39 datasets found
  1. Neurodivergent conditions of employees in the games industry in the UK 2021

    • statista.com
    Updated Apr 12, 2024
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    Statista (2024). Neurodivergent conditions of employees in the games industry in the UK 2021 [Dataset]. https://www.statista.com/statistics/1096492/neurodiversity-of-employees-in-the-games-industry-in-the-uk/
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    Dataset updated
    Apr 12, 2024
    Dataset authored and provided by
    Statistahttp://statista.com/
    Time period covered
    Sep 16, 2021 - Nov 16, 2021
    Area covered
    United Kingdom
    Description

    In 2021, 18 percent of the employees in the games industry in the United Kingdom (UK) were neurodivergent. Overall, seven percent of employees reported to having a learning difficulty such as dyslexia. A further four percent of the workers within the games industry self-reported to being autistic.

  2. i

    Swedish Sign Language Dictionary

    • incluset.com
    Updated 2011
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    Johanna Mesch; Lars Wallin; Thomas Björkstrand (2011). Swedish Sign Language Dictionary [Dataset]. https://incluset.com/datasets
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    Dataset updated
    2011
    Authors
    Johanna Mesch; Lars Wallin; Thomas Björkstrand
    Measurement technique
    Each sign entry on the web-based dictionary consists of sign demonstration, variants by one or two hands, usage examples (sentence), and photo and sign notation.
    Description

    This dictionary includes video files for signs in Swedish Sign Language created for general educational resources.

  3. Dataset: Economical Accommodations for Neurodivergent Students in Software...

    • zenodo.org
    bin, pdf, txt
    Updated Oct 15, 2022
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    Grischa Liebel; Grischa Liebel; Steinunn Gróa Sigurðardóttir; Steinunn Gróa Sigurðardóttir (2022). Dataset: Economical Accommodations for Neurodivergent Students in Software Engineering Education: Experiences from an Intervention in Four Undergraduate Courses [Dataset]. http://doi.org/10.5281/zenodo.7199162
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    pdf, txt, binAvailable download formats
    Dataset updated
    Oct 15, 2022
    Dataset provided by
    Zenodohttp://zenodo.org/
    Authors
    Grischa Liebel; Grischa Liebel; Steinunn Gróa Sigurðardóttir; Steinunn Gróa Sigurðardóttir
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    This dataset contains anonymised raw data and examples of accommodations made for neurodiverse students in four undergraduate courses in Computer Science and Software Engineering programmes. The dataset is published as a part of a book chapter in which we report the accommodations.

    Overall guidelines we followed, including their sources, are contained in guidelines.md.

    The raw data for the two surveys is contained in the two Excel files survey1.xlsx and survey2.xlsx. Free-text answers have been aggregated by neurodiverse and neurotypical students and anonymised, and are available in the files survey1_freetext_neurodiverse.txt, survey1_freetext_neurotypical.txt, survey2_freetext_neurodiverse.txt, and survey2_freetext_neurotypical.txt.

    The remaining files are examples of the adapted lecture slides and assignment texts. Here, files starting with WEBcourse are from a mandatory undergraduate course on web development, while files starting with SEcourse are from a mandatory undergraduate course giving an overview of Software Engineering.

  4. o

    Data from: Neurodiversity traits linked to Neanderthal admixture

    • osf.io
    Updated Jul 24, 2018
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    Gerit Pfuhl; Leif Ekblad (2018). Neurodiversity traits linked to Neanderthal admixture [Dataset]. https://osf.io/9t8eu
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    Dataset updated
    Jul 24, 2018
    Dataset provided by
    Center For Open Science
    Authors
    Gerit Pfuhl; Leif Ekblad
    Description

    Background. Among non-African populations, up to 6% of their genome has retained DNA from archaic hominins. While hybridizations were advantageous in adapting to out-of-Africa environments they have recently also been associated with disease risks (Simonti et al., 2016) and autism (Oksenberg et al., 2013). However, genome evolution operates primarily on gene networks, and alleles associated with increased risk may have undergone positive selection in the past and only become disadvantageous in modern life and culture. If autistic traits or, more generally, neurodiversity traits, are signatures of a Neanderthal or Denisovan admixture, the prevalence or strengths of those traits should vary with human migration and Neanderthal ancestry. We expect Europeans and East Asians are more closely related to each other than to Africans and to find strong autistic traits (at population level) in East Asians. Methods. We analysed over 500,000 responses from the Aspie Quiz which attracts people interested in how neurodiverse or neurotypical they are. The quiz yields two factors: a neurodiversity (ND) and a neurotypical (NT) score. Participants also indicated their ancestry. From the ancestry information we calculated a relatedness metric with hierarchical clustering. Results. Behavioural traits associated with neurodiversity (ND score) were most prevalent among participants indicating Eurasian ancestry and less prevalent among African and African-American participants. This data is less in favour for a single migration of modern humans out-of Africa. Discussion. Our results indicate a possible evolutionary explanation for autism. Autistic traits at the population level overlap with human admixture and migration, i.e. a closer relatedness among East Asian and Central Europeans than Africans. This finding uggests positive (or at least neutral) selection for genes / gene networks from Neanderthals. Indeed, autistic traits have been linked to Neanderthal alleles (Oksenberg et al., 2013). Our data is insufficient for disentangling cultural or other more recent influences on behavioural traits, nor can it measure the prevalence of neurodiversity. However, both recent evidence and our data suggests that autistic traits and neurodiversity come from Neanderthals.

  5. Data from: Learning About Neurodiversity at School (LEANS): Evaluation of...

    • osf.io
    Updated Oct 12, 2023
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    Alyssa M Alcorn; Sarah McGeown; William Mandy; Sue Fletcher-Watson (2023). Learning About Neurodiversity at School (LEANS): Evaluation of the LEANS resource pack in mainstream primary schools [Dataset]. https://osf.io/593hw
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    Dataset updated
    Oct 12, 2023
    Dataset provided by
    Center for Open Sciencehttps://cos.io/
    Authors
    Alyssa M Alcorn; Sarah McGeown; William Mandy; Sue Fletcher-Watson
    License

    Attribution-NonCommercial-NoDerivs 4.0 (CC BY-NC-ND 4.0)https://creativecommons.org/licenses/by-nc-nd/4.0/
    License information was derived automatically

    Description

    Background: The LEANS resource was co-developed by a neurodiverse team of researchers (including the authors listed on this pre-registration, in particular AA and SF-W) and eight experienced educators, including neurodivergent individuals. It was created through a process of design cycles (online meetings and individual preparation work) and resulted in 7 units: Introduction to neurodiversity, learning and thinking differently, communication and understanding, getting along together at school, is that fair?, different ways to make a friendship and neurodiversity in our classroom

    Purpose: The LEANS resource has been created to be delivered by teachers to whole classes of primary school pupils (age 8-11) to inform children about neurodiversity and to increase positive attitudes and intended actions towards neurodiversity and inclusion. Each of the 7 units are designed to communicate key points and combine hands-on activities, story content about a neurodiverse classroom and supporting materials (e.g., posters, videos) to do so.

    This preregistration is for the evaluation of LEANS which will test for changes in children’s knowledge of neurodiversity, and attitudes and intended actions in relation to neurodiversity and inclusion, following participation in LEANS (baseline and outcome-test measures to be completed by children).

    Although not included in this pre-registration, the LEANS evaluation will also include questions for all children about their perceptions of new knowledge and experiences of LEANS. In addition, individual interviews with children (n = ~20) with diagnosed/undiagnosed additional support needs, will be carried out, to learn about their experiences of LEANS and assess for potential harms. Furthermore, although not included in this pre-registration, the LEANS evaluation will also include data from teacher completed diaries during delivery of LEANS, to assess the acceptability and feasibility of LEANS for use in mainstream primary school classrooms.

    Note: this pre-registration does incorporate some content taken from teacher diaries regarding implementation fidelity. We will use teacher-self reports of their delivery of LEANS (e.g. any content missed-out or partially-delivered) for a sensitivity analysis excluding participants who exposure to LEANS learning materials falls below a pre-set threshold (see below for details).

    Research Questions

    1. Does engaging with the LEANS resource result in children being able to demonstrate knowledge of neurodiversity at outcome?
    2. Does engaging with the LEANS resource result in more positive attitudes and intended actions towards neurodiversity and inclusion, compared to baseline?

    Note on Measures:
    Knowledge of neurodiversity will be assessed via the Neurodiversity Knowledge Quiz (NDKQ), a measure created specifically for this project.

    One single item from the NDKQ (the “neurodiversity knowledge target item”) will also be administered at baseline to permit examination of change in knowledge.

    Two additional screening items (items 1 and 2) are included in the NDKQ to assess for engagement in LEANS. These will not be included when calculating the outcome variable, but will be used to screen participants for attention to the curriculum materials – a pre-requisite for knowledge. In a sensitivity analysis, we will repeat the main analysis after excluding children who fail both of these screening items – see Exclusions section for details.

    Attitudes and intended actions towards neurodiversity and inclusion will be assessed via the Attitudes and Actions Quiz (AAQ), a questionnaire created specifically for this project.

    Both questionnaires (including separate baseline and outcome versions of the AAQ) and a scoring guide are available as supplementary material

  6. d

    Ability and Neurodiversity (Public Sample)

    • dx.doi.org
    Updated May 14, 2023
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    Sophie Strassmann (2023). Ability and Neurodiversity (Public Sample) [Dataset]. http://doi.org/10.17605/OSF.IO/T4E37
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    Dataset updated
    May 14, 2023
    Dataset provided by
    Center For Open Science
    Authors
    Sophie Strassmann
    Description

    This is a comprehensive intersectional reference aid for university faculty and administrators around disability and accessibility issues. It leverages both traditional and multimedia illustrations to increase understanding, effective communication, empathy, and foster mutual respect between adults with and without disabilities.

  7. w

    Entrepreneurship, neurodiversity & gender : exploring opportunities for...

    • workwithdata.com
    Updated Apr 14, 2024
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    Work With Data (2024). Entrepreneurship, neurodiversity & gender : exploring opportunities for ent.. [Dataset]. https://www.workwithdata.com/object/entrepreneurship-neurodiversity-gender-exploring-opportunities-enterprise-self-employment-as-pathways-to-fulfilling-lives-book-by-dinah-bennett-0000
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    Dataset updated
    Apr 14, 2024
    Dataset authored and provided by
    Work With Data
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    Explore Entrepreneurship, neurodiversity & gender : exploring opportunities for ent.. through unique data from multiples sources: key facts, real-time news, interactive charts, detailed maps & open datasets

  8. Neurodiversity Cognitive Assessment Software Market

    • cognitivemarketresearch.com
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    Cognitive Market Research, Neurodiversity Cognitive Assessment Software Market [Dataset]. https://www.cognitivemarketresearch.com/neurodiversity-cognitive-assessment-software-market-report
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    Dataset authored and provided by
    Cognitive Market Research
    License

    https://www.cognitivemarketresearch.com/privacy-policyhttps://www.cognitivemarketresearch.com/privacy-policy

    Time period covered
    2018 - 2030
    Area covered
    Global
    Description

    Neurodiversity Cognitive Assessment Software Market Report 2024, Market Size, Share, Growth, CAGR, Forecast, Revenue, list of Neurodiversity Cognitive Assessment Software Companies (InCrowd, Lumos Labs, Herrmann International Europe, Atlantis Health, Ayogo Health, VeraSci, Psychology Software Tools, Cambridge Cognition, GL Assessment, CNS Vital Signs, Cognassist, Cogstate, Cognistat, Cognitive Apps, CognitFit, Pearson, DO-IT Profiler Solutions, Dystech, SBT Human(s) Matter, ImPACT Applications, Montreal Cognitive Assessment (MoCA), Savonix, SilverCloud Health, Thomas International, Herrmann Global), Market Segmented by Application (Hospitals, Clients, Others), by Type (Cloud Based, On Premises)

  9. i

    Data from: WLA4ND: a Wearable Dataset of Learning Activities for Young...

    • incluset.com
    Updated 2020
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    Hui Zheng; Pattiya Mahapasuthanon; Yujing Chen; Huzefa Rangwala; Anya S Evmenova; Vivian Genaro Motti (2020). WLA4ND: a Wearable Dataset of Learning Activities for Young Adults with Neurodiversity to Provide Support in Education [Dataset]. https://incluset.com/datasets
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    Dataset updated
    2020
    Authors
    Hui Zheng; Pattiya Mahapasuthanon; Yujing Chen; Huzefa Rangwala; Anya S Evmenova; Vivian Genaro Motti
    Measurement technique
    The activities include reading, writing, typing, answering follow-up questions, and off-task that are collected using motion sensors and a heart rate sensor.
    Description

    The dataset consists of data collected with smartwatch built-in sensors, representing learning activities from participants with neurodiversity, which can be used for activity recognition, automatic labeling, and assistive wearable applications.

  10. f

    Focus Group Transcripts: Neurodiversity and Cognitive Load in Online...

    • kcl.figshare.com
    pdf
    Updated Jan 9, 2024
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    Anne-Laure Le Cunff; Eleanor Dommett; Vincent Giampietro (2024). Focus Group Transcripts: Neurodiversity and Cognitive Load in Online Education [Dataset]. http://doi.org/10.18742/24884196.v1
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    pdfAvailable download formats
    Dataset updated
    Jan 9, 2024
    Dataset provided by
    King's College London
    Authors
    Anne-Laure Le Cunff; Eleanor Dommett; Vincent Giampietro
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    This dataset contains transcripts from online focus groups that investigated experiences of cognitive load in relation to neurodiversity in higher education. The study was approved by the ethics committee of the Institute of Psychiatry, Psychology & Neuroscience at King's College London (LRS/DP-21/22-28700).

  11. f

    Table_1_Co-creation of Research and Design During a Coding Club With...

    • figshare.com
    docx
    Updated Jun 2, 2023
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    Verity Ward; Sarah Parsons; Hanna Kovshoff; Ben Crump (2023). Table_1_Co-creation of Research and Design During a Coding Club With Autistic Students Using Multimodal Participatory Methods and Analysis.DOCX [Dataset]. http://doi.org/10.3389/feduc.2022.864362.s001
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    docxAvailable download formats
    Dataset updated
    Jun 2, 2023
    Dataset provided by
    Frontiers
    Authors
    Verity Ward; Sarah Parsons; Hanna Kovshoff; Ben Crump
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    Participatory design aims to work with those who are often excluded from design processes so that their interests are better represented in design solutions. Autistic children are often marginalised and excluded from design processes due to concerns about how their social and communication differences may act as barriers to participation, leading to calls for design processes to be more inclusive and examined more closely to understand the value of participation for (autistic) children and young people. This research describes a participatory design project to develop a computer game during a weekly coding club at a special school. Fourteen autistic (neurodivergent) young people, eight staff members, four technology industry representatives and a Doctoral researcher worked together to design, develop, test, and evaluate the game. This article focuses specifically on the views and experiences of two of the students, which are captured primarily through a Digital Story. Digital Stories are short student-centred videos which show educational experiences. We use a social semiotic multimodal approach to analysis which does not prioritise linguistically encoded meaning, instead recognising the importance and validity of the many and varied ways in which students contributed to the project. The findings highlight the valuable opportunities that participatory design processes can provide for students as both learners and as expert knowers. It emphasises the need to allow room for students’ agency in the design process, so that they really can have a say in the outcomes of design and feel ownership over the process and outcomes of their research participation.

  12. r

    Demanding more than ‘Hallmark moments‘ for neurodiverse inclusion with...

    • researchdata.edu.au
    Updated Jun 11, 2022
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    Benjamin Habib; Claire Kearns (2022). Demanding more than ‘Hallmark moments‘ for neurodiverse inclusion with Claire Kearns [Dataset]. http://doi.org/10.26181/19295432.v1
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    Dataset updated
    Jun 11, 2022
    Dataset provided by
    La Trobe University
    Authors
    Benjamin Habib; Claire Kearns
    License

    Attribution-NonCommercial-NoDerivs 4.0 (CC BY-NC-ND 4.0)https://creativecommons.org/licenses/by-nc-nd/4.0/
    License information was derived automatically

    Description

    No description supplied

  13. Learning About Neurodiversity at School (LEANS) secondary school...

    • osf.io
    Updated Jan 11, 2024
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    Alyssa M Alcorn; Sue Fletcher-Watson; Rebekah Smikle (2024). Learning About Neurodiversity at School (LEANS) secondary school consultation study [Dataset]. http://doi.org/10.17605/OSF.IO/37EVY
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    Dataset updated
    Jan 11, 2024
    Dataset provided by
    Center for Open Sciencehttps://cos.io/
    Authors
    Alyssa M Alcorn; Sue Fletcher-Watson; Rebekah Smikle
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    The Learning About Neurodiversity at School (LEANS) resource is an evidence-based resource pack designed by a neurodiverse team of researchers, for teachers to educate mainstream primary school pupils aged 8-11 about neurodiversity.

    Anecdotal evidence has highlighted public support for provision of a LEANS resource to teach about neurodiversity in secondary schools. This study aimed to articulate what factors need to be considered when adapting the LEANS resource for use in secondary schools, assessing the fit between LEANS as designed for primary schools and the secondary school context. We conducted semi-structured online focus groups consulting with secondary education professionals to gain feedback on key aspects of the LEANS materials. These included the taught elements of the LEANS curriculum, the usefulness of narrative elements for teaching about neurodiverse experiences, the role of teachers and pupils in engaging with the resource and the format of activities used in the resource. A mix of inductive and deductive thematic analysis was conducted to derive themes from focus group discussions. By consulting with education professionals with experience of working in secondary schools, the study identified three main themes which together capture their perceptions of LEANS suitability in this context: relevance to adolescent experiences, pedagogy, and school fit.

    This work is an official part of the LEANS project, conducted as a 10-week student mini-project on the Translational Neuroscience PhD Programme, and originally submitted as an assignment to the University of Edinburgh Medical School Biomedical Teaching Organisation (15/12/21). The complete LEANS resource pack can be downloaded at the LEANS project webpage. https://salvesen-research.ed.ac.uk/leans

  14. r

    Autism, neurodiversity and sensory difference - Einstein A Go-Go podcast

    • researchdata.edu.au
    Updated Jun 21, 2022
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    Katy Unwin (2022). Autism, neurodiversity and sensory difference - Einstein A Go-Go podcast [Dataset]. http://doi.org/10.26181/19491686.V1
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    Dataset updated
    Jun 21, 2022
    Dataset provided by
    La Trobe University
    Authors
    Katy Unwin
    Description

    Dr Katy Unwin talks to Einstein A Go-Go’s host Dr Shane about autism, neurodiversity and sensory difference.

  15. b

    D4D: Electric Bodies - 'Stories of Power' poetry and interview content

    • data.bathspa.ac.uk
    pdf
    Updated May 31, 2023
    + more versions
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    Jess Thom; Allan Sutherland (2023). D4D: Electric Bodies - 'Stories of Power' poetry and interview content [Dataset]. http://doi.org/10.17870/bathspa.15121248.v1
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    pdfAvailable download formats
    Dataset updated
    May 31, 2023
    Dataset provided by
    BathSPAdata
    Authors
    Jess Thom; Allan Sutherland
    License

    http://rightsstatements.org/vocab/InC/1.0/http://rightsstatements.org/vocab/InC/1.0/

    Description

    D4D (Disability and Community: Dis/engagement, Dis/enfranchisement, Dis/parity and Dissent) was a four year AHRC Connected Communities project investigating issues around disability and community.Electric Bodies was one of the eight project strands. It explored the relationship between the disabled artist and the disability arts community through a series of extensive life history interviews edited into transcription poetry cycles.'Stories of Power' is a cycle of transcription poems written by Allan Sutherland. They are based on interviews conducted by Sutherland with the writer and performer Jess Thom. The poems cover a life lived with Tourette's, starting with growing up as a neuro-diverse child and experiences of the special school system. Thom describes how she went from art college to playwork and from there started to develop an arts practice which led to setting up Touretteshero with Matthew Pountney. She talks about the devising and performance of the show 'Backstage in Biscuit Land' and its subsequent live television broadcast. Thom mentions her performance of Samuel Beckett's 'Not I' along with how she obtained permission to stage it from the Beckett estate. Finally she also advances the idea that all performances should be relaxed performances which do not exclude disabled people.This item contains the following files:The poems (PDF)Recording of Allan Sutherland reading the poems (MP3)Transcript of the interviews (PDF)Audio of the interviews (3 x MP3)This content has been uploaded with the permission of the creators. This content is under copyright and may not be used without permission. Use of this repository acknowledges cooperation with its policies and relevant copyright law.

  16. f

    WritingCollegeStudentData11_25 for Comparing the writing skills of autistic...

    • figshare.com
    bin
    Updated Jun 1, 2023
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    Kristen Gillespie-Lynch; Emily Hotez; Matthew Zajic; Ariana Riccio; Danielle DeNigris; Bella Kofner; Dennis Bublitz; Naomi Gaggi; Kavi Luca (2023). WritingCollegeStudentData11_25 for Comparing the writing skills of autistic and nonautistic university students: A collaboration with autistic university students [Dataset]. http://doi.org/10.25384/SAGE.12639640.v1
    Explore at:
    binAvailable download formats
    Dataset updated
    Jun 1, 2023
    Dataset provided by
    SAGE Journals
    Authors
    Kristen Gillespie-Lynch; Emily Hotez; Matthew Zajic; Ariana Riccio; Danielle DeNigris; Bella Kofner; Dennis Bublitz; Naomi Gaggi; Kavi Luca
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    WritingCollegeStudentData11_25 for Comparing the writing skills of autistic and nonautistic university students: A collaboration with autistic university students by Kristen Gillespie-Lynch, Emily Hotez, Matthew Zajic, Ariana Riccio, Danielle DeNigris, Bella Kofner, Dennis Bublitz, Naomi Gaggi and Kavi Luca in Autism

  17. f

    Data from: Medical education: Accommodating students with ADHD

    • tandf.figshare.com
    docx
    Updated Dec 1, 2023
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    Annabel Bailey; Miriam Grotowski; Susan Bailey (2023). Medical education: Accommodating students with ADHD [Dataset]. http://doi.org/10.6084/m9.figshare.24715050.v1
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    docxAvailable download formats
    Dataset updated
    Dec 1, 2023
    Dataset provided by
    Taylor & Francis
    Authors
    Annabel Bailey; Miriam Grotowski; Susan Bailey
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    Attention-Deficit/Hyperactivity Disorder (ADHD) is a neurodevelopmental disorder that affects a significant number of medical students worldwide. It is poorly recognised by educators, and therefore inadequately accommodated for in educational strategies. In order to investigate this further, a literature review and pilot survey were conducted. Health educators employed by The University of Newcastle, Australia, completed a short online survey, which focused on their understanding of, and ability to recognise and adapt teaching strategies for students with ADHD. The results of the survey informed the development of a resource that provided evidence-based strategies for supporting the learning of tertiary students with ADHD. In addition, the results of this pilot study may form the basis for further research in this domain. Given the prevalence and potential impact of ADHD on higher education, it is important to gain deeper insight into how medical educators can best engage and support students with ADHD. This knowledge may potentially reduce the negative impacts of this neurodiversity on students and support their learning and well-being throughout their medical career. Ultimately this may help doctors to achieve their full potential, especially in clinical decision-making.

  18. c

    Exploring diagnosis: Interviews with autistic adults 2017-2018

    • datacatalogue.cessda.eu
    Updated Apr 15, 2024
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    Russell, G; Elphick, C (2024). Exploring diagnosis: Interviews with autistic adults 2017-2018 [Dataset]. http://doi.org/10.5255/UKDA-SN-853753
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    Dataset updated
    Apr 15, 2024
    Dataset provided by
    Elliott , D, University of Exeter
    University of Exeter
    Authors
    Russell, G; Elphick, C
    Time period covered
    Jan 17, 2017 - Mar 13, 2018
    Area covered
    United Kingdom
    Variables measured
    Individual
    Measurement technique
    Three researchers conducted 28 semi-structured interviews with 24 participants across two stages (stage 1, N=22 and stage 2, N=6). Stage 2 aimed to probe further into developing themes specifically about characteristics and repetitive behaviours. Four people were re-interviewed as well as 2 new participants in Stage 2. Participants were recruited through residential homes specialising in housing autistic adults, a training centre for autistic adults and existing networks. Of these, 26 took place face-to-face in a dedicated quiet room and 2 took place online via email (this was done due to the geographical distance of the participants). Participants had the option to have a parent/carer present during the face-to-face interview, 8 chose to do this. Mean interview length was 59 minutes. The topic guides for both stages of interviews were a loose guide for interviewers, enabling researchers to steer conversation around questions of interest; they did not repeat the guide verbatim.
    Description

    Through semi-structured interviews we asked 24 autistic adults about three main topics: their characteristics, repetitive motor movements and behaviours and experiences with treatments and services for autism. The research team used a sampling frame to recruit participants of varying support needs and therefore participants’ support needs ranged from living independently to living in residential care. Inclusion criteria were being over 18 years old, having capacity to consent, and having a diagnosis of an autism spectrum disorder. The aim of this research was to provide evidence about these topics gathered from autistic adults themselves.

    Exploring Diagnosis is a research project based at the University of Exeter, focussing on the role that diagnosis plays in individual and professional understandings of health and illness using autism spectrum disorder diagnosis as a case study.

    This project explores adults' and clinicians’ experiences of the utility and consequences of diagnostic categorisation. Autism diagnosis is particularly relevant because the label is increasingly applied, the diagnosis has clear costs and benefits, and its application is frequently contested. It is important to ask why, if, and how, diagnosis is of benefit. The outputs of this project are: a series of academic articles, two books and three short films exploring the themes of Diagnosis, Neurodiversity and Art.

    Datasets included: Interviews with autistic adults (IWAA); Pupil’s attitudes to Autistic and ADHD peer (PAAAP); and Healthcare Professionals' diagnostic decision-making: observational and interview data (HCPDD).

  19. o

    Data from: Understanding the neurodiversity of grief: a systematic...

    • osf.io
    Updated Jun 7, 2023
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    Karen Goodall; Doug McConachie; Emy Nimbley; Ally Pax Arcari Mair; Karri Gillespie-Smith (2023). Understanding the neurodiversity of grief: a systematic literature review of experiences of grief and loss in the context of neurodevelopmental disorders [Dataset]. https://osf.io/97sc8
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    Dataset updated
    Jun 7, 2023
    Dataset provided by
    Center For Open Science
    Authors
    Karen Goodall; Doug McConachie; Emy Nimbley; Ally Pax Arcari Mair; Karri Gillespie-Smith
    Description

    This systematic review explores lived experiences of grief in the context of neurodevelopmental disorders (NDDs), considering mental health impacts and how these experiences are expressed/understood. Reviewing qualitative research and grey literature centred on lived experience, 39 articles were identified through a systematic search of 8 databases and 1 page-ranked search engine. The articles were critically appraised, and results synthesised using thematic analysis and meta-synthesis. Four main themes and an overarching theme, titled Recognise the Unrecognised, emerged: Hidden Grief, Supported & Included, Understanding My Loss, and The Double Taboo of Death & Disability. The results indicate that grief often goes unrecognised in individuals with NDDs, especially following non-death losses. The implications of these findings and recommendations for future research are discussed.

  20. f

    Data_Sheet_1_Neurotype-Matching, but Not Being Autistic, Influences Self and...

    • figshare.com
    pdf
    Updated Jun 4, 2023
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    Catherine J. Crompton; Martha Sharp; Harriet Axbey; Sue Fletcher-Watson; Emma G. Flynn; Danielle Ropar (2023). Data_Sheet_1_Neurotype-Matching, but Not Being Autistic, Influences Self and Observer Ratings of Interpersonal Rapport.PDF [Dataset]. http://doi.org/10.3389/fpsyg.2020.586171.s001
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    pdfAvailable download formats
    Dataset updated
    Jun 4, 2023
    Dataset provided by
    Frontiers
    Authors
    Catherine J. Crompton; Martha Sharp; Harriet Axbey; Sue Fletcher-Watson; Emma G. Flynn; Danielle Ropar
    License

    Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
    License information was derived automatically

    Description

    The Double Empathy Problem suggests that communicative difficulties between autistic and non-autistic people are due to bi-directional differences in communicative style and a reciprocal lack of understanding. If true, there should be increased similarity in interaction style, resulting in higher rapport during interactions between pairs of the same neurotype. Here, we provide two empirical tests of rapport, with data revealing whether self- and observer- rated rapport varies depending on the match or mismatch in autism status within a pair. An additional opportunity afforded by these data is to examine the effect of the autism status of the rater on the perceived rapport between matched and mismatched pairs. In Study 1 72 participants were allocated to one of three dyad conditions: autistic pairs (n = 24), non-autistic pairs (n = 24) and mixed pairs (n = 12 autistic; n = 12 non-autistic). Each participant completed three semi-structured interactions with their partner, rating rapport after each interaction. Non-autistic pairs experienced higher self-rated rapport than mixed and autistic pairs, and autistic pairs experienced higher rapport than mixed pairs. In Study 2 (n = 80) autistic and non-autistic observers rated interactional rapport while watching videoed interactions between autistic pairs, non-autistic pairs, and mixed pairs (n = 18, a subset of participants in Study 1). Mixed pairs were rated significantly lower on rapport than autistic and non-autistic pairs, and autistic pairs were rated more highly for rapport than non-autistic pairs. Both autistic and non-autistic observers show similar patterns in how they rate the rapport of autistic, non-autistic, and mixed pairs. In summary, autistic people experience high interactional rapport when interacting with other autistic people, and this is also detected by external observers. Rather than autistic people experiencing low rapport in all contexts, their rapport ratings are influenced by a mismatch of diagnosis. These findings suggest that autistic people possess a distinct mode of social interaction style, rather than demonstrating social skills deficits. These data are considered in terms of their implications for psychological theories of autism, as well as practical impact on educational and clinical practice.

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Verity Ward; Sarah Parsons; Hanna Kovshoff; Ben Crump (2023). Table_1_Co-creation of Research and Design During a Coding Club With Autistic Students Using Multimodal Participatory Methods and Analysis.DOCX [Dataset]. http://doi.org/10.3389/feduc.2022.864362.s001

Table_1_Co-creation of Research and Design During a Coding Club With Autistic Students Using Multimodal Participatory Methods and Analysis.DOCX

Related Article
Explore at:
docxAvailable download formats
Dataset updated
Jun 2, 2023
Dataset provided by
Frontiers
Authors
Verity Ward; Sarah Parsons; Hanna Kovshoff; Ben Crump
License

Attribution 4.0 (CC BY 4.0)https://creativecommons.org/licenses/by/4.0/
License information was derived automatically

Description

Participatory design aims to work with those who are often excluded from design processes so that their interests are better represented in design solutions. Autistic children are often marginalised and excluded from design processes due to concerns about how their social and communication differences may act as barriers to participation, leading to calls for design processes to be more inclusive and examined more closely to understand the value of participation for (autistic) children and young people. This research describes a participatory design project to develop a computer game during a weekly coding club at a special school. Fourteen autistic (neurodivergent) young people, eight staff members, four technology industry representatives and a Doctoral researcher worked together to design, develop, test, and evaluate the game. This article focuses specifically on the views and experiences of two of the students, which are captured primarily through a Digital Story. Digital Stories are short student-centred videos which show educational experiences. We use a social semiotic multimodal approach to analysis which does not prioritise linguistically encoded meaning, instead recognising the importance and validity of the many and varied ways in which students contributed to the project. The findings highlight the valuable opportunities that participatory design processes can provide for students as both learners and as expert knowers. It emphasises the need to allow room for students’ agency in the design process, so that they really can have a say in the outcomes of design and feel ownership over the process and outcomes of their research participation.

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