataset contains self-reported patient-level data for adults with chronic kidney disease (CKD) or an acute kidney injury (AKI) on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland, Scotland and Wales. The data are collected annually via a national survey. Kidney PREM data are anonymised and include socio-demographic information and 39 questions measuring patient experience of kidney care. The kidney PREM has been collected since 2016 and in 2019 almost 16,500 people treated at almost all of the UK’s adult renal centres participated. See here for further information: https://renal.org/audit-research/data-permissions/data/ukrr-ckd-patient-measures-dataset/kidney-prem-data

Percentage of missing original data (prior to multiple imputation) with respect to the prediction models’ variables, and according to data set.

The dataset contains patient-level data for adults and children with chronic kidney disease (CKD) or adults with an acute kidney injury (AKI) on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2. The data were collected weekly, but this is now moving to monthly, and include patient identifiable information and limited socio-demographic and clinical data. Public Health Scotland submits aggregate data to the UKRR on a monthly basis. Data collection commenced in March 2020 and coverage of renal centres is very good (see COVID-19 surveillance reports here: https://renal.org/audit-research/publications-presentations/report/covid-19-surveillance-reports).